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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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	You did the right thing. Maybe he'll think twice next time he's about to contaminate your dinner. I was in a similar situation when my grandad made cheesy cauliflower, but he made it with blue cheese (I only discovered this after it was made). At the time I wasn't sure if blue cheese was ok so I didn't eat it. The worst part was that he tried to make...
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				ARCHIVED Help With What To Eat For Lunches
kbtoyssni replied to runnerjen's topic in Coping with Celiac Disease
You could get some of these toaster bags: Open Original Shared Link .com/The-Pampered-Chef-21...p;s=home-garden They work great if you want to use a contaminated toaster to toast something. - 
	Awww, he sounds like a keeper!
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	Oh, man, that really stinks. Sorry you get sick every time you go home. I'm not sure how far it is for you, but could you just visit for a day and bring your own food? Or stay in a hotel and make your own food there? Or invite your parents to visit you in your gluten-free kitchen instead? If it makes you feel any better, I manage to get sick every time...
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	There is a company in Canada that makes gluten-contamination free oats. If you do decide to try oats hoping that you're one of the 90% who won't react, you might be able to find them at a gluten-free/health food-type store. That's where I found mine (and I live in the USA).
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				ARCHIVED Help With What To Eat For Lunches
kbtoyssni replied to runnerjen's topic in Coping with Celiac Disease
There was a thread in the kids section about what to take for school lunches that had tons of good ideas: Open Original Shared Link Having access to a microwave makes things much easier. What types of things did you used to bring for lunch (or used to buy for lunch)? Maybe we can give you some suggestions for modifying your old lunches to make them gluten... - 
	
	
				ARCHIVED Shool Lunches?
kbtoyssni replied to TygerCubs's topic in Parents, Friends and Loved Ones of Celiacs
Oh, I used to love hot dogs for lunch when I was a kid! We only got them as a special treat! Not sure how old your daughter is or if she has access to a microwave, but here's some things I take for lunch: -baked potato (nuke it at work) with cheese and salsa on top -rice with cheese and salsa -string cheese - fun for kids! -pickles -chips and... - 
	
	
				ARCHIVED The Christmas/ New Year Period
kbtoyssni replied to Saz's topic in Coping with Celiac Disease
My symptoms have definitely lessened. I still get most of the old symptoms, but they're tolerable now, and I can still get on with my life. Stress definitely makes my symptoms worse. But I've found that I am so much less stressed out now that I'm gluten-free. In fact, I rarely feel stressed out now. Try not to push your luck with gluten, though.... - 
	
	
				ARCHIVED Daughter Os A Celiac
kbtoyssni replied to KariBeri84's topic in Parents, Friends and Loved Ones of Celiacs
Welcome! I'm sure your dad will really appreciate you learning about the disease. And don't worry about calling him all the time asking about ingredients. He's the expert since he lives it everyday. I love when my friends call and ask about ingredients because I know it means they care enough to get it right. My favorite book about celiac disease is... - 
	
	
				ARCHIVED How Do People Cope With The Frustration Of Celiac Disease?
kbtoyssni replied to dagreen's topic in Coping with Celiac Disease
Welcome! I'm 24, diagnosed 16 months ago. The social aspect can be frustrating, but by now I'm so programmed to always bring food with me everywhere I don't feel like I'm missing out. I ask lots of questions so I can bring similar foods. For example, the two foods I really do miss are pizza and beer so if I know I'm going over to a friend's and we're... - 
	
	
				ARCHIVED The Christmas/ New Year Period
kbtoyssni replied to Saz's topic in Coping with Celiac Disease
I think I did because I certainly don't feel well. Went to visit my parents and my mum's gluten-free, too. My dad and brother still eat gluten on occasion, but the house is for the most part gluten-free. But somehow I manage to feel sick every time I visit... - 
	Congrats!
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				ARCHIVED Do I Tell Family Or Not?
kbtoyssni replied to Electra's topic in Parents, Friends and Loved Ones of Celiacs
It sounds like you'll need to give her some medical "proof" to show that you're not just being an overprotective mother. How about a copy of Dangerous Grains for Christmas I can't remember if you had positive bloodwork or scope for your daughter, but if so, you could bring that. I would also bring a bunch of food she can eat. Then you can tell grandma... - 
	
	
				ARCHIVED Hydrolized Corn Gluten?
kbtoyssni replied to vampella's topic in Gluten-Free Foods, Products, Shopping & Medications
Corn gluten simply refers to the protein in corn which is not harmful to celiacs. The term gluten alone technically means the protein found in wheat. The proteins in barely, rye and oats are slightly different than the protein in wheat, but still cause intestinal damage to celiacs which is why anyone on this site will use the term gluten to refer to the... - 
	
	
				ARCHIVED I'm Struggling.........
kbtoyssni replied to Mountaineer Josh's topic in Coping with Celiac Disease
After being gluten-free for 15 months, I no longer view eating out as a "I'm hungry, let's eat" thing. It's more of a social event for me, and there just happens to be food there. Which is why I don't mind at all that I bring my own food to restaurants. I go out to lunch with work friends every week or two, and I nearly always bring my food. It's about... - 
	
	
				ARCHIVED What Does It Mean When You Smell A Sauce
kbtoyssni replied to babygirl1234's topic in Coping with Celiac Disease
I smell random things all the time when other people can't. Today I was driving to the store and I would have sworn my car smelled like syrup, which is pretty much impossible. I'm also very sensitive to chemicals. There are days at work when I smell chemicals near my desk, and I spend most of the day trying to avoid sitting at my desk because it's making... - 
	Colgate and Aquafresh toothpaste are gluten-free. Sensodyne is NOT. All pepsi and coke products are gluten-free. Kidney beans are ok (as long as they don't add weird flavours and such). Most oatmeal is contaminated and therefore not gluten-free. You can get gluten-free oats, but they're really expensive (like $10 for 5 cups or so). Plus there's...
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	It takes a while to get the mindset of not eating anything you haven't done a full inspection on first. When I was first diagnosed I was really worried that I'd accidently pick something up off the counter and eat it and it would contain gluten. Because I used to eat random stuff all the time. Now I don't put anything in my mouth unless I've done the full...
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				ARCHIVED Help! Heading To A Funeral In Southern Ontario
kbtoyssni replied to 2wheels4eyes's topic in Coping with Celiac Disease
I always bring a loaf of gluten-free bread, slices of cheese, lettuce, sometimes sandwich meat, those mini-packets of mustard you get at fast food places. You can make a pretty mean sandwich. I also bring toaster bags so I can make toast or have a restaurant toast my sandwich for me. Open Original Shared Link .com/Toaster-Bags-Set-of-...;s=gourmet-food... - 
	
	
				ARCHIVED Need To Vent
kbtoyssni replied to WalksonWater's topic in Parents, Friends and Loved Ones of Celiacs
Most potato chips are fine. I don't usually call the companies on this one. I just read the ingredients and go by that. I know Tostitos brand corn chips are gluten-free as well as most other brands. Not sure on Snyders. The diet can be expensive if you buy a lot of the gluten-free substitutes - bread, cookies, pizza, etc. But there are ways to get... - 
	
	
				ARCHIVED Crippling Exhaustion/oversleeping
kbtoyssni replied to Kyalesyin's topic in Related Issues & Disorders
I definitely had this problem before I was diagnosed. I was actually diagnosed with chronic fatigue at one point because I just couldn't get enough sleep. I could never figure out how people managed to work 40 hour weeks - I'd be too exhausted to think by 2pm. I've now been gluten-free for 15 months and the fatigue is gone. When I get glutened it returns... - 
	Aw, that's really sweet of him to be so concerned about you. I think the pot will be fine for you to use.
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				ARCHIVED Help, 1 Year Glute Free And Worse
kbtoyssni replied to abbypanda's topic in Coping with Celiac Disease
Sounds like you're doing a pretty good job of being gluten-free. I picked out the three statements that made me wonder. I'm not familiar with tropical smoothie - is it a restaurant-type place? If so, if they make other smoothies with gluten ingredients and don't clean the blender they could be contaminating yours. Some people are sensitive to the... - 
	
	
				ARCHIVED Wow......
kbtoyssni replied to Jellieh's topic in Parents, Friends and Loved Ones of Celiacs
Welcome! - 
	
	
				ARCHIVED Help, 1 Year Glute Free And Worse
kbtoyssni replied to abbypanda's topic in Coping with Celiac Disease
Yes, there is still hope. It sounds like you've got some gluten sneaking in somewhere... It's going to take some detective work to find. Or you could have other intolerances. My peanut intolerance sure makes me feel like I've been glutened. I'm interested in your answers to broncobux's questions. I also wonder - do you live alone? Could other people...