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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    Staying on the diet? So you're gluten-free right now? This could be the reason for the negative/inconclusive results. You have to be eating gluten for blood tests and biopsys to be positive.
  2. kbtoyssni
    I eat out all the time. I'm young and my friends are always going out to eat so unless I want to be a hermit, I go to restaurants. My friends are very accomodating, though, and we often pick places that will have food options for me. Sometimes I will bring my own food, though, especially if it's an informal restaurant. I also invite people over for dinner...
  3. kbtoyssni
    It took me a long time to build up my strength after going gluten-free. I was pretty much bedridden for six months. I started off taking five minute walks everyday. I'd walk as far as I could everyday. Sometimes I'd have to sit down and rest halfway. If I tried to push myself too hard, I would get worn out and not be able to do anything the next day...
  4. kbtoyssni
    Cook your meat in foil. There's no way you can guarantee a grill won't be contaminated, especially if you're only using one set of tongs and someone else is watching the grill. Plus some charcoals contain gluten which can contaiminate your food. I always bring my own food "just in case". It's inconsiderate of your stepson not to tell you that there...
  5. kbtoyssni
    He goes to the University of Wisconsin - LaCrosse. It's not too big (maybe 6000 students?), but there are about four celiacs who go there. I have no idea if it's just UW-L that has gluten free food or all UW schools. I went to UW-Madison, but wasn't diagnosed until after I graduated.
  6. kbtoyssni
    I'm glad everyone's already convinced you not to make two separate meals! That was the first thing that jumped out at me about your post. Not only is it draining on you, but it increases the risk of contamination and I think it makes you feel left out or different or something. Gluten free food is normal food, there's no reason why non-celiacs can't eat...
  7. kbtoyssni
    Hey 2wheels4eyes! I live just north of St Paul so if you ever need a real-life celiac buddy, let me know! We can start our own little support group. (Actually, now I'm wondering if you're the person I emailed a few weeks ago about the diet when a friend gave me your name?) Things do get easier. At first you feel completely different because so many...
  8. kbtoyssni
    Welcome! It's possible you do have some symptoms and don't even realize it. There were so many things wrong with me that I didn't know weren't normal until after I went gluten-free. Hopefully after a few months you'll see some positive benefits.
  9. kbtoyssni

    ARCHIVED Dietician

    kbtoyssni replied to a topic in Coping with Celiac Disease

    Rice Crispies have malt in them in the states, too. I'd maybe give the dietician a call before you go and ask if he/she has experience with celiac. I never went to one when I got diagnosed, but I've heard lots of horror stories from people who have. It sounds like there are a lot of dieticians out there who don't know much about the disease. It takes...
  10. kbtoyssni
    I usually refer to celiac disease around new people as dietary restrictions. That way I'm not going into detail, but I'm also not being incorrect by saying it's an allergy or something. If the person is really interested, they'll ask questions and then I get into celiac disease. I'd tell the guy about it and bring some of your own food that you can share...
  11. kbtoyssni
    Most of the time a good washing is fine, but if the pan is scratched at all, gluten can get stuck in the scratches. I do, however, remember how dishwashing worked when I had roommates in college, and there is no way I would trust anything in the kitchen to be gluten-free. Nothing ever got washed throughly!
  12. kbtoyssni
    Have you talked to someone in food service at your school yet? My brother's college is very celiac-friendly. They have a separate fridge in the back filled with gluten-free foods and a microwave that the gluten-free kids can use at any time. Everytime I visit, they're very good about getting me clean pans, showing me ingredients, giving me actual eggs...
  13. kbtoyssni
    It sounds like you're just going through the normal healing process. I did really well the first month on the gluten-free diet, then I got a slight cold and was out of commission for the next month. Give it time.
  14. kbtoyssni
    I was always really confused by this, too. Mobic is an anti-inflammatory so I never understood how it helped my pain. I asked my doctors a few times and they weren't able to give me a good answer. All I know is that mobic works. I had to break down and take some yesterday, and I went from being miserable and barely able to walk and considering leaving...
  15. kbtoyssni
    I do feel a bit itchy after glutening. I never get a rash and luckily the itching isn't too bad for me.
  16. kbtoyssni
    Maybe you should give her a copy of Dangerous Grains to read. It's an easy read and it gets the point across. I'm sure you could get padlocks and the metal bits to attach them to at a hardware store. Good luck! I live alone so luckily I haven't had to deal with the roommate-with-gluten situation.
  17. kbtoyssni
    Does anyone here have MCS (multiple chemical sensitivity) or any chemical sensitivities? I used to be really sensitive to chemicals pre-gluten-free, but once I stopped eating gluten I didn't seem to have any problems. So, I got glutened last Thursday, I still feel like crap today, and yesterday was the day they decided to re-wax the floors at work. It...
  18. kbtoyssni
    hineini - I agree with you that if the fibro symptoms only appear when glutened, you don't have FMS. Now that I'm gluten-free, I don't think I have it, but I figured I'd still reply since I was diagnosed with it. I guess I'm a FMS sucess story - got diagnosed and figured out the root cause of it. For a long time I referred to joint pain from glutening...
  19. kbtoyssni
    My pain also moves around. Sometimes it's my stomach, which usually feels like I've swallowed some razor blades and makes me want to curl up in a ball to stop the pain. Sometimes it's more in my intestines, which feels more like bloating/gas and a dull ache.
  20. kbtoyssni
    St Johns Wort can interfere with birth control pills.
  21. kbtoyssni
    Red Robin and Dino's (a greek fast food place) have gluten-free french fries. I *think* all Ore-Ida fries are gluten-free, except for maybe the seasoned ones. I know there's a list of their gluten-free products on their website, so check that to make sure. French fries were one of my favorite things to eat and I get a bit grumpy when I can't get them at...
  22. kbtoyssni
    I was diagnosed with fibromyalgia before I went gluten-free. Initially it took about two months for my symptoms to lessen to the point where I could function again and probably six months for them to go away entirely. Now that I've been gluten-free for nearly a year, I find that I only get mild joint/bone pain when I get glutened. My symptoms of glutening...
  23. kbtoyssni
    You may be able to bring your own lotion and nail polish, too. I had a hair consultation at an Aveda salon once, and I asked about this because most of their hair products contain gluten. They said I could bring my own shampoo and that a lot of their clients with allergies do. I'm sure it depends on the salon, but I'd imagine most would be accomodating...
  24. kbtoyssni
    I'd bring my own food, too. You need good brain food to do well in school. I always had trouble studying and paying attention if I hadn't eaten well. Just act like yourself. I doubt you'll seem like a nerd. Everyone in your classes is taking them because they're interested in the subject, so it's not like you're going to be any more nerdy than anyone...
  25. kbtoyssni
    I always remember I have celiac, but that's probably because I'm so grateful for my diagnosis. I got my life back when I got diagnosed so it's not something I want to forget. I never want to lose that feeling of being so thankful everyday that I can get out of bed and live my life. I'm reminded of my celiac not only every time I eat, but also everytime...
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