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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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ARCHIVED Companies Putting Wheat In Once "wheat Free" Food
kbtoyssni replied to frustratedneicey's topic in Coping with Celiac Disease
Thanks, Nini. I eat Tostitos all the time. If they're adding wheat to their whole grain chips, could there be cross contaimination issues with the corn chips? Has anyone called them about this? If not, I'll call them today! -
ARCHIVED Gluten Intolerance Triggered By Bad Food Poisoning ?
kbtoyssni replied to brimcp's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It definitely could be triggered by food poisoning. I think I had mild symptoms for years. Then I got the flu, and it must have been immune system overload, and I never got better. Now, a year and a half later, I'm thankful that I got the flu and ended up so sick because it means I got diagnosed. Now I feel better than I have in probably eight years.... -
Slightly OT, but I never buy Target brand anymore. I've had trouble with their vitamins and I thought their mouthwash for a while (although I now believe it is ok). Their customer service is awful - you have to call Target who will give you the number of their suppliers who aren't set up to do customer service calls for consumers. I'd much rather give...
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ARCHIVED Companies Putting Wheat In Once "wheat Free" Food
kbtoyssni replied to frustratedneicey's topic in Coping with Celiac Disease
What??? Mission is starting to put wheat in their tortillas??? Thanks for warning me. Is it just in their wheat tortillas or the corn ones, too? -
I'd invite him over for dinner a lot so you can feed him gluten-free - maybe he'll run home and tell his parents how much better he feels when he eats at your place. Maybe you can explain to your SIL that the diet isn't that hard, you'll help her figure it out, let her check out what you keep in your kitchen to show it's not all that different than anyone...
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The brand that I take is Florajen. The brand that I think is NOT gluten-free is BC Lactinex.
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ARCHIVED Genetics
kbtoyssni replied to watchthestars's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is recommended that all immediate family members of a celiac get tested, and I've heard that now they recommend extended family should also get tested. They could be asymptomatic right now but still damaging their body. My brother just got tested even though he showed no symptoms because if he did have it, I don't want him damaging his body for years... -
ARCHIVED Physical And Emotional Symptoms
kbtoyssni replied to ERA's mom's topic in Parents, Friends and Loved Ones of Celiacs
I think it could take a month or two to get three weeks' worth of gluten out of her system. I also suffered from depression. Since going gluten-free I am happier than I've been in years. So if the symptoms of bi-polar have showed up recently - since she started eating gluten again - that could have a lot to do with it. It's possible the drugs might... -
ARCHIVED Exercise And Liftig Wieghts Seem To Cause Celiac Symptoms In Me?
kbtoyssni replied to jennifervan's topic in Sports and Fitness
Muscle weighs more than fat so the weight gain could be from you gaining muscle. I'd go more on overall body composition and how your clothes fit rather than weight to determin your fitness progress. I have no idea why your hair would start falling out again. Maybe there's some hidden gluten at your gym somewhere? -
I think the brand of acidopholis I take is Pro Flora. I'll have to check when I get home, though. The label does say gluten-free. I get mine at the health food store, but my old pharmacy also carried it. I got a different brand of acidopholis from my new pharmacy, and I don't think it's gluten-free. I kept getting sick and that was the only thing I changed...
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I take them and it's the one thing that really helped me. (NOTE, at the time I was diagnosed with fibromyalgia and was taking so many different things to see if anything would help). I went to england for two weeks and didn't take my probiotics with and my guts hated me. Now I think my intestines are healed so I'm not sure if I need them any more, but...
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ARCHIVED Is This An Odd Comment Or Not?
kbtoyssni replied to floridanative's topic in Coping with Celiac Disease
And most people think of going on a gluten-free diet in terms of what they'd miss out on. For someone who doesn't have celiac, it's a lot of negatives and no positives. Which is probably why it's so hard to understand. They sit there and watch me talk to the manager, get out a card of what I can and cannot eat, send my meal back when it gets screwed up... -
ARCHIVED Is This An Odd Comment Or Not?
kbtoyssni replied to floridanative's topic in Coping with Celiac Disease
I don't think she meant anything bad by it. She could have meant that your mother's friends were looking out for her and trying to help out by getting food at a known "safe" place. It probably just came out wrong. I have a friend who refers to my celiac disease as my "little problem". All the time, in front of other people. It drives me nuts because... -
ARCHIVED Unexpected Positive Effects Of New gluten-free Eating Habits?
kbtoyssni replied to munchkinette's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
No more depression!!! And I have so much more energy. For years I would come home from work and just crash, never realizing that wasn't normal. Now that I've started work again I'm surprised and thankful everyday that I can go home, workout and then get together with friends and not need to nap. Basically, I have a normal, healthy life again. I'd... -
ARCHIVED Question For Those Age 15-25... Ish
kbtoyssni replied to lorka150's topic in Coping with Celiac Disease
I cut up a bunch of veggies the other day - onions, peppers, mushrooms, tomatoes - and wrapped them in foil to grill. (Grilling got cancelled so I can't tell you how it turned out.) I also heard that some charcoal is made from cheaper particle-type wood that contains glue, which may contain gluten, so I'm not sure if this is an issue or not. The foil takes... -
ARCHIVED Question For Those Age 15-25... Ish
kbtoyssni replied to lorka150's topic in Coping with Celiac Disease
-How to avoid your celiac disease becoming the center of attention everytime you go anywhere. I've gone out a few times with friends in the last week and I feel like it's this huge deal because I always have to talk to the waitress, send my meal back when they screw up, ask about ingredients, etc. I don't mind, but I worry people are getting sick of hearing... -
ARCHIVED Going On A Board Retreat
kbtoyssni replied to olalisa's topic in Coping with Celiac Disease
Thanks! I can't even remember all the times I accidently glutened myself in the first few months because I didn't know any better so I'd hate to put myself at risk again like that. Now that I finally have the diet figured out, I'm not willing to risk letting other people cook for me. The other day my friend was asking me if she could make me gluten-free... -
ARCHIVED What Is Your Ethnic Origin?
kbtoyssni replied to Emme999's topic in Related Issues & Disorders
I'm half english, and mostly german for the other half. -
Richard, I'm so sorry to hear of your loss. I can't imagine how hard that must be. It does take time to find the right therapist, but it's worth it when you do. And don't feel badly about needing medication. I've taken anti-depressants before just to get me back on my feet while I learned to deal with my life again. It was nice to have a temporary...
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ARCHIVED Bad Reaction To Pears
kbtoyssni replied to Ursa Major's topic in Related Issues & Disorders
Gosh, I have no idea. I know my mum has trouble digesting certain fruits like pears, apples and grapes, but that sounds like a completely different problem. -
ARCHIVED Going On A Board Retreat
kbtoyssni replied to olalisa's topic in Coping with Celiac Disease
You could maybe explain to her how it took you months to figure out the diet and what you can and cannot eat and there's no way you expect her to know everything in just a day or two. Tell her you'd feel awful if she accidently glutened you and that you appreciate her offering to cook, but you'd prefer to cook your own or help her do the cooking and teach... -
Applesauce! That's all I eat when my stomach hurts.
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ARCHIVED How To Stop Cheating
kbtoyssni replied to italiana1981's topic in Coping with Celiac Disease
It might also help if you don't think of it in the same way people traditionally think of a "diet". When you say "diet" people think of self-imposed restriction, that they really shouldn't eat something but if they do the worst that happens is they don't lose any weight this week. This is not the same type of diet. This is a medical issue. Do you want... -
ARCHIVED Poisoned At The Dentist?
kbtoyssni replied to Mango04's topic in Coping with Celiac Disease
I also have the dentist use the plain pumice with no flavoring to clean my teeth. I've never had anything other than a cleaning so I can't help you there. -
ARCHIVED Eating Disorders/weight Loss
kbtoyssni replied to sillyyak's topic in Related Issues & Disorders
Do they use playdough at preschool? That contains gluten. You might also want to look at what brand of crayons and paint she uses - some contain gluten although I don't know what brands. Is she sharing cups with other kids? If the other kid has eaten gluten and then touches her food or cup or the table near her, maybe she's picking it up that way.