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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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ARCHIVED Wow News To Me!
kbtoyssni replied to crittermom's topic in Parents, Friends and Loved Ones of Celiacs
My company used to reimburse us if we were a non-smoker and if we took a health quiz every year. And reimburse for gym club memberships. It makes a ton of sense to do it that way. Then my company got bought out and all those nice benefits went away. This is the one problem with the BMI system. People who are very physically fit will often... -
ARCHIVED Another Interesting Day At The Doctor's Office
kbtoyssni replied to Ridgewalker's topic in Parents, Friends and Loved Ones of Celiacs
I agree that codine cough meds are the best! I have Whooping Cough and without them I would be 100 times more miserable than I already am. I hope you can get your little guy's immune system up and running again soon. -
ARCHIVED Another Great Disney World Experience
kbtoyssni replied to Alexandra Rosenberg's topic in Traveling with Celiac Disease
All this talk about how wonderful Disney World is for gluten-free food makes me want to visit! -
ARCHIVED Healing Garden... Safe?
kbtoyssni replied to silly celiac's topic in Gluten-Free Foods, Products, Shopping & Medications
There are a number of mainstream brands that are gluten-free. Fructis, Pantene and Themasilk come to mind. I think Dove is also and Suave. Treseme is NOT gluten-free. -
ARCHIVED How Do You Store Your gluten-free Baking Supplies?
kbtoyssni replied to maddycat's topic in Gluten-Free Recipes & Cooking Tips
I have a few large square clear tupperware from Target that I store my flours in. I can fit 3-4 Bob's Red Mill-sized bags in each container. I can see exactly what's in each one and bugs can't get in. I also have two tupperware containers that I keep my pre-mixed flour in (I use a gluten-free and bean flour mix). I've never frozen my flour. -
I'm from Minneapolis. I am not part of a support group, though.
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ARCHIVED Low Income, How To Aford gluten-free Food For Family Of 4?
kbtoyssni replied to grovermummyC4's topic in Coping with Celiac Disease
The biggest thing you can do is not use specialty gluten-free foods. Find a cheap, naturally gluten-free substitute for all your old gluten foods. Try corn chips instead of crackers, corn tortillas or lettuce wraps instead of sandwiches, rice instead of pasta. Buying in bulk or buying brands labeled as "ethic" can save you money. I buy 10lb bags of rice... -
Yes, they are. Your body can often tolerate a certain amount of a food so if you eat it everyday you can go over the limit and start reacting to it. I'm assuming you're talking about using an elimination diet to diagnose food allergies/intolerances. The diet here is more of a maintenance diet to help avoid additional allergies/intolerances from...
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ARCHIVED Flax Seed Meal Substitute
kbtoyssni replied to GFM's topic in Gluten-Free Recipes & Cooking Tips
There's flax meal in a recipe I have for french bread and I just leave it out. It doesn't seem to change to taste or texture. It might be in there just to add fiber. -
ARCHIVED How Can This Be?
kbtoyssni replied to 2boysmama's topic in Gluten-Free Foods, Products, Shopping & Medications
Even though the oats may not be contaminated, a majority of celiacs still consider oats themselves to contain gluten. So has the FDA decided that oats are gluten-free now? I'd be really mad if they did because it makes the new labeling completely useless. -
ARCHIVED Testing Baby Gluten
kbtoyssni replied to KHumphrey's topic in Parents, Friends and Loved Ones of Celiacs
The other thing to be aware of is they baby might not have celiac at birth and might either develop it later in life or never get it. So it might be something that shows up at age 5 or 10 or 15. You never know when, so if he/she tests negative initially, it's still something to be aware of and watch for. -
ARCHIVED Is Being Angry My Only celiac disease Symptom?
kbtoyssni replied to KerstinH's topic in Coping with Celiac Disease
It might help you stay gluten-free if you do it for your children. I'm sure you want to be around to see them grow up, and the longer you keep eating gluten, the more likely you are to suffer from complications like cancer, Alzheimer's, neurological symptoms, etc. -
ARCHIVED Just Found Out About This After 10 Years Of Pain
kbtoyssni replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You certainly don't have to go vegetarian if you aren't already. Plain meat is naturally gluten-free and tends to be easy on a healing stomach. You do want to watch for flavoured or pre-seasoned meat - those usually have gluten. And chicken or turkey with broth added has gluten, too. If you like sandwich meat, try Hormel brand (the package says gluten... -
ARCHIVED What Would You Do?
kbtoyssni replied to Guhlia's topic in Parents, Friends and Loved Ones of Celiacs
I know that veggies often have trouble digesting meat again because the body has stopped producing the enzyme needed to digest meat. The body will start producing the enzyme again when you start eating meat again. But how does this work with gluten? Is there an "enzyme" or something that the body needs to produce to digest gluten? -
Lactose (the sugar in milk) is digested by the tips of your villi, so if they are worn away due to celiac, you will have trouble digesting lactose until you heal. It also seems that a lot of celiacs have trouble with casein (the protein in milk), too, and this is not something that goes away with healing. I've often wondered if there's a similarity...
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ARCHIVED Wow News To Me!
kbtoyssni replied to crittermom's topic in Parents, Friends and Loved Ones of Celiacs
I should add the when employers negotiate with insurance companies to cover their employees, they agree to cover all employees at the same cost, regardless of prior medical conditions. They pretty much average out what they expect everyone to need for medical services and everyone pays the same. This means that someone who is very healthy is probably paying... -
ARCHIVED Wow News To Me!
kbtoyssni replied to crittermom's topic in Parents, Friends and Loved Ones of Celiacs
If you are insured by an employer, then it shouldn't be any more expensive. If you have your own private insurance, though, that's when you run into problems. Insurance companies want to make money, so they will charge more for anyone with a "prior condition". Which includes celiac. Although all of us know a diagnosed, gluten-free celiac is going to be... -
ARCHIVED Us Issues Draft Codex Positions On Gluten-free
kbtoyssni replied to ENF's topic in Publications & Publicity
I was going to say the same thing as tarnelberry. I'm sure companies are required to test the gluten limits at a certain frequency, and it's impossible to test if things have zero gluten. I was actually pleased with the 20ppm limit. I think the UK has a 200ppm limit? (someone correct me if I'm wrong!) so this seemed pretty good to me. I was impressed... -
ARCHIVED What Would You Do?
kbtoyssni replied to Guhlia's topic in Parents, Friends and Loved Ones of Celiacs
Oh, and I know I've already said this, but it makes me so mad that insurance charges more for celiacs. Hello!!! A diagnosed celiac on a gluten-free diet is going to be a million times healthier and cheaper than an non-diagnosed celiac. Major pet peeve of mine... -
ARCHIVED What Would You Do?
kbtoyssni replied to Guhlia's topic in Parents, Friends and Loved Ones of Celiacs
I can definitely see not wanting a celiac diagnosis on her records. Not to mention you'd have to pump her full of gluten for months if you want a positive doctor's diagnosis which I don't think you're going to be able to do. Even Enterolab at this point won't be accurate. Unless you go for the gene test. It's not going to give you a 100% diagnosis, but... -
ARCHIVED Ugh The School Just Ticked Me Off!
kbtoyssni replied to Nikki'smom's topic in Parents, Friends and Loved Ones of Celiacs
Organ pasta is a good idea. They're like Spaghetti-O's and have a ring-style top so you don't need a can opener. A can of tuna would be a good protein source. Or try Thai Kitchen "ramen" noodles. They make a yummy lunch. -
ARCHIVED My 2 Children Argue So Much They Are Making Me Crazy!
kbtoyssni replied to gdobson's topic in Introduce Yourself / Share Stuff
And if you ever watch Super Nanny, you can take comfort in the fact that your kids can't possibly be worse that the ones she deals with The families she comes up with are amazing. -
I don't think you jumped the gun either. You have every right for you bracelet to say exactly what you want it to - you're paying for it! I would have been super mad, too, and I'm glad it got worked out.
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I've never heard of caramels in general not being safe (of course, you always have to check ingredients...) Are you thinking of caramel color? Because that may contain gluten (although it seems that 99% of it in the USA doesn't).
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ARCHIVED Art Projects At Preschool
kbtoyssni replied to Guhlia's topic in Coping with Celiac Disease
I third the picture idea. Pasta art isn't going to last forever anyway so this is the best way to save it "forever".