-
Posts
1,516 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
-
ARCHIVED Does This Letter Make Any Sense To U?
kbtoyssni replied to mouth's topic in Parents, Friends and Loved Ones of Celiacs
In the scientific world, gluten technically only refers to wheat gluten (the protein in wheat), but it is becoming more common for the term "gluten" to be used in describing the protein found in all grains. So this lady is simply saying that the product contains the protein found in corn, but just the protein part, not the rest of the corn grain. I find... -
ARCHIVED What Is A 504?
kbtoyssni replied to sammers1's topic in Parents, Friends and Loved Ones of Celiacs
I know someone on here who is in college also has one so the college meal plan must accommodate her diet. It sounds like a 504 is a great idea if you need any accommodations that aren't typically provided to students. -
ARCHIVED Thanksgiving Is Coming!
kbtoyssni replied to Offthegrid's topic in Coping with Celiac Disease
I would bring your own food. Even if your family cooks a gluten-free meal, if they aren't celiac themselves they probably don't realize all the potential places for CC. I've spent years learning this diet and getting it right - I don't expect a family member to figure it out in a few days. Nor do I want them going through the learning curve with me. ... -
ARCHIVED How Do I Overcome Bad Advice?
kbtoyssni replied to sharps45's topic in Parents, Friends and Loved Ones of Celiacs
I would approach it from a "there has been recent research that shows you do not grow out of the disease and you must stay strictly gluten-free to avoid further complications even if you don't get immediate symptoms from eating small amounts of gluten". 22 years ago it was pretty standard for doctors to say that kids would grow out of it. Why does his... -
I would also look at the times and situations that you cheat in and try to do something to change it. The hardest times for me is when all my friends are eating delicious stuff and I can't have any of it. So I try to always have yummy dinners in my freezer so I can grab something on short notice. I bake a lot and bring things along to friend's houses...
-
ARCHIVED I Accidently Ate Wheat! Need Advise!
kbtoyssni replied to tbradley93's topic in Coping with Celiac Disease
You usually have to just ride it out. Everyone seems to have their own form of comfort food when they get glutened - mine is milk, cheese, and scrambled eggs. Are you gluten-free or just wheat-free? It just jumped out at me as unusual since most around here are gluten-free. I'd hate for a fellow celiac to be eating barely and rye without realizing it... -
ARCHIVED M&ms
kbtoyssni replied to Trillian's topic in Gluten-Free Foods, Products, Shopping & Medications
Maybe the story about them coating their blue ones in flour is because the blue cartoon character M&M is the crispy one. -
I know that "you couldn't eat anything there" wasn't the actual reason for your friends not inviting you, but I wanted to comment on people who do say that. I try to stress to friends that I want to go out and be invited even if I can't eat most of the food. I'm there for the social aspects, not for the food. I go out to eat about once a week with friends...
-
ARCHIVED No More Gluten Free Menu At Bravo?!
kbtoyssni replied to mesmerize's topic in Gluten-Free Restaurants
I doubt emailing Bravo would help if it's lawsuits they're worried about. I love when places offer gluten-free menus. It helps me eliminate all the foods on the full menu that I shouldn't even consider. At least I know ingredients have been checked for the foods on a gluten-free menu, and it saves a ton of time because I don't have to ask a bunch of questions... -
ARCHIVED How Was Your Halloween?
kbtoyssni replied to dandelionmom's topic in Parents, Friends and Loved Ones of Celiacs
I was a carebear, too! Good choice of costume -
ARCHIVED Tell Me Why?
kbtoyssni replied to orhs66's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Weight training is very important to weight loss. Muscles burns a lot of energy even when you're sitting around doing nothing so add a few pounds a muscle and you'll be burning many more calories a day without changing your workout routine. Can't remember the exact number - is it 50 cals/day for a pound of muscle? It's something like that. -
That's great! We need more doctors to go to conferences like that.
-
ARCHIVED For Those Of You That Had A Dx For Most Of Your School Career
kbtoyssni replied to NewGFMom's topic in Introduce Yourself / Share Stuff
I wasn't diagnosed when I was a kid, but I did bring my lunch every day. My mother was big into health food so I had a sandwich (on my dad's homemade bread), apple, pretzels and milk every day. I hated it, and was embarrassed by it and didn't like to eat most of it. It's boring, the bread looked different that everyone else's and was crumbly, I never liked... -
ARCHIVED The Contamination Topic
kbtoyssni replied to Shotzy1313's topic in Coping with Celiac Disease
Came up with another one, courtesy of a coworker Office Coffee: Open coffee pots can get crumbs in them. Try brewing coffee at your desk or seeing if you can get the closed coffee thermoses instead. Office Coffee Condiments: Coworkers try pouring excess back into the container, contaminating the whole thing. Use single-serving sugar and cream or bring... -
You mean these aren't normal-person behaviors??? Thanks for posting!
-
ARCHIVED Doctor Appointment Shocker
kbtoyssni replied to Ridgewalker's topic in Parents, Friends and Loved Ones of Celiacs
There was a school in Appleton, WI, that did this. I wish more schools did it. They spend more money on food, but the number of discipline problems decreased dramatically. It was shocking to read the statistics. I know there's a theory behind kids have to learn to make good decisions, but serving lots of junk food is just setting them up for failure. -
ARCHIVED Newly Diagnosed Here And Have Some Questions!
kbtoyssni replied to blondebombshell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This thread says that A1 Sauce is gluten-free: Open Original Shared Link -
ARCHIVED Stomach Pain During 3rd Hour Class At School
kbtoyssni replied to Virgie's topic in Parents, Friends and Loved Ones of Celiacs
Good question. Maybe her third or second hour class is in a home ec room that has flour in the air. Or maybe she sits in a desk that had a kid who always snacks on wheat products the hour before her. Or maybe she really dislikes third period or dislikes someone in the class or something so it's stress-related. Reminds me of when I was in grad school... -
ARCHIVED New Father
kbtoyssni replied to holdthegluten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Congrats!!! -
ARCHIVED Chock Full Of Questiony Goodness
kbtoyssni replied to Nyxie63's topic in Coping with Celiac Disease
You can also get toaster bags: Open Original Shared Link You put your bread in and toast in a regular toaster. I use them while traveling. I've even put a cheese sandwich in them and asked a restaurant to toast for me so I have grilled cheese. -
ARCHIVED Chock Full Of Questiony Goodness
kbtoyssni replied to Nyxie63's topic in Coping with Celiac Disease
1. Is there a good single source for finding message board-type depth of detail about food sensitivities? Book, website, whatever. I'm hungry for info and want/need instant gratification. This is the best board I've found (but I'm only gluten-free). Start searching here and you'll be occupied for days! 2. Just what exactly is gluten-lite? Is... -
ARCHIVED Help With Family Over Holidays
kbtoyssni replied to tgrand's topic in Coping with Celiac Disease
Another thing to consider is even if you give them information, are they really going to be able to cook safe food for you? You might have a very supportive family, but there's a huge learning curve here and gluten is in all sorts of things they might not realize. There are very few people I trust to cook for me even if they are supportive and understand... -
ARCHIVED Silent Celiac Disease?
kbtoyssni replied to dolly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm assuming that SCD is someone with celiac disease that happens to be asymptomatic or someone who doesn't have a lot of GI symptoms. Which means you still have celiac disease, and consuming gluten occasionally will cause damage to your intestines whether you have symptoms or not. But it sounds like you do have symptoms. Since you have felt better the... -
ARCHIVED Dusted!
kbtoyssni replied to sister golden hair's topic in Introduce Yourself / Share Stuff
It's never happened to me, but this is the reason why I refuse to have wheat flour in my house. No matter how careful you are, that stuff gets all over the place! It's nearly impossible to clean up. -
ARCHIVED Can't Find The Number For Equate...
kbtoyssni replied to FootballFanatic's topic in Gluten-Free Foods, Products, Shopping & Medications
Maybe you could call Wal-Mart and ask them??? It might be the same customer service number as Wal-Mart, too.