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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    If celiac is the worst thing you've passed on to your kids, they're doing pretty well! And celiac is not a death sentence. It can be inconvenient, but they will be able to lead a "normal" life and do whatever they want even with the celiac. I don't have kids, so I can't quite understand the guilt, but it's not like you did something wrong. There's no...
  2. kbtoyssni
    Gosh, I can't even tell if my crabbiness if gluten or stress or just a bad day either, and I imagine it's much harder to figure out someone else's crabbiness. Even my stomach acts up sometimes and I have no idea if it's gluten or stress. It's relativly easy to bake cakes. There is a large start-up cost (xantham gum which is around $15 for a tiny package...
  3. kbtoyssni
    Although this may be ackward for you to explain, you can always bring your own food to the restaurant. Or maybe you could suggest an alternate event like happy hour or bowling.
  4. kbtoyssni
    I read in a magazine once that if you purposely try to blush, you won't be able to. I've never tested it since I start blushing before I realize, but you could try it.
  5. kbtoyssni
    Just touching gluten is usually not a problem. (NOTE: There are some people, especially those with DH, that do react to touching gluten.) The bigger problem here is that if he touches gluten, then touches the fridge door, then comes back later to get something to eat from the fridge, his food can easily get contaminated. Crumbs are everywhere and it's...
  6. kbtoyssni
    I've been glutened several times at my parents' house which is frustrating since my mum's also gluten-free and the house is 99% gluten-free. Maybe you could cook up some food and put it in single serving sizes before you go. I'd try to minimize the amount of cooking you do there. Try eating things like hard boiled eggs and bananas since there's less chance...
  7. kbtoyssni
    *Being able to live on my own *Being able to have a job *Being able to handle 40+ hours a week at said job *Working out again - no more joint pain! *Being thankful for every day - when you're too sick to get out of bed for six months the simple act of getting out of bed is exciting. *Makes me a more creative cook *No more falling asleep at parties
  8. kbtoyssni
    Why do you have to use the faculty bathroom? Can't you use the same one the kids do?
  9. kbtoyssni
    I agree with everyone - CC really is a big issue. In my opinion, it's the hardest part of the diet. Avoiding foods that don't have gluten isn't too bad - it's making sure they didn't come in contact with other gluten foods that's more tricky and something I don't feel I always have control of (restaurants for example). I think you do need to get gluten...
  10. kbtoyssni
    The thing I've found with this disease it that it slowly creeps up on you and takes away your life. For me it was such a slow process that I didn't realize what I was losing until I was completely unable to function. You should start cooking. I find cooking to be more of a personal challenge now. I'm always trying to tweak recipes to make things taste...
  11. kbtoyssni
    I don't think it's asking too much. If your son needs the same box as everyone else to feel included, I would definitely ask for one.
  12. kbtoyssni
    I'd be inclined to take him off gluten and dairy for at least a few months. Five days is hardly any time to notice a difference. And no one NEEDS gluten to survive so you won't be doing him any harm if you don't feed him gluten.
  13. kbtoyssni
    For road trips I bring: -A loaf of bread -Peanut butter -lettuce -Slices of cheese and/or meat -Those mini-mustard packets you get at fast food places -Potatoes for baking (plus you can put the cheese on them) -Thai kitchen imitation ramen-noodle packages -Individual string cheeses -Apples -Cereal plus milk -Some candy (Fun sized M&Ms, almond...
  14. kbtoyssni
    I also agree that a doctor won't be able to help you much. The best he/she could do is give you some meds (which cost money) and which are only going to mask your symptoms and possibly cause other side effects. Rice, potatoes, frozen veggies and chicken are things that "normal" people buy that are cheap. Yes, you're not going to be able to buy gluten...
  15. kbtoyssni
    Have you ever tried bringing your own food to the restaurant? I do this all the time and have never had a problem. If they did hassle me, I'd tell them that if they don't let me eat my own food, I was taking all my friends and moving to a different restaurant. Sometimes I even ask them to heat up my food for me. I'll hand them a grilled cheese in a toaster...
  16. kbtoyssni
    Good for you standing up to the doctor. It sounds like you've already more than convinced yourself that he's got celiac. I also didn't do the biopsy because by the time I'd done an elimination diet and figured it out I just wanted to get on with getting better.
  17. kbtoyssni
    Oooh, good idea. I'm doing that as soon as I get home. I bet a medical worker would look for a license or other ID if I were not able to talk. They'd want to know who you are, but treatment would be Number 1 so it's possible they might give you some drugs before looking for an ID. I figure that one glutening isn't going to kill me (not like an anaphlactic...
  18. kbtoyssni
    I called Bob's Red Mill one day and if the flour says gluten-free on the label then it is made in an entirely gluten-free facility. Their soy flour is made in the same facility as gluten flour so that's why it doesn't have the gluten-free label. So I'm not sure how CC could happen there, but I guess anything is possible.
  19. kbtoyssni
    I know St Johns Wort can interfere with the effectiveness of birth control pills and maybe other meds, too. You might want run this by a doc before you start taking it if she is on any other meds. Omega-3 can be a good supplement to help with depression, too.
  20. kbtoyssni
    I agree with everyone in that you should bring all her food. Or only allow the hospital to give her food that can't be contaminated: hard boiled eggs still in the shell, bananas, oranges, etc. And you sound like the best finance ever! Alex is very lucky to have you.
  21. kbtoyssni
    Ironically, I eat out more now. But I'm also well enough to go out and socialize, and I am not going to let celiac get in the way of my social life. But for a lot of lunches out during the week I just bring my food while my friends order restaurant stuff.
  22. kbtoyssni
    I use a similar flour mix to what Guhlia recommended. I also make all my old recipes with this mix plus 1/2 or 1 tsp of xantham gum and about the same amount of egg replacer. Everything turns out fine this way. I love mixing my flour because each one has its strengths and weaknesses. Sometimes I'll use 1/2 soy flour in place of some of the flour mix,...
  23. kbtoyssni
    I also do all my gluten-free shopping at the FNF in Shoreview. I wonder if I've seen you there and didn't even know it!
  24. kbtoyssni
    I am also concerned that something else is going on - either CC or another medical issue. Because once you go gluten-free, you should be able to lead a normal life. And eight years is too long to have not made a complete recovery.
  25. kbtoyssni
    I don't have any studies to back this up, but I wouldn't think there's anything you can do to lessen the risk of your child having celiac. It's genetic - if he/she gets the gene he/she will be predisposed to getting it. The one thing I like about celiac as opposed to other diseases is that it's treatable and certainly not a death sentence. If your child...
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