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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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ARCHIVED Breast Tenderness?
kbtoyssni replied to queenofhearts's topic in Coping with Celiac Disease
I didn't gain or lose weight after going gluten-free which is why I found the whole situation so strange. I didn't make the connection to gluten until several months after. I was also one of those people who never got a period until I stopped eating gluten, so I think the hormones in my body finally evened out and I "finished" puberty. -
ARCHIVED Breast Tenderness?
kbtoyssni replied to queenofhearts's topic in Coping with Celiac Disease
I don't remember having any breast tenderness, but I did grow a full cup size within a month of going gluten-free. I'm 24 so that was something I was not anticipating! -
ARCHIVED New To Celiac...now What?
kbtoyssni replied to Irishgirl's topic in Coping with Celiac Disease
I used to crave gluten-filled foods all the time. I just realized the other day that my cravings are gone! Your body is probably addicted to gluten like mine was, so if you can manage to go a few months without gluten products, it's likely you'll stop having cravings like this. The diet does seem restrictive at first - especially when you go through... -
Email nini at <nisla@comcast.net> to get the newbie survival kit. Put "request newbie survival kit" in the subject line.
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ARCHIVED My Psychologist Is Interested In Celiac Connection
kbtoyssni replied to Nantzie's topic in Coping with Celiac Disease
I've been gluten-free for nine months now and I just realized a few weeks ago how incredibly happy I am. I'm happier now than I can ever remember. If I think back, my celiac symptoms started about 8-10 years ago, and the last five years have been a rollercoaster of depression. I am not taking any meds for depression anymore and I am dealing with life just... -
I can't think of a reason not to go gluten-free. Maybe your doctors are trying to spare you the "pain" of eating gluten-free if you don't have to. But if it makes you feel better, go for it! The pros of the diet GREATLY outweigh the cons.
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ARCHIVED Mom Of Celiac
kbtoyssni replied to genicol's topic in Parents, Friends and Loved Ones of Celiacs
Sorry you had such a bad experience with the doctor. Don't take it personally, though, you were just doing what was best for your child. You can get gluten-free cherios that taste great. I can't remember a brand name off the top, but I'm sure most health food/gluten-free stores have a version of them. Have you found a good gluten-free store yet? -
ARCHIVED Newbie Here With Some Suspicions
kbtoyssni replied to Laurasc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Finding gluten-free food in a regular grocery store gets easier, too. At first I'd read labels and think "not sure about this one, have to call the company to verify" which is really overwhelming. After a while you just know what the safe brands are and shopping becomes much less stressful. -
Shoot. Well, maybe this explains why I've been sick this week... It blows my mind how many things I'm still finding in my house that contain gluten. You'd think after nine months I'd be better at this...
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ARCHIVED Did This Happen To You..
kbtoyssni replied to Moongirl's topic in Coping with Celiac Disease
I always feel like that. I have never craved gluten food. I'm sure most people go through a withdrawal/disbelief/mourning phase, but I never did. I got diagnosed and that was it. No more gluten, no problem. I do on occassion miss pizza and beer, but not to the point where I want to eat it. I like to call restaurants before I go to ask about their... -
ARCHIVED Have You Done A Gluten Challenge?
kbtoyssni replied to ebrbetty's topic in Coping with Celiac Disease
If you've been gluten-free for six months then your blood work and intestinal biopsy should come back negative (unless you're accidently getting gluten from somewhere). I'm assuming you had a positive blood test six months ago, so a negative result this time would mean the gluten-free diet is working for you. I don't know if you had a biospy done six months... -
That's weird. I just called them and they told me that their plain and lightly salted rice cakes are ok. They even knew what celiac sprue is, but I trust people here more than Quaker Corporate.
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What? Quaker rice cakes may be contaiminated? How did I miss that memo? I eat them all the time and haven't had a problem, but I guess I'm not eating them anymore if they may contain gluten.
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Oscar Meyer (owned by Kraft) lunch meat is gluten-free. Some of their meats have caramel color, but I called a few weeks ago and was told all their meats were gluten-free.
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ARCHIVED Why Are Friends, Family And Others So Uncomfortable W/gluten Restriction?
kbtoyssni replied to Sarah8793's topic in Coping with Celiac Disease
I think people who don't have celiac look at their life as it is now and think about cutting out everything with gluten and it would be really difficult for them. They don't have any benefits to cutting out gluten, just negatives. I was so sick before, though, that I see not eating gluten as all positive - something that is hard to understand unless you... -
You might also inquire about the brand of chicken. Some brands plump their chicken with chicken broth before it even leaves the factory so it could contain gluten even if the restaurant doesn't add it. The ingredient label on the chicken would probably say that it contains broth. Balsamic vinegar is gluten-free.
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ARCHIVED Dont Know The Answer
kbtoyssni replied to taz sharratt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wheat allergies are quite common, so maybe she's got that instead of celiac disease. Why does she think it's just a wheat problem and not gluten? -
I don't know how small your school is, but they should still be able to make accomodations for you. Have you called the cafeteria manager and asked if they can do anything for you? My brother goes to a college with about 6000 students, and they have a special fridge filled with gluten free food. There are about five students with celiac, and they are allowed...
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ARCHIVED Digestive Enzymes
kbtoyssni replied to kbtoyssni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for the info everyone! Sounds like it might be worth try as a general digestive aid. I do take acidopholis which seems to help me, and this sounds like it might be similar. But there's no way I'm eating gluten again. I've been accidently glutened enough times to know I don't want to eat gluten on purpose. -
ARCHIVED Hi, I'm New
kbtoyssni replied to lavenderhoney's topic in Parents, Friends and Loved Ones of Celiacs
It would also be nice if you labeled a new stick of butter, jar of jam, peanut butter, etc, with her name so there's no risk of contamination. It's so easy to do and you can eat it after she leaves so it's not hugely inconvenient. You can even do the same with a cutting board, cutting knife, etc. For me, as long as it's washed well before I come, knowing... -
ARCHIVED Digestive Enzymes
kbtoyssni posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yesterday my chiropractor suggested that maybe I don't have celiac, and it's a digestive problem instead. He was going to give me some digestive enzymes that you take for two weeks, and then he thought I should try eating gluten again to see if it made any difference. I AM NOT willing to take that risk - I didn't even take the enzymes because they're manufactured... -
ARCHIVED Gi Doc Scheduled Endo 5 Weeks From Now, Is That Routine?
kbtoyssni replied to Homegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You can also call every day or two and see if there are any cancellations that they could slot you into. You might also try having your doctor call the GI and ask for a more urgent appointment. I did that once and got in a week later instead of having to wait six weeks. -
ARCHIVED Eating Disorders/weight Loss
kbtoyssni replied to sillyyak's topic in Related Issues & Disorders
There's a list of gluten free school supplies in nini's newbie packet if you have that. You might want to check the bandaids they use, too. I was shocked to learn that not all bandaids are gluten-free! J&J Bandaids are gluten-free, Curel are not necessarily, can't remember about other brands off the top. -
Ruffles? That makes me laugh. Seems like potato chips would be the worst thing for an upset stomach, but I guess whatever works for you!
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The best book about celiac disease I've read is Dangerous Grains. As for learning the diet, it's a lot of trial and error. I've been living and breathing celiac for nine months now and still don't know everything. There's a point when you first get diagnosed that's so frustrating - the thought of having to call all these companies and research every ingredient...