Jump to content

kbtoyssni

Advanced Members
 View Profile  See their activity

  • Posts

    1,516

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by kbtoyssni

  1. kbtoyssni
    The thing that stood out to me was the cravings for gluten-filled food. If you have celiac, gluten acts as a poison to your body and people will often have "addictions" to it. I read somewhere that gluten is like morphine to celiacs in terms of the addictive properties. I also used to crave gluten foods and noticed after about eight months that the cravings...
  2. kbtoyssni
    I would have been disappointed with a negative result, too. It's not the you WANT to have celiac, but you do want to know what's wrong and get back on track to good health again. A negative result doesn't necessarily mean you don't have it. It just means that if you do have it, you're lucky and don't have much intestinal damage yet. Were you gluten-free...
  3. kbtoyssni
    Welcome! Don't worry too much about the mess ups. It takes a long time to figure this out and I'm sure you'll accidently gluten yourself a lot in the first few months. For my first gluten-free meal I had corn flakes. I was so pleased with myself for reading the labels and finding something without wheat. It wasn't until several days later that I realized...
  4. kbtoyssni
    What you really don't have time for is being sick all the time. Your sons and your kids at school need you - they need you to be at 100% for them because they're relying on you. You're not inconveniencing everyone with your "special" diet. You will inconvenience them if you purposely eat gluten and get sick. You can take the time you usually waste being...
  5. kbtoyssni

    ARCHIVED I Am So Proud...

    kbtoyssni replied to JerryK's topic in Sports and Fitness

    Congrats!
  6. kbtoyssni
    Welcome! A lot of people have an initial few days of feeling great because they've greatly reduced the amount of gluten in their diet, but it's nealy impossible to have found all the sources of gluten in your life in a few days. I'd be willing to bet there's some gluten sneaking in somewhere. Here are some ideas of places gluten could be sneaking in: ...
  7. kbtoyssni
    Yes, you do need to use gluten-free personal care products. Have you ever accidently gotten shampoo in your mouth? When you put lotion on your hands, you will then touch everything in your house including things in your kitchen which makes it easy to accidently ingest some. Do you ever touch your hair or face during the day? This would have the same...
  8. kbtoyssni
    If it's a denial thing, you might want to talk to a therapist. It is a major life change and that might help you deal with it. You might also want to think about the effect this has on your family, friends and coworkers. Is it fair to your family when you're sick all the time and running to the bathroom? Sometimes it's easier to do it for someone else...
  9. kbtoyssni
    Yes, you need to be dilegent about keeping gluten out of your diet! What your doctor should have said was that you only have mild damage so far. Which means you're lucky - you caught it before you got really sick. I'm sure if you keep eating gluten you would keep wearing away more intestine and in a few years you would be very sick and, as your doctor...
  10. kbtoyssni
    I use mainstreet personal care products - you just have to read the labels. I use Colgate toothpaste. I know aquafresh is also gluten-free. Sensodyne is NOT. I use thermasilk shampoo/conditioner. Suave is also gluten-free. Aveeno is NOT and I don't think biolage is, either. I find that the more expensive shampoos are the ones with gluten because they...
  11. kbtoyssni
    We had snow here in Minneapolis today, too! It makes me so excited about the upcoming snowboarding season! Most of my coworkers were all grumpy about the snow, but I love it.
  12. kbtoyssni
    That is too funny! Thanks for posting. As much as I complain about doctors being incompetent today, I should really be thankful for what IS known about this disease now.
  13. kbtoyssni
    I feel like you're feeling this way without knowing why. If you know why, it might help you deal with it. -Would you rather that your in-laws make one meal that just happens to be gluten-free? -Would you rather bring your own meal? Maybe because you're scared of cross-contamination or because you feel guilty that they're going to all that extra effort...
  14. kbtoyssni
    I don't have any suggestions for you, but I hope you find out the root of your problem and start feeling better soon.
  15. kbtoyssni
    Welcome! And congrats on finally getting a diagnosis. Seriously, getting a diagnosis was the best thing that ever happened to me. I noticed you talked about depression. I used to have depression that went away once I went gluten-free. So you may find that you start to feel better the longer you're gluten-free, too. Start out with really simple...
  16. kbtoyssni
    I've been gluten-free for thirteen months. Besides the initial few months where I accidently glutened myself A LOT, I think I've been glutened 2 or 3 times since May. So I guess that's once every two months or so. Which sounds really bad! Yikes, I need to be more careful. One was from a restaurant. Right now I feel like I've been glutened but I'm not...
  17. kbtoyssni
    1. How long have you known you
  18. kbtoyssni
    Have you ever asked the people around you if they notice a difference in you if you eat gluten? You may have symptoms that you don't even realize. If so, it might be easier for you to be gluten-free for other people. I just figured out that peanuts make me sick. I love peanuts and for a while I definitely considered not giving them up. But then I thought...
  19. kbtoyssni
    Would this really happen within a few hours, though? Because that's how long it took me to start feeling sick. I do take acidopholis, so hopefully that will help with any stomach bacteria imbalance.
  20. kbtoyssni
    It's just weird that I'm getting fatigue, joint pain and brain fog, too. And I have taken this pill before for probably a year with no problems. I guess things might be different now that I'm gluten-free, though. I'll give my doctor a call if I don't feel better in a day or two. Today I'm feeling a bit better, but still not 100%.
  21. kbtoyssni

    ARCHIVED Should I Tell My Old Doctors?

    kbtoyssni replied to Adelle's topic in Doctors

    I was planning on doing this as well. Just haven't gotten the time to sit down and do it. I had one GI who should have caught it and if I sent him a letter I feel like it might be received as "you're incompetent". Which is true, but not the message I want to send The other doctors I don't expect to recognize celiac. These are doctors like my ob...
  22. kbtoyssni
    I get joint pain and fatigue when I'm glutened, but I usually workout anyways. I have a lot of "scheduled" athletic activities as my social outlet: gymnastics, golf, rock climbing, etc, and I don't want to stay home and be a hermit just because I got glutened. I still struggle through. And struggle I do. I don't like to let on how badly I feel to other...
  23. kbtoyssni
    I just started taking Apri birth control again on Sunday and ever since I have felt awful. Typical gluten symptoms - stomach pain, fatigue, joint pain, mild brain fog. This is the only thing that has changed in my diet in the last few days. I called the company to ask about gluten. The lady said it's gluten-free (which I agree with based on the ingredient...
  24. kbtoyssni
    Was the deli meat the kind they slice for you? If so, it's possible that it was contaminated. If any of the meats that are sold at the deli contain gluten, the slicer will be contaminated. What kind of meat was it? Chicken and turkey can contain broth to "plump" it up which has gluten.
  25. kbtoyssni
    I have horrible knees, too, and I love the elliptial. Get a great workout without any pounding. I've also recently started rock climbing. Depending on how bad your knees are that might be ok. It's low impact, but you will need to be able to push up from a bent-knee position. I couldn't do it pre-knee surgery, but I can now.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.