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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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ARCHIVED Colason
kbtoyssni replied to Kody's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Do you mean colostrum? It's been a while since I researched it, but from what I remember mammals produce something that's very concentrated in their milk right after giving birth. I think it's supposed to help the immune system of the newborn. Most of the stuff on the market is from cows. From what I've read, it seems like it can be miracle cure for a... -
ARCHIVED Peanut Butter Contamination
kbtoyssni replied to kbtoyssni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I should try some of that peabutter. I did find sunflower seed butter at my local Cub Foods and that's pretty good. It's got the same consistency as PB, just has a slightly more sunflower seedy taste. Which you barely notice if you're putting it in a sandwich. Carla - do you have any more information on the mold-free PB? Is there any way to tell... -
ARCHIVED Can You Guys Believe....fish Food?
kbtoyssni replied to chgomom's topic in Coping with Celiac Disease
My fish food is the only thing in my house that contains gluten, and I hate that I have to have it. I always wash my hands after feeding the fish. For a while I tried to tap the container to get food out without having to touch it, but I'd always end up dumping way too much in. Maybe a small tweezers would help. The part that worries me is that I always... -
ARCHIVED Peanut Butter Contamination
kbtoyssni replied to kbtoyssni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
RiceGuy - I have tried all natual PB as well as brands like Skippy and both make me sick. Still, I'm not sure being all natual guarantees anything about whether the peanuts were shelled in a facility with wheat. VydorScope - I knew someone was going to ask about possible contamination in my own home! No, it's not possible, I live alone, and I only allow... -
ARCHIVED Peanut Butter Contamination
kbtoyssni posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
About three months ago I realized that peanut butter always made me sick, so I assumed I had a peanut intolerance and stopped eating them. Well, my mother has been trying to find gluten-free peanuts and nearly every package she finds is made in the same facility as wheat products. She was thinking that it's possible that the peanut butter I eat is contaminated... -
ARCHIVED Hi Guys, Newly Diagnosed And A Few Questions
kbtoyssni replied to Kody's topic in Coping with Celiac Disease
Welcome! Initially you'll spend a ton of time researching ingredients, but it gets much quicker eventually. Now I don't spend any more time grocery shopping than I did pre-gluten-free. My symptoms started about ten years ago, mild at first and getting worse so gradually that I hardly noticed. I got really bad about a year before diagnosis and I had... -
ARCHIVED Should Kids Give Up Gluten Cold Turkey?
kbtoyssni replied to prinsessa's topic in Parents, Friends and Loved Ones of Celiacs
Cold Turkey!!! I gave away all my gluten-food to the food pantry and the opened stuff to friends. Although I did feel a bit guilty giving them all my gluten-poison food -
ARCHIVED Thought The Scd Was Going To Cure Me
kbtoyssni replied to Mia H's topic in Coping with Celiac Disease
Congrats on the pregnancy! I've actually heard that it's not uncommon to lose weight during the first trimester (someone who's been pregnant before can probably confirm this better than I can You've only been gluten-free for four months which isn't that long. I didn't get over my chronic fatigue until about nine months in. First your body has to heal... -
ARCHIVED Confused
kbtoyssni replied to clockworkjoce's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think you've already done enough testing to prove you have celiac disease. As Carla mentioned, once you go gluten-free and your body starts healing, any blood tests or biopsies you get won't be positive. You have to be eating gluten to have antibodies and/or intestinal damage. I diagnosed myself from a positive dietary response. I did get a blood... -
ARCHIVED Could I Have Celiace Dsease?
kbtoyssni replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your symptoms could be from a combination of irratants. Before I went gluten-free, pizza always made me sick, but bread never did. I now think that I got sick from pizza due to the combination of wheat with cheese and tomato. I do not have a problem with cheese now that I'm gluten-free. Not sure if this helps - the pizza thing just reminded me of me.... -
ARCHIVED Are There Health Benefits From Going Gluten Free?
kbtoyssni replied to celiac-in-WV's topic in Parents, Friends and Loved Ones of Celiacs
Going gluten-free in itself won't make you healthier, but the increased awareness of knowing exactly what's in everything you're eating probably will make you eat healthier. There aren't any negatives to going gluten-free, though (unless of course you change to the Snickers-only diet), so I'd do it. I don't know if it's possible to express how appreciative... -
ARCHIVED Im Still Sick And Very Scared..
kbtoyssni replied to amethystium-sky's topic in Coping with Celiac Disease
I'm sorry you're still not doing well. I don't have a whole lot to add that other people haven't already talked about, but I figured I'd post anyway. I was also vegetarian before I was diagnosed. I was feeling better but not 100% after a few months gluten-free, but then I started to lose a lot of weight. Some people on this board said that they feel... -
ARCHIVED New Member New To Celiac Disease!
kbtoyssni replied to rkmonckton11's topic in Coping with Celiac Disease
If you're a fan of cooking, you should try the cookbook "The Gluten Free Gourmet". The stuff in there is really good, especially the cakes/cookies Maybe you could tell us some of the stuff you like to eat, and we can tell you how to make it gluten-free. I always say that I eat everything I used to, I just have to watch the brands I eat and sometimes... -
ARCHIVED Took Kass To The Dentist....
kbtoyssni replied to Kassidy's mom's topic in Parents, Friends and Loved Ones of Celiacs
Yikes - I'm glad you were able to catch that one! When I go to the dentist, I have them use plain pumice. It's the toothpaste-cleaning stuff without the flavoring. I think it's something most dentists would have around the office and wouldn't have to order specially. Personally, I like it better than the flavored stuff -
ARCHIVED Grilled Cheese And Tomato Soup
kbtoyssni replied to Corkdarrr's topic in Gluten-Free Foods, Products, Shopping & Medications
I like Food for Life brand bread. My favorites are red rice, black rice and millet. The millet makes a great gilled cheese. -
ARCHIVED Gummy Toys
kbtoyssni replied to kbtoyssni's topic in Gluten-Free Foods, Products, Shopping & Medications
Ok, thanks! -
I'm taking this training course at work, and they gave us these little gummy hearts to play with so we could point out which arteries were where, etc. They're rubbery/sticky, and I remember playing with toys like this as a kid - the kind you'd get in the quarter vending machines and throw at a wall and they'd stick for a while and they slowly roll off. ...
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The depression going away was something that surprised me when I went gluten-free. And how much energy I have now. I knew gluten made me fatigued, but I didn't realize it was that bad!
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ARCHIVED As Time Passes, Why So Many New Intolerances?
kbtoyssni replied to CantEvenEatRice's topic in Food Intolerance & Leaky Gut
Gluten free granola? Oats are usually contaiminated and I've never seen a granola without oats. Is this an oat-free granola that you've found? Anyhow, sorry if you already know about oats, just want to make sure you're not accidently eating gluten -
I think cotton candy should be safe. It is just sugar crystals that are spun into that fun, fluffy shape, and I would think that cotton candy booths might be less prone to contaimination than other booths. A co-worker went to the fair yesterday and brought me the "Gluten Free Menu on a Stick"! It was a very exciting surprise waiting for me when I got to...
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ARCHIVED My Big Fat Negative Biopsy
kbtoyssni replied to jayhawkmom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I thought regular rolaids were gluten-free? The soft-chews aren't gluten-free, but I was certain that regular ones were. Have to do some research this afternoon on this one... As for the negative biopsy, if you think you do have celiac, then you're lucky you don't have that much intestinal damage yet. A negative biopsy only means that you caught it... -
ARCHIVED Any gluten-free/df Birthday Party Menu Suggestions?
kbtoyssni replied to IrishKelly's topic in Gluten-Free Recipes & Cooking Tips
If you're looking for a full dinner, tacos are always fun because everyone can customize. And it's one of those meals that's pretty much naturally gluten-free. I also love pizza. As long as you don't mind making the crust, it's a fun, easy meal to make. If you do something like lasagna you can make it up in advance so all you have to do is pop it in the... -
I'm coming up on my one year September 15, and I agree with everything lpellegr said. Life really is great when you're gluten-free!
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ARCHIVED Can't Trace Symptoms Back To Anything
kbtoyssni replied to Becky A.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I know Colgate toothpaste is ok. Not sure about garnier fructise shampoo. -
ARCHIVED When Will My Anxiety Ease?
kbtoyssni replied to myserenityprayer's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The first few weeks will be overwhelming. It takes a long time to figure out what brands of food you can eat. I used to spend hours in the grocery store, now it doesn't take me any longer than anyone else. You can probably find most of what you need at Trader Joe's. I've never been there so I don't know what they offer, but I do most of my shopping in...