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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni

    ARCHIVED Joining

    kbtoyssni replied to dls's topic in Introduce Yourself / Share Stuff

    I am not a member of a support group. I haven't needed one because I'm perfectly happy with my diagnosis, doing just fine finding food (mostly shopping in a normal grocery, plus I live in a city with lots of options), and have done plenty of successful experimentation with baking gluten-free on my own. I don't feel isolated or "different" than everyone...
  2. kbtoyssni
    It is frustrating that the doc insisted it's not celiac, but I'd agree that a endoscopy isn't a bad idea. What's the age you're supposed to start getting those anyway? Since it seems suspicious that your husband has it, I don't see a problem with his sisters getting tested. Maybe they don't have it and they go on with their lives. Maybe they do and you...
  3. kbtoyssni

    ARCHIVED Poll

    kbtoyssni replied to L.A.'s topic in Coping with Celiac Disease

    I think I'm in the minority, but I eat out more post-diagnosis than I did pre-diagnosis. I'm sure part of that is my symptoms of glutening aren't that bad so if someone does screw up, I'm at least still mostly functional. I have places I trust that I go to a lot, and I've gotten good at asking for things that will be safe and knowing what ingredients to...
  4. kbtoyssni
    Yes, it is very possible that he has it even without any family history. Many times family members will have it but not be diagnosed. Or they will carry the genes and never develop celiac. The GI will not be able to diagnose via traditional tests (blood and scope) if he's not eating gluten. You have to be eating the equivalent of several slices of bread...
  5. kbtoyssni
    How strict do you have to be on a gluten free diet? -Very strict. Like no cheating EVER. I think everyone else covered this. I know this seems very, very overwhelming at first, but it will get better. So far the gluten free foods I have bought don
  6. kbtoyssni
    I looked at the research studies on this site about autism and celiac. Here's one whose conclusion is: "when the intestinal wall is not healthy and the brain is vulnerable, the brain is affected directly". To use this argument, you would be making the assumption that someone without celiac is still being affected by gluten and casein, which I think most...
  7. kbtoyssni
    I didn't think they smelled bad! I did think they were crumbly and if you put any toppings on your burger the bun will fall apart. I'd rather just go without.
  8. kbtoyssni
    Old El Paso taco seasoning is gluten-free as well.
  9. kbtoyssni
    I'm not sure if gluten is still present in smoke if you burn it. Ironically, there have been studies showing smoking can decrease stomach problems and hold off the onset of celiac. I'd assume second hand smoke would have the same effects. I'd also lean more towards this being from breathing in all those chemicals all night.
  10. kbtoyssni
    Margaritas are usually ok, especially at mexican places where they mix their own. I was at one place that added beer to theirs, though, so now I always ask about that. I get some strange looks because no one adds beer to margaritas! Somehow I stumbled on the only place in the country that does it. If you want to make them at home, here's a delicious...
  11. kbtoyssni
    I don't mind the red rice, black rice and pecan kind. I buy mine frozen, too, so I have to toast them. They are a very dense bread. Some loaves crumble and some are just fine. I rarely eat bread, but if I were going to eat it frequently I'd make my own.
  12. kbtoyssni

    ARCHIVED Fasting

    kbtoyssni replied to melmak5's topic in Food Intolerance & Leaky Gut

    I'm not a fan of fasting because of what it does to your metabolism. Your metabolism will decrease if you fast and can often take up to six months to recover (depending on the person and the length of the fast). I wish I had some research to refer to here. However, it seems like you want to do this to get your digestive system back on track and working...
  13. kbtoyssni
    The "stereotypical" celiac is underweight due to malnourishment, but many celiacs are actually overweight. One theory is that if you're not absorbing enough food, your body is in starvation mode so your metabolism plummets and you hold on to everything. Blood tests commonly give false negatives. And I also think it's common for one or two gluten...
  14. kbtoyssni
    Gosh, that would grate on my nerves so much! You're obviously not going to be able to change his attitudes towards food or make him understand celiac, but you did get him to stop feeding your dog which indicates he's trainable Now, you just have to figure out how to keep his gluten away from you. Establishing a gluten-free Zone around your desk is a good...
  15. kbtoyssni
    Yes, you absolutely have to replace your toaster and wooden spoons/cutting boards and probably your collender and other strainers. Other items can be a judgment call depending on how scratched up they are.
  16. kbtoyssni
    I don't really want the law hurried up, either, for the reasons that mommyagain stated. In the end, I only trust myself to make the decisions about what I will and will not eat. I do not want to put that trust in large corporations and with this new law I feel like I'm being forced to trust them more which I am not happy about.
  17. kbtoyssni
    Even if a products says gluten-free, I still read the label. Someone on her reported finding a product labeled gluten-free the other day that had oats in it! So you still have to check. I think some companies label both gluten-free/wheat-free because there are people who are just allergic to wheat and can eat foods with barely, rye and oats. They maybe...
  18. kbtoyssni
    Yeah, I'm skeptical. I'd love to see more information on how they determined she no longer has celiac. I would imagine if they took care of her other health problems, her immune system would be more tolerant to gluten for a while so I'm not believing this right away. Love, That annoying person who tells you "oh, I used to have celiac when I was a kid...
  19. kbtoyssni
    The article talks about you only being able to claim the difference between the cost of a gluten-free item versus a gluten item. I think there's also something about medical expenses having to take up a certain percentage of your income to claim it, too. I don't know the specifics, but I know it's a fairly high percentage which excludes most people from...
  20. kbtoyssni
    I'd disagree, too. By the time food waste has made it through the stomach and intestines into the colon, it's just waste. Even if there were some nutrients left, the colon's job isn't to absorb nutrients so I doubt it's going to be doing much of that. I see it more as you've got waste products sitting around in your body for longer - and that can't be...
  21. kbtoyssni
    Most days I feel fabulous, with the occasional day of good or great. I do seem to have a more sensitive stomach than most people I know (or maybe I'm just aware of the fact that upset stomachs aren't normal and there should be a solution), but it's not too bad. I'm also lucky that my gluten reactions aren't *too* bad. I know when I've been glutened, but...
  22. kbtoyssni
    How is your other son's doctor with celiac? Would he be willing to write a note to the school saying he wants Ezra to try a gluten-free diet based solely on him being sick as soon as he starts consuming gluten? Seems like too much of a coincidence to me, and traditional medical testing isn't going to be easy at this point. That really is too bad that the...
  23. kbtoyssni
    Celiac is real to me because as soon as I cut out gluten, I got my life back. I was bedridden before and couldn't concentrate and was depressed and in general a mess. And now I'm living my life and have more energy than I've had in years. I'm one of the lucky ones that went gluten-free and felt better immediately which I think is why I'm so positive about...
  24. kbtoyssni
    Gluten grains are a subset of all grains. You can still eat rice, corn, quinoa, and many other grains. If you stop eating gluten and then get a blood test or scope for celiac, it will likely be negative because your body will stop producing antibodies and start healing. So if you ARE going to get tested, keeping eating gluten. Check out the FAQ...
  25. kbtoyssni
    Could it be something other than gluten? What about chemical exposure or mold?
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