-
Posts
1,516 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
-
ARCHIVED I Want To Scream And Have A Meltdown!
kbtoyssni replied to Turtle's topic in Coping with Celiac Disease
I'm so sorry you have to deal with all this. I always feel that a bride should be considerate of her bridesmaids. Your bridesmaids should be people who mean enough to you to want them in your wedding party no matter what their financial situation. A bride should be considerate of money and make some compromises to allow your bridesmaids to be in the wedding... -
ARCHIVED Conflicting Blood Work Results
kbtoyssni replied to breann6's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you're semi-gluten-lite that could easily influence the test results. I am under the impression that if you have one positive blood test, then you have celiac even if you have multiple negative blood tests or scopes. I think it just depends on what you were eating around the time of the blood tests. It doesn't seem like the testing is that accurate... -
What age were you diagnosed with celiac's/gluten intolerance? -23 (I'm now 24). What were your most common symptoms? -Fatigue, joint/muscle/bone pain, brain fog, depression, upset stomach What are your symptoms when you eat gluten now? -Same as before Do you consider yourself more sensitive to gluten now that you try to avoid it? -No, my symptoms...
-
ARCHIVED Digesting Meat After Being Vegetarian
kbtoyssni replied to kbtoyssni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been buying my meat at the local health food store where I buy all my specialty gluten-free food, and the package says gluten-free right on it. I think it's called Applewood or Applegate Farms. I get the sliced deli meat there since they only sell gluten-free meat. I wouldn't ever buy sliced meat from a mainstreet store due to the risk of CC. This... -
ARCHIVED Whiter Teeth?
kbtoyssni replied to Jestgar's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't think mine are any whiter, but I wouldn't doubt that it's true. gluten-free seems to fix a lot of problems. And if the person had a lot of heartburn or acid reflux associated with gluten, that could definitely affect the teeth. -
ARCHIVED Digesting Meat After Being Vegetarian
kbtoyssni replied to kbtoyssni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am buying free-range organic meat. I don't think I could eat it otherwise. I don't have a moral problem with it if the animals are treated well. I started eating it again because someone suggested it might make me feel better and it does. I still feel a little guilty when I eat meat, but the health benefits are definitely obvious. It's the one food... -
ARCHIVED Scared
kbtoyssni replied to Stacie H.'s topic in Parents, Friends and Loved Ones of Celiacs
Sounds like a really tough situation. Sorry you have to deal with this. One thing that jumped out at me was that he believes his problem is due to meds, not celiac. It sounds like you will need to get an "official" diagnosis for him to fully commit to this. And I completely understand his unwillingness to add another doctor. Even if you did go to a... -
I wonder if they are also being stubborn about this because they expect you to quit once you have the baby. It would be a pain for them to transfer you for a few months only to have you quit on them. If you are planning on going back to work after the baby, it may help if they are aware of this. But I'm not a lawyer, and I'm not sure of all the legal details...
-
ARCHIVED Corection....i Cheated And Something Really Did Happen!
kbtoyssni replied to DingoGirl's topic in Coping with Celiac Disease
I'm glad you're feeling better! And if this is what it takes for you to commit to be 100% gluten-free now, then I can't fault you for that. I'm happy that you're never going to cheat again. -
I've just been arguing with my insurance over this one. I want to get tested for casein intolerance. They won't pay for something like enterolab and say I have to go to an allergist but it's not an allergy so I can't find an allergist who will do the testing... They're getting another call from me on Monday. I might get the food allergy testing done anyway...
-
ARCHIVED Casein Intolerance Testing
kbtoyssni replied to kbtoyssni's topic in Food Intolerance & Leaky Gut
That's kindof what I figured. Maybe I'll do enterlab on my own. The problem is that I've been casein-free for a week, but feeling worse than ever. It might be withdrawal, it might be other food issues. Because eliminating casein means that I'm eating slightly differently. Like I'm eating more meat because I need protein from somewhere. I know you read... -
ARCHIVED Blabbing To Everyone I Know
kbtoyssni replied to Robina's topic in Coping with Celiac Disease
I talk about it all the time, too. Not too much, but just enough so that most people I come in contact with on a daily basic coud define celiac and some of the major symptoms. I don't want to get annoying, but I think it's important that people are aware of the disease. A friend mentioned to me several years ago that she had celiac. I was curious about... -
ARCHIVED Celiac Challenge
kbtoyssni replied to vampella's topic in Parents, Friends and Loved Ones of Celiacs
Congrats that your daughter is feeling better! It must be such a relief to you. If the doctor asks you to put her back on gluten, think about what a positive or negative diagnosis would mean to you. A positive would only confirm what you already know. And if you get a negative diagnosis? I'm betting you'll still keep her gluten-free. A negative diagnosis... -
ARCHIVED Dr. Thinks It Might Be Eosinophillic Esophagitis, Not Celiac
kbtoyssni replied to azmom3's topic in Parents, Friends and Loved Ones of Celiacs
I buy sunbutter at Cub Foods, so it's pretty common. If I eat a scoop of it on its own I can tell a *slight* taste difference, but you'd never know it wasn't peanut butter if you put it in a sandwich. Soynut butter is ok, but I think it does taste different. It tastes just like soynuts, which makes sense, but I much prefer my sunbutter. I hope you... -
If you don't know if a food is gluten-free call the company. Yes, it's a pain, but it's the only way you can know for sure. Or ask here - most likely someone else has called before A lot of mainstream restaurants will have gluten-free menus if you ask for them. They're just not as well-known as the Outback's gluten-free menu. And even places without...
-
ARCHIVED My Son Has Dairy And Sugar Issues. Is He Celiac Too?
kbtoyssni replied to girlfromclare's topic in Parents, Friends and Loved Ones of Celiacs
Welcome to the forum! Funny you should mention dairy and sugar. When I was younger (age 4-8ish) sugar and dairy made me extrememly hyper. I'm so lucky my mum made the effort to do an elimination diet or I'm sure I would have been a ritalin-child. I wasn't diagnosed with celiac until age 23. Regardless of the test results, you should try him on a gluten... -
ARCHIVED Caramel Coloring
kbtoyssni replied to Raquel's topic in Gluten-Free Foods, Products, Shopping & Medications
Is this all caramel coloring in the USA is gluten-free or all caramel coloring anywhere? I thought it was one of those ingredients you have to call and double check on or is it now like maltodextrin where FDA regulations require it to be gluten-free? Thanks! -
ARCHIVED Elevated Antibodies For Life?
kbtoyssni replied to tiredofdoctors's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
At first I thought there's no way they can still be high if you're gluten-free. But then I thought about things like mono. I had mono seven years ago and blood tests would still show those anti-bodies. The difference is that mono is caused by a virus and therefore you will always have that virus (as opposed to bacterial infections which go away when the... -
ARCHIVED Digesting Meat After Being Vegetarian
kbtoyssni posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been vegetarian for five years and have recently started eating some meat because I've read that a lot of people feel better when they do. Well, it turns out I do, too, at least most of the time. I have no problems eating chicken or turkey. I have eaten pork a few times without a problem, but the other day I had ham and had awful stomach cramps/gas... -
I would like to get tested for casein intolerance. I know I can go through Enterolab and it's only $100 so I'd do that if I had to, but out of principle I think my health insurance should pay for this. I called them up and they will not pay for Enterolab. They said I need to go to an allergist or internist. The problem is that I can't find an alergist...
-
ARCHIVED Does Anystill Eat Gluten?
kbtoyssni replied to uhmanduh's topic in Introduce Yourself / Share Stuff
Looking back at my past symptoms, I should have been diagnosed around age 18, too. And boy, do I wish I had been. I'm sure it would have been much harder for me to go gluten-free at that time because my symptoms were so mild that it would have been hard to see the benefit. But, finally, at age 23, my symptoms got so bad that I had to drop out of school... -
ARCHIVED Glutening Symptoms
kbtoyssni replied to slpinsd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well I guess you don't have to wonder if gluten is an issue now! I hope you feel better soon. It usually takes me two weeks to feel better after a glutening. During those two weeks everything upsets my stomach, and it looks like that's happening to you, too. -
ARCHIVED I Cheated And Nothing Happened!
kbtoyssni replied to DingoGirl's topic in Coping with Celiac Disease
I accidently consumed gluten once and had no reaction. I was sooo thankful that I didn't get sick. Maybe it's because I felt so badly about not reading the label more carefully that my body decided I'd learned my lesson and wouldn't make me sick as well. You probably won't be so lucky the second time you do this -
ARCHIVED Snickers...
kbtoyssni replied to chgomom's topic in Gluten-Free Foods, Products, Shopping & Medications
What? The bite-sized ones have gluten??? Not that it matters anymore... I have a peanut intolerance as well so I can't eat Snickers. So yes, Snickers give me problems because of that. -
It sounds like you are doing the right thing in trying to keep your son safe. Keep doing what you're doing; he needs you to do it. You may have to stop talking to your family about this. If you're going to get comments like "don't call the butcher - you'll embarrass us" it might be best for your mental health to not tell them you're calling the butcher...