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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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Sounds safe to me. But, as always, I'd call the company to be 100% sure. I always buy icing sugar from a regular grocery store without any problems.
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ARCHIVED Does Being A Parent Not Mean Anything To Some?
kbtoyssni replied to blueeyedmanda's topic in Introduce Yourself / Share Stuff
Gosh, that guy sounds like the biggest jerk. I hope your sister gets out soon. I did have to laugh at him going to a strippers conference, though. "But, honest, it's work-related!" -
ARCHIVED Comparing French Bread
kbtoyssni replied to luv2cook's topic in Gluten-Free Recipes & Cooking Tips
I've made the first one and love it. I could probably eat a whole loaf in one sitting I was a little disappointed that it didn't taste too great on day 2, but that could be an issue with my cooking skills since it tastes fine day 2 when my mum makes it. It never lasts past day 2. This recipe is great for fondue. -
I love your second post! I don't think it matters if you have celiac or "just" gluten intolerance. Either way gluten makes you sick and you have to avoid it. You are completely right that you don't have to justify anything you do to anyone but yourself. Don't ever let someone guilt you into going to a restaurant to trying "just a little bit" if you aren...
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ARCHIVED Do You Retry Foods That You Know Makes You Feel Blaw?
kbtoyssni replied to LoveBeingATwin's topic in Coping with Celiac Disease
I do occasionally if I'm not sure if it was the food or just a back stomach day. And I did the peanut test multiple times before finally giving in and giving it up. Once I know for sure a food is a problem I won't test myself anymore. -
Wow, those pictures are amazing! (and you nieces are cute, too Do you ever sell your pictures?
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ARCHIVED Going Backwards - My Story
kbtoyssni replied to Derek Borckmann's topic in Coping with Celiac Disease
Welcome! Sorry things have been so rough for you, but if you stay gluten-free you will get much better. I get the impression that you may be getting glutened somewhere and that's hurting your ability to heal. Does the rest of your family eat gluten or use shampoo/makeup that contains gluten? You might want to consider making your home mostly gluten-free... -
ARCHIVED Gluten-free Fast Foods?
kbtoyssni replied to mama2two's topic in Parents, Friends and Loved Ones of Celiacs
There's not a whole lot at the mall to eat, unless you just want ice cream and soda. I'd be inclined to bring your own food. When my family used to picnic we'd have crackers and cheese and tomato and cucumber. It was something special that we didn't get every day. -
So good for me not checking this thread for months after saying I found a good doctor - sorry everyone. I see Dr Ronda Stellar at the Shoreview Medical Clinic (corner of Lexington and 96). She's a regular general doctor but I love having someone who's aware of celiac and not going to be skeptical every time I mention it.
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ARCHIVED Am I Being Too Careful?
kbtoyssni replied to cdfiance's topic in Parents, Friends and Loved Ones of Celiacs
Although it's extremely unlikely that she'll get glutened off the paint, if you can get gluten-free paint I'd do it. The world is a risky place for celiacs; I prefer to eliminate as many situations with the potential for CC as I can. That way I can engage in other "risky" behavior like going out to eat more frequently. -
ARCHIVED Gluten Challenge Necessary?
kbtoyssni replied to lamp's topic in Parents, Friends and Loved Ones of Celiacs
Sounds like you're pretty convinced. I would only do the gluten challenge if you needed more proof (beyond what you've already got in blood tests and dietary response) to commit to putting her on a gluten-free diet. Don't do it just to please the doctor. -
ARCHIVED Teen Won't Stop Glutening
kbtoyssni replied to laurabelle's topic in Parents, Friends and Loved Ones of Celiacs
I like nachos for a snack. Just melt cheese over tortilla chips with some jalepenos or pepper rings. You can have some salsa or sour cream with it, too. It adds some flavor and is more filling than just chips. -
You may be able to find a regular doctor who's willing to diagnose you on dietary response. That's what I did. If a GI had told me to keep eating gluten so he could do a biopsy, I would have told him to stuff it. Plus this one doesn't seem to know what he's talking about. Has he diagnosed anyone with celiac before? He sounds like the type to say "they...
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ARCHIVED Family Acting Weird
kbtoyssni replied to natalie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Did you ask them why they've been distant and ignoring you lately? There could be a good reason why that you can work through. Maybe you mother does feel guilty because she "gave" it to you, maybe they think the diet is too hard for them to deal with and you're going to ruin every get-together you have. It doesn't sound like they're being downright hostile... -
ARCHIVED Does It Affect All
kbtoyssni replied to little d's topic in Introduce Yourself / Share Stuff
Wheat and barely were first domesticated in the Fertile Cresent (Mesopotamia region). People from this area will have a lower chance of getting celiac because their genetics have had longer to adapt to eating gluten. It's only a few thousand years headstart on the rest of the world, though, so the percent of the population affected isn't going to be that... -
ARCHIVED Brand New To The Celiac Way Of Life
kbtoyssni replied to griffmom's topic in Parents, Friends and Loved Ones of Celiacs
Welcome and congrats! I love The Gluten Free Gourmet cookbook. I've made most of the cakes in there and they've all turned out great. The gluten free diet can be more expensive at first mainly because people try to replace all their old gluten foods with gluten-free ones. With a bit of thinking outside the box, you can reduce these costs. Like using... -
ARCHIVED Teen Won't Stop Glutening
kbtoyssni replied to laurabelle's topic in Parents, Friends and Loved Ones of Celiacs
What kind of foods is it that he sneaks out to buy? Just trying to figure out if there's something all his friends can eat that he can't and it makes him an outsider. Most gluten food has a gluten-free substitue that you could find. How much input does he have into what he eats? Would having him help you set the menu and him telling you what he wants... -
ARCHIVED Celiac Vaccine Tests In Australia
kbtoyssni replied to ENF's topic in Publications & Publicity
Interesting article - thanks! I don't think I'd want to do it if it were available, though. I think I have a much different outlook on this than most people, but celiac is such a big part of me that taking it away would seem almost like a loss of identity. I don't have too much trouble with the diet and not eating gluten is just what I do. It could also... -
I guess I was more refering to him maybe having symptoms that he doesn't realize are symptoms until he goes gluten-free and they disappear. I had no idea my constant itchy, watery eyes and depression were gluten related until I woke up one morning several months after going gluten-free and realized they were gone. Mild symptoms are usually just minor annoyances...
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ARCHIVED Son's Last Day Of High School
kbtoyssni replied to Teacher1958's topic in Introduce Yourself / Share Stuff
I'm the 25-year-old child who's moved out, but I can share some things my mother has said. Around the time when I was recovering from celiac and getting ready to move several hours away for a job, one of her friends had a daughter who wanted to move across the country. The friend complained about this a lot and wanted her daughter to stay close to home... -
The other tricky thing about being "asympomatic" is that you often don't realize you have symptoms until you go gluten free. A lot of them slowly sneak up on you so you don't even know that's not normal. I'd get a new doctor. Even if you do stay with this one and somehow get your son tested and he's got it, this doctor sounds like he's going to be...
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I love Perkins. It's definitely on my safe list. I always order the omelette with onion, mushroom and swiss cheese, hash browns and substitute fruit for the toast. I have no idea how the meat is. They always seem very willing to accommodate me and used to suggest the fruit substitute as soon as I mentioned a wheat allergy. I bet they'd cook meat for...
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ARCHIVED Knees Popping In And Out
kbtoyssni replied to confused's topic in Coping with Celiac Disease
I'd take him to a proper knee doctor, too. For years I had popping behind my knee which could have felt like a knee popping out and it was cause by my kneecap not sitting level. If he hasn't had an injury that would cause this, I'm going to guess it's an alignment issue. PT can often correct the muscle imbalances that cause misalignments. If there are... -
I don't see why a celiac on a gluten free diet would react to any medication differently than a "normal" person. If you get glutened or are pre-diagnosis that's a different story, but once you're healed I don't see why there would be a difference.
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ARCHIVED Tricks To Get Me To Take My Vitamins?
kbtoyssni replied to a topic in Coping with Celiac Disease
I take them in the morning when I'm making my lunch. What is your job? I'm an engineer and we use an the outlook email/calendar so you could do a reoccuring appointment everyday to remind yourself to take them. Or could you set an alarm to go off? Maybe a cell phone alarm? Or if you pack a lunch everyday, put them in there so you take them when you eat...