Jump to content

kbtoyssni

Advanced Members
 View Profile  See their activity

  • Posts

    1,516

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by kbtoyssni

  1. kbtoyssni
    I was 23 when I got diagnosed. I've had mild symptoms for about eight years with things getting really bad about a year before diagnosis.
  2. kbtoyssni
    Looks like I'm the only one whose symptoms have gotten better since going gluten-free
  3. kbtoyssni
    Most people here talk about how the symptoms of glutening get worse the longer they've been gluten-free. Is there anyone whose symptoms of glutening have gotten better after going gluten-free? I'm asking because sometimes I have mild stomach upsets and I'm not sure whether it's gluten or not. This happened yesterday a few hours after I'd eaten out for...
  4. kbtoyssni
    ok, thanks for the info everyone! This is going to be a great camping trip now that I can make mac and cheese
  5. kbtoyssni
    I think remember someone on here mentioning that the cheese powder in mac and cheese is gluten-free. I can't find the thread now, so I was wondering if someone could give me some more details. Is it only specific brands that are gluten-free? Can you buy the powder separately from the noodles, because it seems stupid to buy the whole box when all I want...
  6. kbtoyssni
    Bob's Red Mill has a dedicated gluten-free part of their manufacturing plant. If the package says gluten-free, then it is made in this part of the plant. Most of their flours are gluten-free. Soy flour is not - it is made on a separate line from gluten flours, but they made are in the same building so Bob's will not guarantee it's gluten-free. I have...
  7. kbtoyssni
    I don't have problems with melon, but a friend's mum is allergic to melon, so it's definitely possible. Do you have trouble with cantelope and honeydew melon, too?
  8. kbtoyssni
    By the time your villi are worn away enough to get a positive biopsy, you have already done a lot of damage to your body. If you know you are gluten intolerant, I don't think it's worth it to do that kind of damage to your body just so you can have the official seal-of-approval from your doc. Have you talked to your parents about whether or not it is worth...
  9. kbtoyssni
    Not sure if you've already had your birthday, but here's a list of gluten-free alcohols: https://www.celiac.com/st_prod.html?p_prodi...-00106103227.9d And definitely stay away from beer and whiskey! Happy Birthday!
  10. kbtoyssni
    Celiac is genetic so yes, you'd have to be born with the gene. You don't necessarily develop celiac at birth, though. For some people it takes some type of trauma for the celiac to develop. For me it was the flu, which I suspect overloaded my immune system and caused the celiac to take over. I'd had mild symptoms for years, but it took the flu to turn...
  11. kbtoyssni
    The problem with testing at this point is that since you haven't been eating gluten, blood tests or scopes won't give you a positive diagnosis. You have to be eating about three servings of gluten for three months prior to testing if you hope to get a positive dx. Which you may not want to do. I was in a similar situation. I figured out it was gluten...
  12. kbtoyssni
    Do you have any articles on this? Sounds interesting, and I'd like to read more about it.
  13. kbtoyssni
    I'd mention it. I've been wondering about the connection between celiac and EDs for a while now. I'm curious if a large percentage of people with EDs have celiac (diagnosed or not). I feel like there's some subconcious thing going on that makes you associate eating with being sick, but when does the whole fear of food and eating become a paranoia about...
  14. kbtoyssni
    I LOVE kinnikinnick-brand donuts! They are delicious. I buy mine at the local health food store, so I bet you'd be able to find them. I used to have problems with the caffiene in coffee so I switched to decaf. My stomach would hurt so badly. I haven't tried drinking regular again since I went gluten-free, but maybe I'd be alright now.
  15. kbtoyssni
    It could be gluten-free breads that are bothering your stomach. I remember a thread about that not too long ago; I'll try to find the link. Another possibility is that you have additional food intolerances. Many celiacs are tmeporarily intolerant to dairy because your villi haven't healed enough to digest it. Or it could be a permenant intolerance....
  16. kbtoyssni
    I do think that the only reason to get tested is if you need proof that you have celiac. Some people do need to have the official diagnosis to commit to gluten-free. But what happens if your biopsy comes back negative (which it very well could)? Will you still go gluten-free? I get the feeling that you'd still want to, but how is your husband going to...
  17. kbtoyssni
    I agree with nini. You don't need an official dianosis to go gluten-free. You know you feel better not eating gluten, why should you have to make yourself sick for two months and then re-start the healing process? I don't have an official diagosis, either. Once I figured out gluten was making me so sick, there was no way I wanted to prolong getting well...
  18. kbtoyssni

    ARCHIVED Exercise

    kbtoyssni replied to susiek's topic in Coping with Celiac Disease

    I had severe joint/muscle pain and fatigue prior to going gluten-free. I could barely get up the stairs to my apartment so working out wasn't really an option. I ended up being diagnosed with fibromyalgia (which I now don't think I have) so I was going to physical therapy and working out in the pool. Nothing too major, leg lifts and walking in the water...
  19. kbtoyssni
    Lorka - you said that PB bothered you when you first went gluten-free. Can you tolerate it now or have you not tried it again? I've been gluten-free for 11 months now so I feel like my intestines are pretty well healed and I may never be able to tolerate PB. And I'm 100% sure that my PB isn't contaiminated - I live alone! kabowman - thanks for the heads...
  20. kbtoyssni
    I get annoyed when a company can't give me a straight answer (assuming they're not one of the companies who say that gluten will be on the label) and usually refuse to buy their food. I don't need that kind of hassle and I'd rather give my business to a company who knows what gluten is.
  21. kbtoyssni
    The normal chewable rolaids are gluten-free. The softchews are NOT gluten-free.
  22. kbtoyssni
    Woah - me too!!! I've only had a few cigarettes total in my life and the last time was probably three years ago but the last few months I've been wanting one all the time. I can't figure it out.
  23. kbtoyssni
    Wait a minute - are you saying that asprin contains gluten? I had no idea. Is it just certain brands?
  24. kbtoyssni
    I had some allergy testing done a couple years ago and I wasn't allergic to mold then. I've never had any food allergy testing done, though, so it might be about time to do some of that.
  25. kbtoyssni
    I've been suspecting some additional food intolerances in addition to celiac for a few weeks now, and I'm pretty sure it's peanuts. Peanut butter has always made me sick, usually within an hour of eating it. I eliminated peanut butter for a week and a half and then ate peanuts on Saturday night. Sunday my joints were hurting a bit. Today I feel awful...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.