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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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	Welcome! There is a HUGE learning curve with this diet that can be very stressful. I suggest starting with just eating a few things (like maybe plain chicken and veggies) and everyday research one or two new foods to find out what brands are gluten-free. Once you figure out the brands, you'll find that you can eat nearly everything you used to and shopping...
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				ARCHIVED I Cannot Do This Gluten Challenge Anymore!
kbtoyssni replied to jmoody74's topic in Parents, Friends and Loved Ones of Celiacs
It sounds to me that you don't need to do a biopsy. Why put him through that much pain just to get a "medical" diagnosis? Based on his symptoms, I'd say you've already got your diagnosis. I had been gluten-free for too long when I did my blood test so it came back negative. At that point I had the option of eating gluten for another few months just... - 
	
	
				ARCHIVED Just Wondering Who's From Minnesota
kbtoyssni replied to linds's topic in Introduce Yourself / Share Stuff
The pizza place is Roulette's Pizza 952-443-4644 1550 Arboretum Victoria, MN 55386 - 
	
	
				ARCHIVED Wisconsin Celiacs Unite!
kbtoyssni replied to frenchiemama's topic in Introduce Yourself / Share Stuff
The best thing to do is not buy gluten-free substitutes of your old gluten foods and start using different things. And don't feel that you have to buy the product that has "gluten free" on the package. There are plenty of mainstream brands that are gluten-free. It will take some time to change your tastebuds, though. I make peanut butter and jelly wraps... - 
	
	
				ARCHIVED Just Wondering Who's From Minnesota
kbtoyssni replied to linds's topic in Introduce Yourself / Share Stuff
Becky - I was at the Celiac Walk. I was the one cutting all the doughnuts and bagels in quarters all morning. Did you try the gluten free pizza??? Delicious - just like the greasy, fresh out of the oven pizzas you get from any other pizza place. Take-out pizza is the one thing I miss so I'm very sad that the pizza place is in Victoria and not closer... - 
	
	
				ARCHIVED Advice On Next Steps From Positive Blood Test
kbtoyssni replied to Jimmac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A positive blood test means you have celiac, regardless of biopsy results. A biopsy may or may not confirm you have celiac. Villi damage may be patchy so a doc can miss it if he doesn't take enough samples so I don't see a need for a biopsy unless your doctor suspects something in addition to celiac is going on, too, and wants to check for it but it doesn... - 
	I'm a gymnast and love to bounce on the trampoline. Or tumble and flip
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				ARCHIVED Torn Between Job And Job Opportunity
kbtoyssni replied to francelajoie's topic in Introduce Yourself / Share Stuff
I'm thinking take the job, too. You don't have kids yet. When you do decide to start a family you can find a more flexible job, but you'd probably feel better bringing a child into a more financially stable family. - 
	I'm an electrical engineer at a medical company. Outside of work I'm a huge gymnastics fan - I do gymnastics and will probably start judging high school meets next year.
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				ARCHIVED Hotel Living Making Me Sick...
kbtoyssni replied to redharmony's topic in Coping with Celiac Disease
Cocoa Pebbles are no longer gluten-free. They changed the formula maybe four months ago and now it has gluten. - 
	I use Target-brand sunscreen.
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				ARCHIVED Found Out Why Alex Is Still Sick!
kbtoyssni replied to cdfiance's topic in Parents, Friends and Loved Ones of Celiacs
Gosh, that must have been so scary, but I'm glad you got to the hospital in time and figured out another piece of Alex's health issues. Hopefully this will be the final answer. - 
	
	
				ARCHIVED About To Get The Results Of My Celiac Panel
kbtoyssni replied to micaela27's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am a firm believer in the fact that if you have something going on in your digestive tract, you should look at what you're putting in it first. Blood tests give false negatives fairly often so why not try gluten-free just in case? It's easy to do and can save you a lifetime of suffering if you do have celiac. It's not like you'll harm your body by trying... - 
	
	
				ARCHIVED My Daughter Made Cookies...
kbtoyssni replied to JerryK's topic in Coping with Celiac Disease
Aww, that's sweet of your daughter. I love those PB cookies! - 
	Gosh, in this case, I think I would not chip in. I don't mind the "free" gluten food, but I wouldn't want to pay for food I know I'm not eating.
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				ARCHIVED The Dreaded Office Kitchen
kbtoyssni replied to alamaz's topic in Coping with Celiac Disease
Can you get a mini fridge and a cheap microwave to put in your cube? I would want to have to navigate the messy office kitchen. I'm lucky that my coworkers all all very tidy - no small feat in a department of 120 people! - 
	I thought it was a good article. I liked that they addressed the fact that some people are using it to lose weight when they don't have the disease, that testing isn't accurate if you've gone gluten-free, the last quote about it not being so bad to go gluten-free. Yes, there are some things they could have added and I wasn't too excited about gluten-free...
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				ARCHIVED What Did I Do Wrong This Time?!?!?!?
kbtoyssni replied to Walter S's topic in Coping with Celiac Disease
I would also be suspicious that someone ate something with gluten, then reached into the chip bag and contaminated everything. It's pretty risky eating anything at a party if there are gluten foods around. - 
	
	
				ARCHIVED Gluten Free Home
kbtoyssni replied to sara78's topic in Parents, Friends and Loved Ones of Celiacs
Again, it's a very individual decision, but when I lived at home our house was 99% gluten-free (mom and I were gluten-free, dad and brother not). We bought gluten-free brands of condiments, used corn tortillas instead of wheat, etc. There's lots of little things you can do that don't cost any more to lessen the amount of gluten in the house. But then you... - 
	
	
				ARCHIVED Just So Sick Of This Disease.
kbtoyssni replied to ptkds's topic in Coping with Celiac Disease
What catches my eye is that you get glutened often. Sounds like you may have to do some investigation into why and what you can do about it. - 
	
	
				ARCHIVED Forgive Me For I've Been Bad
kbtoyssni replied to JerryK's topic in Coping with Celiac Disease
Hey Jerry, Sounds like you need to print out this post and tape it to your fridge so in a few months when you feel good again you'll have a constant reminder. I also recommend taping a picture of those adorable girls in your picture (your daughters?) next to it to remind you that it's not just you who's affected when you eat gluten. - 
	
	
				ARCHIVED Should I Ask For A Bone Scan From My Ortho Doc
kbtoyssni replied to little d's topic in Related Issues & Disorders
I certainly would. If your bone are not as dense as they should be you can still do something about it now before the problem gets more serious. - 
	
	
				ARCHIVED Not Feeling Well Again!
kbtoyssni replied to Walter S's topic in Coping with Celiac Disease
Did you grill the chicken BBQ-style or in a frying pan? If it was BBQ-style, the grill could easily be contaminated from previous cooking. Some charcoal also has gluten in it so I always cook in foil just in case. - 
	
	
				ARCHIVED Healing Crisis?
kbtoyssni replied to aquamarine-queen's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I also used to get the most upset stomach from caffienated coffee. I should try it again because I bet I'd be ok now, but haven't gotten around to it yet. - 
	
	
				ARCHIVED Has Anyone Eaten Meat After Being Veg?
kbtoyssni replied to jesscarmel's topic in Introduce Yourself / Share Stuff
I just started eating meat again after five years of being veggie. I find that meat sits well in my stomach. I never feel sick after eating it. Veggies and grains do not always sit well, I think because they're harder for the body to digest. It's frustrating because I want to not eat meat, but I know it won't make me sick and on days when my stomach is...