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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    If you are gluten-free right now, any testing you do will most likely come out negative. I'd go by dietary response at this point because if you feel better, it's silly to go back on gluten just to get a doctor's diagnosis.
  2. kbtoyssni
    Article from celiacchicks: Here Elisabeth Hasselbeck and friends listen intently to the brewmaster. I met Elisabeth later that evening and she was super nice. She told me to tell you that The View is doing an in depth segment on celiac disease this next Wednesday March 14th. Also, remember my little stunt at The View? Well, she actually did get the...
  3. kbtoyssni
    All the marshmallows I've seen are gluten-free. A lot of recipes say use gluten-free everything, which I always think is kindof silly because I wouldn't put something with gluten in a gluten-free recipe! Do they honestly think we're not going to check the gluten status of the ingredients? I really like Food for Life brand bread. It's pretty common...
  4. kbtoyssni
    I always drink vodka when I go out. I haven't had trouble with any brands. I may be one of the lucky ones who can handle distilled alcohol. I'm wondering if it might just be the alcohol. Sometime having a few drinks will upset the digestive tract even if they are gluten-free.
  5. kbtoyssni
    I disagree with some of your points. Although ds is not gluten-free, no one *needs* gluten to be healthy. I would also worry about the risks of CC if ds is eating gluten foods. Kids (and adults, too!) are notorious for dropping crumbs all over the place. Although sugary cereal won't kill the kid, I think the american diet these days has way too much...
  6. kbtoyssni
    I also don't think putting her back on gluten will help her recover from a non-celiac illness. If she does have celiac, putting her back on gluten will completely overload her immune system, and it will be hard for her to get better. If she doesn't have it, well, not eating gluten isn't going to hurt her body's ability to fight the illness. Nobody needs...
  7. kbtoyssni
    I was prescribed pain meds just before I went gluten-free because of joint pain. I was also diagnosed with fibromyalgia. Now that I've gone gluten-free, all the fibro symptoms have gone away so I obviously didn't have it, but at the time that was what the pain was like. I am assuming your brother has similar pain. It might be worth it to peruse some fibromyalgia...
  8. kbtoyssni
    My first line is that I'm allergic to WBRO. For most people, I don't need to go into details about how it's not really an allergy. Allergies they understand. My second line if they ask questions is that I have celiac. I'm self-diagnosed so it's possible I *only* have gluten sensitivity, but again, it just doesn't matter. The symptoms and treatment are...
  9. kbtoyssni
    For a while last summer I was getting symptoms of glutening and couldn't figure out where they were coming from. I soon realized that peanuts give me the same symptoms. I didn't figure this out until 10 months of being gluten-free and 6 months after feeling completely better from going gluten-free. I'd consider other foods. Has your diet changed *at all...
  10. kbtoyssni

    ARCHIVED Doctor #1 Vs Doctor #2

    kbtoyssni replied to MurrayM's topic in Doctors

    Lucky you that your story only has two doctors! I think doctor 2 is absolutely correct, but that doctor 1 didn't mean any harm. Most docs aren't well educated on the disease and simply don't realize that if you're not eating gluten the tests will come back negative. Most blood tests will show up positive no matter what you're doing to your body so celiac...
  11. kbtoyssni
    You might want to consider cooking mostly gluten-free for the kids, too. Most meals can be made gluten-free without too much effort. Do you have some favorite meals that you're having trouble finding substitutes for? We can help with that Because I eat pretty much what I used to eat with a few modifications. For flavor, I add spices to everything...
  12. kbtoyssni
    Both yesterday and today I went to cnn.com and there were articles on celiac! For the first time I felt like this was common and that people know about it. It was awesome. I, of course, emailed all my friends in excitement! Yesterday it was a video on a mom and son who have celiac (sorry, don't know how to post video links). Today it wasn't so much about...
  13. kbtoyssni
    Yes, your children should get tested if you have it. But dietary response is enough to diagnose (in my opinion). If you feel better gluten-free, why make yourself miserable for a few more weeks just to take a blood test? Depending on how open your son is, he may get tested even if you go the dietary response route. A blood test isn't too big a deal so...
  14. kbtoyssni
    Oh, cars is another tricky thing for me! I can never find my car. I moved to Minnesota from Wisconsin last year and the only way I could find my car was by WI plates. I've had MN plates for a week now, and I've had trouble several times finding it.
  15. kbtoyssni
    It's Elizabeth Hasselbeck who's got celiac. There was a segment a while back when Budweiser came out with RedBridge on it:
  16. kbtoyssni
    I used to hate eating breakfast food for breakfast when I was a kid. I'd make myself grilled cheese sandwiches or salad or leftovers from the night before like pizza or lasagna. Don't feel you have to feed him breakfast food. And an 8-year-old who wants to eat fruit? You've got yourself a keeper here!
  17. kbtoyssni
    Has anyone heard of prosopagnosia? It's the inability to recognize faces. Here's some info: http://en.wikipedia.org/wiki/Prosopagnosia I'm starting to wonder if I have a mild case of it. Last night I watched The Departed with some friends. Normally I don't watch drama-type movies and now I know why. I didn't realize until halfway through the movie...
  18. kbtoyssni

    ARCHIVED Orthorexia

    kbtoyssni replied to shai76's topic in Related Issues & Disorders

    I am actually much less obsessive about food now than when I was pre-gluten-free. I do read every label everytime I eat anything, but I read it once and move on. It's more of a "this is my life this is what I have to do" than an eating disorder type obsession. Part of what helps is that I live alone so my house is gluten-free, I always bring my own food...
  19. kbtoyssni
    My brother's college has a fridge in the back filled with gluten-free food for the celiac students and a microwave for them to use. The also have a make-your-own omlette bar and they'll give me regular eggs if I ask rather than having to use the fake-egg powder. Just depends on the school.
  20. kbtoyssni
    I make up flour mixes in big containers so I don't have to measure out six different kinds of flour each time I bake. That has increased my baking efficiency a lot.
  21. kbtoyssni
    It takes time to find a good doctor. I'd call around some of the doctors in your area and ask if they deal with celiac patients. Their response should give you a good indication of how open they will be to the disease. In my experience, younger doctors have been better. They're not set in their ways yet and tend to be open to alternative diagnoses. While...
  22. kbtoyssni
    The question is: do you want the tests redone? If so, you need to keep eating gluten or they will most likely come out negative. If you don't want the tests redone, a combination of Enterolab and dietary response is sufficient for diagnosis. When you do go gluten free, you need to keep in mind that gluten is like a poison/drug to your body. If you have...
  23. kbtoyssni

    ARCHIVED Uncertainty

    kbtoyssni replied to stennis07's topic in Sports and Fitness

    My chiropractor asked me about my diet last night and I said gluten-free to which he replied "oh, so you don't eat many carbs, do you?" I told him I eat a ton of carbs - just in the form of rice, corn, potatoes, quinoa, veggies, etc. I'd say I eat just as many carbs as I did before.
  24. kbtoyssni
    I don't think restaurants are required to list anything on their menu. Which stinks because I don't automatically think "oh, cheese, I should ask if that contains wheat" and the servers often don't realize that something has wheat or it slips their mind when they're trying to think of gluten ingredients. I think if you ask and they say no wheat, that's...
  25. kbtoyssni
    I think celiac only counts as a disability in situations where you would be without access to gluten-free food (which is why it's considered a disability by the military). Working midnights wouldn't fall under this category. I wonder if you have some other condition that makes it difficult for you to work nights. If you can prove that, then I think you...
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