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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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ARCHIVED Do I Have To Get Rid Of . . .
kbtoyssni replied to ptkds's topic in Coping with Celiac Disease
I think you're safe keeping plastic bowls, too. I kept all of mine and didn't have any problems. I did throw out the really beat up tupperware, but that's it. -
ARCHIVED Wisconsin Celiacs Unite!
kbtoyssni replied to frenchiemama's topic in Introduce Yourself / Share Stuff
I've actually moved to Minneapolis now. I was only in Wisconsin for about nine months of gluten-free life (then I was better enough to move out of my parents' house and get a full time job and live on my own I did nearly all my shopping at Good Harvest. The Pick N Saves also have a decent selection of gluten-free food. Check the health-food section and... -
ARCHIVED What Are The Odds?
kbtoyssni replied to ptkds's topic in Parents, Friends and Loved Ones of Celiacs
I'd say this is entirely possible. Although your husband doesn't have it, he may still carry the gene for it which would make your kids very likely to develop it. -
ARCHIVED The Healing Process...
kbtoyssni replied to MauriceGreene's topic in Coping with Celiac Disease
Yep, this definitely happens to me. I always assume it MUST be food related so I try to analyze my diet but can never come up with anything. I just sent away for enterolab casein testing because I thought that might be a problem but now I feel fine so I don't know. Maybe it's just because I was tired one day or stressed out or I caught a virus or something... -
I got a flu shot right away last year because I was still recovering after being diagnosed for about six weeks. My immune system was well enough to handle the flu shot but probably wouldn't have been ok with the flu. Plus the flu was what triggered my celiac the year before so there was no way I was going without a flu shot again. Lisa - your doctor must...
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ARCHIVED Another Cross Contamination Question
kbtoyssni replied to sandree's topic in Coping with Celiac Disease
If it were me, I would not make any gluten food. If your husband would like gluten food, he should be able to make it himself in his own gluten corner of the kitchen. A lot of foods are naturally gluten-free or can easily be made gluten-free. For things like bagels, I don't see why your husband can't cut his own. When I go home to my parents' house and... -
ARCHIVED Can't Stand It Anymore!
kbtoyssni replied to whitball's topic in Coping with Celiac Disease
This diet is a major life change. It takes a long time to get the hang of it ,and it's perfectly normal to mourn for what you can no longer have. It sounds like you're making a lot of gluten food still. I'd recommend making only gluten-free if you can because I can only imagine how hard it is to make delicious smelling and looking food and not be able... -
ARCHIVED Is This A Fluke Or Are We Really Seeing Results Already?
kbtoyssni replied to girlfromclare's topic in Parents, Friends and Loved Ones of Celiacs
You're definitely seeing results! Congrats! I also had positive results within a few days. I had a few setbacks and it was probably 6-9 months before I was 100% again, but the immediate results made it so much easier to continue with the diet. From your positive dietary response, I'd say your son definitely has celiac disease. -
This is a huge life change so being depressed is completely understandable, especially if you don't have supportive people around you. Do you haev any friends who are supportive? Maybe you need to start hanging out with them more. Have you looked for a support group in your area? It sounds like restaurants and eating at places like you MIL's are a problem...
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ARCHIVED Celiac Presentation In Sandy, Utah
kbtoyssni replied to Emme999's topic in Coping with Celiac Disease
I think it's really neat that you're doing a presentation of celiac. Utah is a little too far for me to go to the presentation. Maybe you could post your slides or outline or whatever you're using. I bet it would be really helpful for newbies. Good luck! -
Sorry you're not doing well. I have no idea if your doctor will call about the blood work. It really depends on the doctor. Why don't you give him a call and ask if the results are in? Did you check if the nuts are manufactured in the same facility as wheat? It is quite common and I know my mother has gotten glutened from contaminated nuts before...
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ARCHIVED It's Not Celiac
kbtoyssni replied to Chrisser's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've seen a lot of references on this site lately that you don't have any of the KNOWN celiac genes. There may be more celiac genes out there that we just don't know about yet. If I were you, I'd stop eating gluten again. Your body clearly doesn't like it. -
I feel no guilt when I bring food only food for myself to a potluck. I'm not eating any of the other food, so I don't feel like I'm obligated to bring food for others, either. I do, however, usually bring food. I think of it as an educational thing. People usually love what I bring and it shows them how yummy and easy and "normal" gluten-free is.
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ARCHIVED Has Anyone Done The Zone Diet
kbtoyssni replied to cloesb's topic in Related Issues & Disorders
I tried the Zone diet a few years ago because I was so fatigued all the time. I did feel better on it and now I realize it's probably because it's so low in gluten (this was pre-dx for me). My brother did it during cross country and he got a personal record nearly every race because of it. The rest of the team would have their pasta parties the night before... -
Kinnikinnick makes amazing donuts! I've been gluten-free for a while so I may not have the best memory of gluten-foods, but I wouldn't have known that they were gluten-free if I wasn't at a celiac event at the time. I found them in the freezer section of my local natural food store - right next to the gluten-free breads and pizzas I quite like Ener...
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ARCHIVED So It's Serious...
kbtoyssni replied to Stef-Ani's topic in Introduce Yourself / Share Stuff
You could also ask him to read some books on celiac (and tell him it's so he'll understand your disease and be able to help you through this). Maybe he'll see himself in some of the literature. Try Dangerous Grains. That book is my favorite and talks a lot about the non-GI complications that can be cause by celiac. You can try getting it from the library... -
Wheat starch is one of those things that through processing will usually end up mostly gluten free, but not entirely. If it's tested the gluten content will usually be below a certain acceptable parts per million which is why in countries like england wheat starch is allowed in gluten-free foods if it tests below that acceptable parts per million (can't...
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ARCHIVED gluten-free T'giving Plans Derailed :(
kbtoyssni replied to weathertopmama's topic in Coping with Celiac Disease
Sounds like you mom is super supportive! If it were me, I'd probably selfishly keep the dinner gluten-free, but then again, you don't want to make your entire family mad at you. Maybe you can get your mother to help you lay some ground rules for a gluten-Thanksgiving. Like you and the boys serve yourselves first, everyone washes their hands afterwards... -
ARCHIVED Blue Cheese Blues
kbtoyssni replied to dragonmom's topic in Gluten-Free Foods, Products, Shopping & Medications
If the blue cheese is grown on wheat bread, are companies required to label it with "contains wheat"? For some reason I thought it might not be on the label. -
ARCHIVED Husband Is Negative Too... Im So Confused
kbtoyssni replied to girlfromclare's topic in Parents, Friends and Loved Ones of Celiacs
There are a lot of bad gluten-free foods out there, but there are also a lot of good ones. I've had some really horrible bread, but now I eat Food For Life brand (my favorite are the black rice, red rice and millet). If you can try a different brand, I'd do that. As for the negative test results, false negatives are not all the uncommon. If you would... -
ARCHIVED Have Any Of You Had Problems?
kbtoyssni replied to vampella's topic in Parents, Friends and Loved Ones of Celiacs
Yes, and I won't buy products from companies who can't seem to get their act together on gluten. The company I have the most trouble with is Target generic brand. Because Target contracts with other companies to make their generics so you call Target and they give you the phone number of who makes it, but since they're just a contract company they don... -
ARCHIVED Happy Tummy :) And I'm Happy.
kbtoyssni replied to super-sally888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Congrats! I'm happy you're feeling better. I, too, felt immediately better for about a month. Then I got sick and felt awful again, but still better than I was pre-gluten-free. You will probably still have some bad days, but hopefully they'll be few and far between. -
ARCHIVED Stomach Pain
kbtoyssni replied to bonnieboo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Snickers are gluten-free. Three days just isn't long enough to expect all your symptoms to go away. Your intestines are still healing. You'll probably get random stomach pains for a while for no good reason until you're fully healed. -
ARCHIVED Dh Gave Dd Goldfish!
kbtoyssni replied to ptkds's topic in Parents, Friends and Loved Ones of Celiacs
Oops! Celiac is a steep learning curve, and although he ought to know that goldfish contain flour, he probably just didn't think about the ingredients. I know I never used to think about what had wheat flour in before dx. It takes a while to adjust your thinking to analyze every ingredient label. Maybe you need to label all the food in the house with... -
ARCHIVED Are Bandaids gluten-free?
kbtoyssni replied to ptkds's topic in Parents, Friends and Loved Ones of Celiacs
From Nini's Survival Kit: Curad www.curadusa.com 1-800-227-4703 Curad bandaids will no longer say their bandaids are gluten-free because suppliers can change. Johnson and Johnson 1-866-JNJ-2873 Bandaid Brand Bandaids are gluten-free (includes clear, family variety pack, kid character bandaids, flexible, and fabric bandaids). 3M Corporation...