- 
                
Posts
1,516 - 
                
Joined
 - 
                
Last visited
 
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
- 
	
	
				ARCHIVED I Need Help From Fellow Celiacs
kbtoyssni replied to ilovechocolate's topic in Coping with Celiac Disease
You might also consider things like chemical sensitivity or electrical sensitivity. Or maybe mold in your house. - 
	I buy Kraft mac and cheese, take out the cheese packet, give the noodles to a friend and use the cheese with gluten-free noodles. There's something about boxed mac and cheese...
 - 
	Yep, I throw up, too. It never occured to me it wasn't normal to throw up several times a week until I went gluten-free and it stopped!
 - 
	
	
				ARCHIVED Need Answers For My 3 Year Old Daughter
kbtoyssni replied to ce-wyant's topic in Parents, Friends and Loved Ones of Celiacs
I'm not sure what blood tests were done, but I am under the impression that there are no false positives (plenty of false negatives, though!) You may want to post exactly what blood tests were run - there are plenty of people around here who are experts at reading those blood test numbers. At this point, I think you can safely say that she has celiac... - 
	Let's see, I'm going to try to reply to all of this. Haven't checked this thread in a while NorthernElf - yes, I am strictly gluten-free. Joint pain from glutening also feels different than this pain. I don't get tingling ever. sunshinen - I think I'm pretty ergonomically correct after years of PT for different joints. I do stretch a lot (it...
 - 
	
	
				ARCHIVED Feeling Weak, I Can't Take This Anymore
kbtoyssni replied to PeaceAngel22's topic in Coping with Celiac Disease
What about something like chemical sensitivity, mold sensitivity or electrical sensitivity? When I get glutened, the smell of chemicals or anything strong makes me feel very sick. I've switched to natural-type cleaners. I've also switched my dimmer switches to regular ones and moved as many electronics out of my bedroom. I haven't notice a big difference... - 
	
	
				ARCHIVED Help Me With My Back Ache!
kbtoyssni replied to chatycady's topic in Coping with Celiac Disease
A week isn't very long. Healing often takes time. Probably not what you want to hear, but give the diet a few more weeks to work its magic. It stinks to have to wait a few more weeks now that you *finally* have an answer, but things will get better. - 
	It sounds like you will be taking the GED class through the local college, but you might also check if the library has any prep-books. I love the library - free books!
 - 
	
	
				ARCHIVED Bread And Corn Tortillas Worth Buying
kbtoyssni replied to mominbaltimore's topic in Parents, Friends and Loved Ones of Celiacs
I like Food for Life Red Rice and Black Rice bread. It's usually found in the freezer section. Mainstream grocery stores carry it, too, but they usually only have the brown rice bread which I think tastes icky. I buy the mexican-style corn tortillas. You can get 3-dozen for a buck or two. - 
	I don't think you would have gotten glutened from having a gluten-pizza in the same oven as your gluten-free pizza. It's more likely that you accidentally touched the gluten and then the gluten-free or that crumbs from the gluten got on yours or something like that.
 - 
	
	
				ARCHIVED Wife Of Celiac - Just Found Out Today Hubby Has It.
kbtoyssni replied to QanQan's topic in Parents, Friends and Loved Ones of Celiacs
Welcome! My husband is taking it very well - as he was a major carb freak before he found out he had Celiacs. However, we are both thrilled that we now know the reason behind his rapid weight loss - he was literally wasting away. -I used to be a carb freak pre-diagnosis. I craved carbs. Gluten is addictive when you have celiac, though, it's lik having... - 
	
	
				ARCHIVED What's Easier... The Whole Family Or One Person
kbtoyssni replied to mommalov's topic in Parents, Friends and Loved Ones of Celiacs
When I lived at home everything was 99% gluten-free. Dad and brother still eat wheat crackers and cookies, but all meals were gluten-free. I get really paranoid about CC because it's too easy to mess up (especially when my brother first came home from college after mum and I were dxed - I just about had a heart attack). But I think it was almost harder... - 
	This may be asking the obvious, but have you checked that they are gluten-free? I take acidopholis, and when I moved to a different state I bought a different brand and completely forgot to check their gluten-free status. And then I got sick... I'm currently auctioning off an almost-new bottle of gluten acidopholis to the highest bidder!
 - 
	In my experience, younger doctors are more open to alternative medical techniques and suggestions from their patients. If you've got an old doctor who is rooted in his/her ways, it might be time to look for a new one. I don't know anything about this drug, but if you've got an open-minded doc, he/she might also be able to suggest something better for you...
 - 
	Tacos are another good, gluten-free meal that everyone can tailor to their own tastes. That what one of my friends did for her bridal shower.
 - 
	
	
				ARCHIVED Medical Misstatements
kbtoyssni replied to Mtndog's topic in Introduce Yourself / Share Stuff
Funny! Here's one from my younger brother's allergy report. "He is allergic to weeds, pollen, mold, cat, GOD, ...." We had a good laugh over that one. It was pretty accurate since he was allergic to all but two of the things he was tested for! - 
	
	
				ARCHIVED What Is Your Favorite gluten-free Recipe?
kbtoyssni replied to cgilsing's topic in Gluten-Free Recipes & Cooking Tips
My favorite recipe is bean salsa. I use it for tacos in place of meat or sometimes as a dip with tortilla chips. Bean Salsa Marinade - 
	
	
				ARCHIVED I'm New To Everything!
kbtoyssni replied to unaspenser's topic in Parents, Friends and Loved Ones of Celiacs
You should check out The Gluten Free Gourmet cookbook. It's the best cookbook I've found. I've never made a bread, cake or cookie that isn't yummy from it. - 
	
	
				ARCHIVED Am I A Kook?
kbtoyssni replied to JerryK's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
One egg shy of a carton, but I blame the gluten! And probably at least temporarily lactose intolerant. - 
	
	
				ARCHIVED How Do You Deal With Friends?
kbtoyssni replied to a topic in Introduce Yourself / Share Stuff
I'm 25, but we all have to deal with food and other people, so here are my thoughts. A lot of people don't know how to deal with a celiac. If someone brings in cookies they offer them to everyone and want to treat you the same so they offer you one, too. They think they'll hurt your feelings if they don't offer you one. You might want to just tell... - 
	
	
				ARCHIVED Doing Great!
kbtoyssni replied to Kelgs's topic in Parents, Friends and Loved Ones of Celiacs
Awesome! Congrats! Having three other celiacs in your home school group will probably makes things a lot easier. - 
	I checked the soap ingredients at my work, too! I've never seen an industrial soap that has gluten. Not to say they don't exist, but I think it's rare. It's all the specialty soaps that have "all natural wheat and oat ingredients to soothe and moisturize your hands." I don't worry about using soap in public places. If you're soy intolerant, then I think...
 - 
	
	
				ARCHIVED Cottage Cheese?
kbtoyssni replied to GeoffCJ's topic in Gluten-Free Foods, Products, Shopping & Medications
I've never seen a cottage cheese that wasn't gluten-free so the odds are that yours is, too. As always, you have to call and check, but it's probably going to be ok. - 
	Congrats! 15 years is amazing. And those newspaper articles brought tears to my eyes.