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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    I completely agree!!! I would not trust my health to this lady if she can't even not eat pasta for one night to accomodate her soon-to-be daughter-in-law.
  2. kbtoyssni
    Gosh, I'm hoping the reason you are dealing with this is because your daughter lives out of town and is traveling back to the hometown for the wedding. Here are your options: 1. Daughter skips rehearsal dinner. 2. Daughter goes to dinner but doesn't eat. 3. Daughter goes to dinner and brings her own food. 4. Daughter insists that venue get changed so...
  3. kbtoyssni
    Could you get a 504 plan for HeadStart? I think it is completely unreasonable that you can't send food with your daughter - it's obviously the safest option. No way will they be able to cook for her. Not that you want to send her there since they're only going to "try" to get it right. Would a 504 or IEP allow her to just use the speech therapy part and...
  4. kbtoyssni
    As long as you don't feel you have to replace all your former gluten foods with gluten-free substitutes, you can probably get by with shopping at the regular grocery store. If you stick with the fresh veggies and meats plus safe brands, you can eat really well.
  5. kbtoyssni
    Your GI is correct (he's a keeper!) But if you have tested positive, you can then repeat the test every six months or so to see your levels go down. And some people's levels will stay high enough to test positive for a while - this usually means gluten in sneaking in somewhere and you aren't 100% gluten-free. Or I guess if you were very sick, they might...
  6. kbtoyssni
    Spelt is an ancient derivative of wheat so unfortunately it's a no-go for us gluten-free-ers.
  7. kbtoyssni
    When I was a kid we used to stop at waysides or even gas stations that had some grass next to the parking lot. We'd pull out our picnic blankets and coolers and tea (we're english so we always had tea!). So if the weather is good, this is an option. It's great for longer trips when you want to stop to stretch the legs.
  8. kbtoyssni
    Kinnikinnik bagels are pretty good, and you can order them online.
  9. kbtoyssni
    CLARIFICATION: I'm actually not sure on Cover Girl mascara. I thought that was the brand I've used, but it turns out I've used Maybelline instead.
  10. kbtoyssni
    She had damage??? Then she has celiac. Not having as much damage as normally seen in a biopsy is a good thing - it means she doesn't have as much damage yet. Get this kid off gluten!
  11. kbtoyssni
    With her being on a mostly gluten-free diet at home, it's highly highly unlikely she'd ever test positive via traditional medical testing. Guidelines are 4 servings gluten for 3-6 months minimum to hope for a positive, but as you've seen so much behavioral improvement, she's probably already healed. To get a positive, you have to have a lot of damage and...
  12. kbtoyssni
    Not exactly sure what the doctor means, but she either has celiac or she doesn't. So if it's "in-between" I'm guessing there might have been slight damage in one spot or not enough damage that the doctor wanted to diagnose her. Many doctors feel that the gluten free diet is just too hard, there's no way they want to "sentence" you to a life of not eating...
  13. kbtoyssni
    I use my fingers to brush out any clumps I get which means I often get mascara on my fingers. I always wash my hands afterwards, but you never know. I use gluten-free mascara just to be safe. I use Rimmel brand. Pretty sure Cover Girl is also gluten-free. Not sure on the shampoo.
  14. kbtoyssni
    It sounds like it's just taking you a long time to heal. Which must be really hard, but hang in there. Maybe some gluten in sneaking into your diet and you don't realize it. Have you checked all pet food, personal care products, any housemates' personal care products, do housemates eat gluten? Did you replace all wooden spoons, the toaster? I'm sure...
  15. kbtoyssni
    The processing of wheat starch eliminates nearly all the gluten. In countries with codex standards, wheat starch is often used because it will test below the required ppm of gluten in a food. This does not mean it's 100% gluten-free, just that it is very, very, very low in gluten. Most celiacs are ok with this - the very sensitive are not. I am not very...
  16. kbtoyssni
    Woah - did they think you just woke up one day and decided to have three kids at once for the heck of it??? It's not like you have much control over stuff like this Oooh - I love this!
  17. kbtoyssni
    Hmmm, I don't know. Do you eat crisps often? It could be that the oil/grease just upset your stomach. Or maybe it's that the party threw off your eating schedule which is making you feel yucky? I hate getting random stomach pains - I never know if it's gluten or I'm having a sick day.
  18. kbtoyssni
    Enterolab can also detect gluten intolerance much sooner than blood tests and scopes. Reactions to gluten happen first in the intestines which can be detected in stool. It takes a long time for your body to create enough antibodies for them to start leaking out into the blood and for their to be enough intestinal damage to show on a scope.
  19. kbtoyssni
    I find most people like that think about their current life and what it would be like to take out gluten. For them it would just be a hardship and wouldn't bring any benefit to their life. But a celiac's life on gluten isn't a normal one. It's one of being very sick, bedridden, in constant pain, dying young. To a celiac, there's a huge benefit in not...
  20. kbtoyssni
    Do it for your son. If you want to be around to watch him grow up for as long as possible, you need to stay gluten-free.
  21. kbtoyssni

    ARCHIVED Medicine

    kbtoyssni replied to ntfari09's topic in Coping with Celiac Disease

    I've taken Delsym cough syrup, Halls cough drops, DayQuil.
  22. kbtoyssni
    Plus there's always the risk of CC in a restaurant.
  23. kbtoyssni
    The worst thing in the world would be to have undiagnosed celiac disease. This will eventually lead to the kids getting sicker and sicker until they're too sick to get out of bed. Or it could lead to cancer and other lifelong irreversible health conditions. Or early death. Cutting gluten out of a diet isn't easy, but the alternative is much much worse...
  24. kbtoyssni
    Places with gluten free menus are great because you start off knowing that at least the ingredients are gluten-free. But I still go through the how to prepare without CCing my food speal. I suppose I don't tell them this beforehand, but a waiter who responds to my concerns and gets me a safe meal is well compensated when it comes to tipping! If you're...
  25. kbtoyssni
    I wouldn't even bother with the party food. There's a high risk of CC from anything at a buffet. Someone touches the pretzels and then touches the gluten-free food and you'd have no idea. I'd just eat well before you go and bring your own food. If it's just snack food, it's easy to avoid. If it's more of a sit-down lunch, then you'll get plenty of questions...
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