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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    I take acidopolis for my stomach. It does seem to help. For depression I've taken St John's Wort (you may want to consult with a doctor on this one, though, it will interfere with some medications like birth control pills) and Omega-3. I think they helped some, at least as much as they could help gluten-induced depression before I went gluten-free. ...
  2. kbtoyssni
    Very thourough explaination - thank you! I agree that celiac is not just a GI disease. The majority of my symptoms weren't GI-related. Sure I had some stomach pain, but that was nothing compared to the fatigue, joint pain, brain fog and depression.
  3. kbtoyssni
    Could you take a picture of it and email it to your doctor? My doctors are very good at returning my phone calls when I just have a quick question so maybe yours will be, too? Even if your doctor doesn't think it's a tick bite, you could still request that you get tested for Lyme Disease. It would probably make you feel better if you had the test done...
  4. kbtoyssni
    Corn gluten is ok. Gluten is used to refer to the protien in a grain so you've got wheat gluten, corn gluten, rye gluten, etc. Only the gluten in WBRO is harmful to celiacs, although I agree that it's a bit unsettling when someone refers to corn gluten
  5. kbtoyssni
    Welcome! Things will be tough for a while, but it gets easier. Now I eat everything I used to eat pre-gluten-free, I just have to watch the brands I buy and make some substitutions for things like bread and pasta. It is a lot of work in the beginning to figure out the safe brands, but in a few months you'll be a pro. I don't spend any extra time grocery...
  6. kbtoyssni
    I found the site by googling celiac.
  7. kbtoyssni
    My worst symptoms from gluten were psychological, too. I've been gluten free for over a year now and it doesn't bother me that I wasted 10 years feeling sick, but it does bother me that I waste 10 years feeling depressed. When I get glutened now there's nothing I can do about it. I just have to wait it out. So I make sure that I read every label before...
  8. kbtoyssni
    Congrats!!!
  9. kbtoyssni
    Welcome! Vlasic pickles are gluten-free (and so are Milwaukee's because they're owned by Vlasic). Most pickles are gluten-free, you just have to call the company and confirm.
  10. kbtoyssni
    It's really hard to do something that people don't expect of you. You know it would be best for your health to take some time off of school, but it's not the norm so you're trying to stick it out. I was in grad school when I got really sick from celiac. The brain fog and fatigue made it impossible to get to class or think to study. I dropped out and it...
  11. kbtoyssni
    Welcome! We need more people like you in medical community!
  12. kbtoyssni
    I also replaced all my gluten-free chapsticks and lipsticks that I used before I was diagnosed. I worried that I'd eaten, put on chapstick and gotten crumbs in it. My theory is that I'm better to be safe. It's hardly any extra effort to buy gluten-free personal care products, and if it prevents me from getting sick just once, it's worth it! Not to mention...
  13. kbtoyssni
    I feel like I'm the queen of bringing my own food to restaurants. Most of the time people go out to eat to socialize. Going to a restaurant isn't about the food to me anymore, it's about the people and hanging out. Sometimes people try to accomodate my dietary restrictions and I really appreciate it, but some days I'm just not in the mood to deal with...
  14. kbtoyssni
    If it were me, I'd make the meal completely gluten-free. I don't cook with gluten so if people want to eat what I make then they eat gluten-free. No one ever seems to mind and everything I make looks pretty much "normal" to them. They'd never know it was gluten-free if they didn't know I had celiac. You can still make stuffing. Last year was my first...
  15. kbtoyssni
    Cutting back is a good start, but you really need to work towards being 100% gluten-free. It is a lot of work in the beginning, but eventually it becomes second nature. Are there certain foods that are really hard for you to give up? Maybe we can help you figure out gluten-free substitiutes for them.
  16. kbtoyssni
    The ones I saw were at the Fresh and Natural Food store where I get all my specialty gluten-free products. I have no idea what brand they were, but they came in a green package. I bet you could find them in an organic/natural type store.
  17. kbtoyssni
    Before I went gluten-free, pizza was the only thing that noticably made me sick. I diagnosed myself through an eliminated diet. When I added gluten back in pizza still made me sick, but wheat bread never did. I wonder if it might be the combination of the wheat, lactose and acidic tomatoes in the pizza.
  18. kbtoyssni

    ARCHIVED Big Rant!

    kbtoyssni replied to a topic in Coping with Celiac Disease

    Is there a local farmers market (or even just a farmer) that you could get your chicken from? They might have organic options and it's usually cheaper than the supermarket.
  19. kbtoyssni
    You could also get some of these toaster bags: Open Original Shared Link .com/Toaster-Bags-Set-of-...;s=gourmet-food They're great if you want to make toast in a hotel toaster. Or if you want to make a grilled cheese sandwich. I've taken them to restaurants before and handed them a cheese sandwich in a bag. I ask them to toast it or put it in a toaster...
  20. kbtoyssni
    That is tough that you don't know where you're staying. Did you contact your airline for gluten-free food? I've flown American Airlines once since being gluten-free and they have gluten-free food. I still read the labels, though, because they did try serving me crackers with oat in them for one of the meals. Luckily they were individually wrapped so it...
  21. kbtoyssni
    I agree that your insurance should pay for this. But if they won't pay, you do have the option of not getting a biopsy. Your signature says that you have positive blood work and dietary response so a scope wouldn't confirm anything.
  22. kbtoyssni
    England is much more celiac-friendly than the US! You will be able to find gluten-free bread and pasta and cookies in a regular grocery store. Food there actually has gluten-free labeling. And I find that gluten-free food in the UK tastes much better. Everything I buy tastes fine. The first time I went back to England after going gluten-free I was super...
  23. kbtoyssni
    My celiac disease was triggered by the flu. I figure it was immune system overload and I never got better. There often is a trigger for the disease and it sounds like your laproscopy could have been it. The problem with conventional testing is that it won't come back positive it you are already gluten-free. So going to a GI again may or may not be beneficial...
  24. kbtoyssni
    Awww, that is really sweet. I have some amazing coworkers myself and I feel so special when they think of me and my food. Them telling me about seeing something gluten-free at the store means more to me than just taking an interest in my life. Probably because food is such a huge part of what I think about everyday and you know no one else thinks about...
  25. kbtoyssni
    The two weddings I've been to recently were both good friends who knew about my celiac and they talked to the chef beforehand about my meal. I offered to call and talk to the chef myself, but they did it themself. If it's not too ackward to ask, you could find out who the chef is and give him a call. Otherwise I'd bring a plate with food and I'm sure the...
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