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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    Ok, so this is immediately what I did - got out the scratch paper and worked it out by hand. Yup, I am a nerdy engineer My dad was a math teacher and used to make these types of number games up on the spot for me. I was always amazed until he showed me how to do them myself. Then I'd make them up for him.
  2. kbtoyssni
    Ummm, yeah, that sounds like negligence to me, too. It's one thing for a doctor to not know enough about the disease to think about it and be able to diagnose based on non-standard symptoms and a negative "gold-standard" biopsy, but it's quite another to have a diagnosis written in your records and not tell you. It is unacceptable for a doctor to not tell...
  3. kbtoyssni
    Maybe you could give him the list of potential diseases that can be caused by untreated celiac - stuff like cancer, osteoporosis, Alzheimer's, etc. There's a good list of them in the book Dangerous Grains.
  4. kbtoyssni
    Not a celiac specialist, but my GP is great if you're looking for a yearly doc who won't give you the evil eye when you mention you have celiac and will know what to look for. I go to Ronda Stellar at the Shoreview Medical Clinic. She says whenever she gets someone who's having trouble getting pregnant, she'll test them for celiac. She's also been to several...
  5. kbtoyssni
    I don't know a lot about vaccinations, but I do agree that it's probably not a good idea for someone whose immune system isn't healthy. You might want to inquire about the vaccines that she's not getting and ask about the symptoms of the diseases. You're obviously very aware of your daughter's health so knowing the symptoms will help you bring her to the...
  6. kbtoyssni
    I also like the book "Dangerous Grains" if you want to emphasize the seriousness of the disease and all its complications.
  7. kbtoyssni
    I'm not sure about blood tests. Celiac you can do a blood test for because it's autoimmune so your body produces antibodies, but allergies are a different reaction. The other problem is that you might have an allergy or you might have an intolerance/autoimmune reaction (I can't remember which is which - one is IgA, another IgE - someone here will know)...
  8. kbtoyssni
    Oh yeah, that's Michael Moore. I started watching Sicko a few weeks ago and couldn't watch anymore after 10minutes. It's still sitting there and I haven't gone back to it. The movie is about people who have health insurance. He doesn't even deal with people who aren't insured.
  9. kbtoyssni
    I totally get what you're saying, StrongerToday. Had the woman with cervical cancer gotten proper medical treatment right away, she probably would have recovered. Now, after two years, I wonder if she can get better. And I can't imagine it's easy to get health insurance coming out of jail. I know that jail is punishment, that it shouldn't be fun or easy...
  10. kbtoyssni
    ppm is pages per minute that your printer can print. Printers often have two ppms: a slower ppm if you're printing color and a faster one for black and white. You'll pay more for a higher ppm (i.e. faster printer), so consider the length of the documents you're printing and how fast you need it. If you can wait 30 seconds for your document to print, a...
  11. kbtoyssni
    So I guess in summary I should try to stay away from jail! I figured it wouldn't be easy to get gluten-free in jail, but if they are unable to accommodate gluten-free, then they're killing you. And that just doesn't seem right even for people who have committed crimes. Jail messes people up enough so they have trouble when they get out and if they end...
  12. kbtoyssni
    I also want to thank everyone for the replies. I often feel really nauseous for a few hours after waking. Think me sitting at my desk with a flat sprite and some apple sauce staring at my computer and wanting to throw up. Sounds like the blood sugar might be my problem. Is there any way to know for sure whether my blood sugar is low other than experimenting...
  13. kbtoyssni
    It looks like you're still new to celiac and it's hard to transition to being able to get food anywhere to having to bring your own all the time. Hopefully this will inspire you to think ahead and always bring something to eat with you. And sorry you feel badly - get better soon!
  14. kbtoyssni
    Looks like you've got the chemical stuff taken care of! I also use Seventh Generation or vinegar/water. What about getting all your vitamin levels checked if you go to the doc? Maybe you're missing something.
  15. kbtoyssni

    ARCHIVED Jail Food

    kbtoyssni posted a topic in Coping with Celiac Disease

    I have no idea what forum to post this in. I was wondering if anyone knew if you can get gluten-free food in jail? No, I am not planning on going to jail anytime soon. It's just that every time I turn on the news it's about Paris Hilton in jail and they had a story on jail food and how it cost $.18 per meal. The stuff looked like slop. And then I wondered...
  16. kbtoyssni
    I think you can pass on gluten to a baby. My mother had to go casein-free when she was nursing my brother because he was intolerant.
  17. kbtoyssni
    I would also guess another food intolerance or issue other than celiac since you've been gluten-free for a while and probably have the diet down to the point where you're not making many mistakes. I found out I was intolerant to peanuts nine months after going gluten-free and I get the same symptoms as gluten so it was hard to track down. You might also...
  18. kbtoyssni
    Have you tried sunflower seed butter? It tastes almost the same as PB (I can't tell the difference when it's in a sandwich) and I can get it at the local grocery store. I love summer lunches. We eat tortillas a lot (melt cheese on a corn tortilla and top with lettuce, tomato, salsa, etc) and beans on toast (heated baked beans on toast) or hotdogs.
  19. kbtoyssni
    Good for you! A lot of my unopened gluten food went to the food drive upon diagnosis, too.
  20. kbtoyssni
    Good to know, thanks for sharing! I live in Minneapolis so not too far. It did cross my mind the other day whether B&Bs were out, but I guess not.
  21. kbtoyssni
    Chronically inflamed intestines? I wonder what causes that. Certainly it could be celiac or another food allergy. About the dairy: do you think it's lactose or casein? Casein can be in a lot of lactose-free products so if you're just lactose-free, you might want to consider going casein-free. Testing for celiac is also unreliable, especially in younger...
  22. kbtoyssni
    Congrats to your son and also to you for letting him go! What events is he participating in?
  23. kbtoyssni
    If you have a positive biopsy, that's all you need to diagnose celiac. I don't see a reason why you should continue getting testing - just go gluten-free! It's going to be a huge challenge at first, but things get much easier as you figure out safe brands. It's scary at first, but you're lucky that you've got a very treatable disease here. BTW - I also...
  24. kbtoyssni
    The fact that you responded well to a gluten-free diet for a few days is promising. Your villi will be very damaged so it's likely that you'll still feel pretty rotten for a while until they heal. You could also try cutting out dairy temporarily. Lactose is digested by the tips of your villi so if they're damaged you may have trouble digesting that for...
  25. kbtoyssni
    No, I never cheat. Going gluten free gave me my life back. There's no food that is so delicious to make me want to eat it and return to my brain-fogged, in pain state in which I cannot get off the couch. I like my current lifestyle too much to want to give it up for a piece of cake. I also do a lot of gluten-free cooking and baking so there are very...
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