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kbtoyssni

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Latest Celiac Disease News & Research:

Everything posted by kbtoyssni

  1. kbtoyssni
    I would continue getting your son tested, probably yearly. Celiac is often triggered by some trauma to the body so if he has the genes, he may not have celiac now, but he may develop it in the future. It's just something to be aware of and monitor. Plus, at the time of his last blood test, he may not have been eating much gluten or he may have been producing...
  2. kbtoyssni
    This was my philosophy, too. The first week I ate A LOT of tortilla chips with cheese because I was hungry and didn't know what else to eat. Even though it wasn't the best nutrition-wise, it was still miles better for my body that my previous gluten-eating habits. As the weeks went by and I started figuring out brands, my diet got healthier.
  3. kbtoyssni
    I would just write gluten-free on the card or not check anything, then get the phone number of the caterer from your SIL and call yourself to order a special meal. If you don't feel comfortable after talking to them, bring your own food. It is never tacky to put your health first.
  4. kbtoyssni
    I'd just bring my own food if you're worried about CC. I do it all the time with no problems.
  5. kbtoyssni
    You're only on day 5 of the diet. It's pretty common to not feel well even after eating gluten-free foods for a few months. I wouldn't be too concerned just yet.
  6. kbtoyssni
    I'd also like to suggest probiotics. All those antibiotics have likely killed all the good bacteria in your gut, too, so you'll want to replace those. Are you trying the diet? If so, you might want to eliminate dairy for a while, too. In fact, a very basic diet where you slowly add in different foods might bee helpful if you think you have other food...
  7. kbtoyssni
    Seizures can be related to celiac. And I am so frustrated by a system that gives you drugs to fix a problem rather than figuring out the root cause. I think I would either get a second opinion or just try the diet. You don't need a doctor's permission to not eat gluten so this is a great option if you can't find a good doc and/or you don't want to keep...
  8. kbtoyssni
    I think I read somewhere that one of the major cigarette manufacturers started putting gluten in the glue to hold the paper around the cigarette. Some people on this board were getting blisters on their hands and lips because of it.
  9. kbtoyssni
    I like the Pacific brand soymilk best. Although I agree that soymilk does not taste like milk so if you give it to him as a substitute, I can see why he won't drink it.
  10. kbtoyssni
    I use Thermasilk shampoo, I know Suave is ok, too. Most Fructis stuff is fine. I use CoverGirl tinted moisturizer, eyeshadow, lipstick. Some Boots No.7, but a few of those lipsticks do have gluten. Vaseline Intensive Care body lotion - I use the SPF15 stuff (it's new and sunscreen in a body lotion is genius!) but watch out for this brand because some...
  11. kbtoyssni
    I like the bread recipes in "The Gluten Free Gourmet" cookbook. The french bread one is delicious and works great for fondue.
  12. kbtoyssni
    I'm so sorry to hear about what's happening with your daughter. Yes, stress could definitely make this worse. But I'd also suspect that you might have some hidden gluten lurking somewhere since you've only been at this two months. What about personal care products (lotions, shampoo), pet food, that bottle of ketchup that got contaminated a few months...
  13. kbtoyssni
    I wouldn't do it. If you've seen an improvement, I think you've got your answer. If she's still feeling badly, though, you might want to look for other issues.
  14. kbtoyssni
    My mother had me and my brother as an undiagnosed celiac. My mum ate gluten every day and I turned out ok Or at least I like to think so Getting glutened isn't good for the baby, but mistakes happen and I doubt one glutening will hurt the baby. And it sounds like your gluten-free except for the glutening so I think your baby will be just fine.
  15. kbtoyssni
    Interesting. This could be why I felt so craptacular for the last two months. Thanks for the info!
  16. kbtoyssni
    I use the recipe I used to use pre-gluten-free with gluten-free bread cubes. I save all my failed attempts at bread baking to make into bread cubes. So if you want the same stuffing you always have (which is usually the case since most want to have Thanksgiving food the way it's always been) this is a great option.
  17. kbtoyssni

    ARCHIVED Peanuts

    kbtoyssni replied to GRUMP 1's topic in Food Intolerance & Leaky Gut

    I wonder what the allergic component is in peanuts? And if this will help those of us with more of an intolerance to them. As for wheat, I'm not sure what the allergy component is, but if you're talking about removing the gluten, I don't think it's possible. If you took the protein gluten out of wheat, you'd pretty much just be left with the husk. And...
  18. kbtoyssni
    Just wanted to say congrats to all of you and keep it up! You're doing great!
  19. kbtoyssni
    I usually fly American Airlines and they can do vegetarian OR gluten-free, not both. So I pick gluten-free, and hope for the best on the veggie part. They're generally pretty good, but they almost always include this four-grain cracker that contains barley, rye, and oats... At least it's wheat free??? It's individually wrapped so it's not like it's contaminated...
  20. kbtoyssni
    I'm sorry you're in such a tough situation. I wonder why your mother is being so resistant to this? Is it that she doesn't have enough information about the disease? That she's in denial (maybe because she feels guilty that she "gave" it to you?) Does she think that you being gluten-free in her house is going to make mealtime so much more difficult, and...
  21. kbtoyssni
    I'd also stop inviting her to dinner. You really don't need that sort of negative influence in your or your son's life. One thing I very much dislike is when people say that gluten food tastes better and why would they want to eat any of my "yucky" gluten-free food. I just want to snap back that they eat plenty of naturally gluten-free food and love...
  22. kbtoyssni
    My insurance company wouldn't reimburse for it. I spent a good chunk of time explaining that no allergist in the city would be able to test for a non-allergy casein intolerance but they didn't seem to "get it". I paid for it myself. BUT, if it had been positive, I don't think I'd want that on my medical records and if insurance paid for it I think it would...
  23. kbtoyssni
    Hot dogs on a stick! I made mac and cheese camping once. I took the cheese mix out of Kraft mac&cheese and brought gluten-free pasta.
  24. kbtoyssni
    Well, I think you have several options. One is to suggest you go to the "safe" restaurants. Although it sounds like you might not have that many options to choose from so everyone might get sick of the one safe restaurant you always want to go to. Another is to go to the restaurants and bring your own food. I do this all the time. You have to learn...
  25. kbtoyssni
    I do not buy Target Brand (Archer Farms or Market Pantry) for this very reason. One of the problems is that they get their food from another supplier so when you call they have to route you to the proper supplier. The suppliers are generally not set up for individual customer service - they mainly work with large corporations like Target - so it's hard...
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