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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    We just had a thread on the product in your link recently. It's the digestive enzyme Gluten Digest. This pill is not seeking FDA approval and is different than AT-1001. I'm one of those who is not planning on trying AT-1001. I am always very nervous about side effects and ever since my run-in with celiac a few years ago I'm trying not to take drugs...
  2. kbtoyssni
    I also freeze my meals before to make them last during travel. Will you have a fridge in your hotel? Even hotels that don't offer a fridge and microwave standard will often give you one if you have a medical need. Are you driving? If so, you could pack a large cooler and refill with ice everyday. I try to bring stuff that doesn't spoil, but that type...
  3. kbtoyssni
    On second thought, small articles in Martha's existing magazines about food intolerances might be better than a stand-alone magazine. There are a lot of people who read her existing magazines, and this way those people will be introduced to the idea of gluten and other intolerances. When I was in the process of diagnosing myself, I was so thankful for...
  4. kbtoyssni
    Welcome to OP and the other newbies here! jewi - Sounds like your GI is being pretty through testing for Chrons, Celiac and Colitis. The rash could be DH. Or it could be some other sort of rash which may or may not be caused by celiac. It's really hard to say. Do you still get it? Don't be scared about the blood test results. Remember that if they...
  5. kbtoyssni
    Here's a link to some: Open Original Shared Link They're like a plastic bag that you put your toast in and then stick it in the toaster like usual. You can reuse them 100+ times. I use them in hotels to make toast in their contaminated toasters. You can also use them to make grilled cheese in the toaster - then any cheese drips go into the bag rather...
  6. kbtoyssni
    Awesome! Have a great time.
  7. kbtoyssni
    Sounds like a glutening, especially since you know she ate wheat.
  8. kbtoyssni
    Many celiacs have diarrhea, but many also have constipation. The symptoms that doctors most often associate with celiac is malnutrition, weight loss and diarrhea, but recent studies have shown that about 50% of celiacs gain weight. Symptoms can also include joint and muscle pain, difficulty thinking, heartburn, eye twitches, headaches, difficulty sleeping...
  9. kbtoyssni
    Aw, that's adorable! All the troublesome families I read about on this board could learn something from this kid.
  10. kbtoyssni
    I know some parents send pancakes for breakfast. Get yourself a good thermos so you can send hot food. How about hot dogs (send in hot water)? Or string cheese? Or hummas with veggies for dipping? Try searching for something "lunches" or "school lunches". I know there have been lots of great suggestions from parents. I'm old so I'm perfectly...
  11. kbtoyssni
    Guests are usually on your schedule when it comes to food. So I'd make what you usually make. No one would have had a problem if you happened to serve something like salad, veggie, chicken and ice cream pre-gluten-free, so I don't think making a gluten-free meal now that you're officially gluten-free should make a difference. I certainly would not serve...
  12. kbtoyssni
    I think they are manufactured on different equipment and may even have slight recipe differences. The equipment the minis are made on I believe also makes products with gluten so it's a CC issue.
  13. kbtoyssni
    The new labeling laws require the top eight allergens to be disclosed, with wheat being one of them. Since celiac is not an allergy, it is not covered under this allergen labeling law. It's a nice coincidence that wheat happens to be an allergen as well as a celiac no-no. Unfortunately, barely and rye are not common allergens. There are new labeling laws...
  14. kbtoyssni
    Interesting. Do you happen to know of any research done in this area?
  15. kbtoyssni

    ARCHIVED Idiot!

    kbtoyssni replied to L.A.'s topic in Coping with Celiac Disease

    Wikipedia says it's from Grace Hopper. Not sure if that's true or not. Open Original Shared Link
  16. kbtoyssni
    Ah, so it is being marketed as a product for celiacs! I would note that there is a disclaimer that none of their claims are evaluated by the FDA so it is unlikely there is any evidence or medical study to back them up. Here's a recent thread on AT-1001, a similar drug that is working to get FDA approval right now. Search for AT-1001, I know some people...
  17. kbtoyssni
    I seem to remember her advertising the contest as a "help me decide" thing. She never said that she was going to go with the idea that won the most votes. I was always under the impression that she was just using the voting to gage interest in each of the ideas and would make her own personal selection after seeing how the vote turned out. So while it...
  18. kbtoyssni
    Ah, family stuff. Babies and weddings always seem to be sources of conflict. It seems to me that none of these issues are really your problem. Why doesn't your SIL talk to your sister about the money since they're the co-hosts? It doesn't make any sense to get you involved as the middle man. And about the change in location - it's just not that important...
  19. kbtoyssni
    DELETED - double post.
  20. kbtoyssni
    My first response was that maybe this will increase awareness and diagnosis if drug manufacturers are promoting the disease. BUT - I worry that the diagnosis will be taken lightly. I think of the few people I know with lactose intolerance and they take lactase most of the time, but not all of the time. I also don't want this to affect my ability to get...
  21. kbtoyssni
    Here's a link to some info: Open Original Shared Link This particular product doesn't seem to claim it's for people with celiac. I'm guessing it's for non-celiacs, kindof like a digestive enzyme? I don't know a lot about digestive enzymes (try doing a search, I know they've been discussed before), but my general impression is that they can be helpful...
  22. kbtoyssni
    I wanted to ask how your daughter felt about this? If she's an easy-going kid, this situation might not have phased her at all. Me having to eat "different" food or having the menu change on me when I've brought food to match the original menu doesn't bother me too much. I know I'm much, much older than your daughter, but it could be that she just doesn...
  23. kbtoyssni
    I wanted to emphasize the difference between allergy and celiac. They are very different reactions in the body, an allergy being more immediate. Celiac is an autoimmune disease and is more of a delayed reaction. Kids can outgrow allergies. But they will not outgrow celiac. I'm going to guess you've got celiac here. I'm not sure how common gluten allergies...
  24. kbtoyssni
    I don't understand why your daughter was "required" to eat the same food as everyone else the first day (she couldn't eat hers because no one else had one), while this same principle didn't apply the second day (everyone got to eat theirs even though she didn't have one). I can kindof see where the teacher was coming from the first day because the whole...
  25. kbtoyssni
    I was also thinking some sort of virus. Getting glutened is rough on the immune system; I find I get every little bug going around when I'm glutened. I'll get things that no one else had, probably because their immune system could fight it off before they got really sick from it.
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