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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    I would tell him. I agree with helping to get awareness out there. I think you also want a doc to know that because there are health issues a doctor of a celiac patient might want to look out for. For example, celiacs are more likely to have other autoimmune diseases, and I'd want my doc to know that and be on the lookout for them. If she did ever have...
  2. kbtoyssni
    I don't eat only products labeled gluten-free. This diet would be super expensive that way! I've learned the safe brands and by reading threads on this site frequently you'll learn if mainstream brands have CC issues. A good example are Quaker rice cakes and Frito Lay products (expect for Stax). It seems that many people have trouble with those two.
  3. kbtoyssni

    ARCHIVED Just Lost It

    kbtoyssni replied to shan's topic in Related Issues & Disorders

    I'm so sorry to hear about your loss. You are in my thoughts.
  4. kbtoyssni
    While I understand that the intention is not to lead people to believe it's just this brand of milk that's gluten-free, I do not like the ALL wording. Say you put "All chicken is gluten-free". Well, that's mostly true, except the chicken that's plumped up with chicken broth. Or in the case of yogurt, you have no idea because of different flavorings. I...
  5. kbtoyssni
    I haven't read the whole thread so hopefully this hasn't been mentioned before. Have you considered getting a 504 plan for her? It's typically done for grade schoolers, but it spells out the responsibilities of both parties to keep your daughter safe. I think if you have one and the university is unable to provide gluten-free food, they would not be able...
  6. kbtoyssni
    If you're on the run something small like an apple and piece of string cheese is a good snack that's easy to take with you and doesn't require a microwave. (Hoping you're not dairy-free here ) You said you're a college student so not eating after 7pm may not be realistic for you. If you eat dinner around 5 or 6pm and are up studying until midnight...
  7. kbtoyssni
    Is the approval process for children different from that for adults? Just curious.
  8. kbtoyssni
    I think the issue is more that it's a work function so it's not like the OP has control over the restaurant choice. If OP was going out to dinner with a friend, I'm sure she'd pick an acceptable place. Maybe the issue here is that her work didn't choose a place that is accommodating to all. Of course, it can be difficult to accomodate everyone, especially...
  9. kbtoyssni
    Hmmm. Regular M&Ms are gluten-free - only the crispy kind aren't. And grain alcohol should be ok, too, due to the distillation. Although some very sensitive folks on this board have reported reacting.
  10. kbtoyssni
    I buy some of mine from Cub Foods. They've got a great international section where I can get flour. The rest of my flour I get at a health-food type store that sells lots of gluten-free products.
  11. kbtoyssni
    Wow, Ursa, that's a nice, upbeat pep talk from you! When you put it like that, I don't know why anyone would want to go anywhere near gluten after that
  12. kbtoyssni
    I'd recommend the book "Guns, Germs and Steel". It's super super long, but there's a great chapter about the beginnings of agriculture and which grains were "chosen" to domesticate. It gives a lot of insight into gluten and which ethnic groups are most affected by celiac even though gluten is never specifically mentioned. Agriculture began in the fertile...
  13. kbtoyssni
    Ditto what Momma Goose said. You may not feel symptoms, but continuing to eat gluten will set you up for a lifetime of serious health problems.
  14. kbtoyssni
    I've even asked restaurants to heat things up for me! When I go to buffets I'll make myself a cheese sandwich in one of those toaster bags and ask them to heat it up so I have a grilled cheese. Not sure I'd recommend that if you're worried about getting kicked out for bringing your own food though I'm a restaurant's worst nightmare!
  15. kbtoyssni
    I bring meals with me to restaurants all the time. I don't ask beforehand, I just do what I want. Usually the waitress is mostly confused by why I'm not ordering anything, but never says anything about it. If she did, I'd pull a "if I can't eat this here, I'm taking all my friends with me to a different place" .
  16. kbtoyssni
    Gum arabic is ok. Thickener I guess would depend on what it's made out of.
  17. kbtoyssni
    I think she means brazil nuts, hazel nuts, almonds, walnuts, etc in their shells so you crack them yourself. They're often in bulk bins in grocery stores around Christmas time, but they are in a shell so no worries about CC.
  18. kbtoyssni
    The two traditional medical tests are the blood test and the scope - both of which will only be positive if you've been eating gluten and have a lot of damage. Some people here go through enterolab (enterolab.com). They test for gluten intolerance and will get a positive result much sooner than traditional testing so you don't need to have as much damage...
  19. kbtoyssni
    I've only got gluten and peanut restrictions, but I still say "oh, I have a ton of food allergies". With strangers or casual acquaintances I don't go into details unless they ask.
  20. kbtoyssni

    ARCHIVED Why?!?

    kbtoyssni replied to cgilsing's topic in Coping with Celiac Disease

    Weird, because I have this bean salsa that I used to make all the time and the last few times it's made me sick. I *know* it's gluten-free. Maybe Ursa's onto something with the combo-intolerances.
  21. kbtoyssni
    I was originally diagnosed with FMS. 99% of my symptoms went away when I went gluten-free. I realize you're going on dietary response, but if you do have any form of gluten intolerance, you will not grow out of it. Once you heal, you may be able to eat gluten without many symptoms, but you will still be doing damage and be setting yourself up for bigger...
  22. kbtoyssni
    I'm afraid that just having gluten in your stomach isn't going to do a thing. The general guideline is around 4 servings of gluten a day for 3-6 months to even hope to have intestinal damage. If you've been gluten-free for a while, you've probably started healing, and I don't think you have any chance of creating enough damage in your intestines by the...
  23. kbtoyssni
    I'm really not sure, but I *think* companies generally provide food for employees while on business trips. Since you can't eat the food that they purchase, I would think they'd have to accomodate and reimburse your food expenses. Do you have an HR policy on travel and what expenses are reimbursed? There might be something in there about food, and they...
  24. kbtoyssni
    This site Open Original Shared Link says that vanillin *could* contain gluten if it's made from a grain-based alcohol. Is this like all grain-based alcohols; if it's distilled it's most likely ok, but very, very sensitive celiacs may react?
  25. kbtoyssni
    It is a shame. I hate to think of what will happen to that kid as he grows up, starts becoming symptomatic again and spends ten years getting re-diagnosed. The odd part about the story is they get a blood test every year, presumably so that when he finally tests negative they can say he no longer has celiac. So has the blood test been positive for the...
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