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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    I think the difficulty in sticking to the diet is more related to how sick you were before diagnosis and how well you react to the diet (i.e. how well you can correlate gluten with being sick in your mind), how supportive people around you are, and your general outlook on life rather than age. I was diagnosed at age 23 (almost two years ago now). I...
  2. kbtoyssni
    Beer always made me sick. Since the amount of gluten in beer is relatively low, you're probably not doing a lot of damage, but I'm sure there will be some. That level of damage is not something I am willing to risk.
  3. kbtoyssni
    Heehee, beers would be great! I'm an electrical engineer working in test engineering so I design the test systems for our devices. But I'm really interested in the physiological side of things, too. I like to know the theory behind it. That's why I work here - because you can meet a person with a certain heart condition and know you're making a device...
  4. kbtoyssni
    It is possible that modified food starch is made from gluten, but 99.9% is not, at least in the USA. If it's made from wheat, companies are now required to list it since it's a top 8 allergen. Of course, that doesn't help if it's made from barley. In general, I don't worry too much about it. I tend to buy safe brands and most companies are owned by one...
  5. kbtoyssni
    Sounds like you know quite a bit about the heart! I work at a heart resynchronization device company so we should get together and read EKGs sometime We've got a great sequence of training classes (about 15 days total) about all different types of heart diseases and the causes and treatment of them so I'm working my way through those right now.
  6. kbtoyssni

    ARCHIVED Nervous

    kbtoyssni replied to angel-jd1's topic in Coping with Celiac Disease

    Good luck. I hope everything goes well. Are you taking any probiotics to counter the effects of antibiotics?
  7. kbtoyssni
    If your heart skips a beat (which isn't all that uncommon), it will feel like it beats harder next time. Your heart will has more time to fill up with blood so the beat after the missed one is pushing out more blood at a much higher pressure than normal so it will feel like a stronger beat.
  8. kbtoyssni
    Hmmm, maybe I'll go to a vet next time I need to be tested for Lyme!
  9. kbtoyssni
    Sounds like a virus to me. It's hard because every time I'm sick I blame celiac. In February I woke up one morning withe the worst vertigo, blamed gluten and went to work. Turned out to be the flu. I should have stayed home and would have had I known it was a virus.
  10. kbtoyssni
    It sounds like there may be other health issues to address here. I can imagine being different in high school would make a kid miserable, but some of it she may not be able to control. I am very grumpy and depressed when gluten and have to try very, very hard to be pleasant. I'm not sure what kinds of activities she does with her friends, but maybe...
  11. kbtoyssni
    I had no idea bubbles could contain gluten! All it is is soap and water! Yikes. We used to always make our own. It's way cheaper. But I'm concerned that Palmolive may not be gluten-free. That's the brand of soap we have at work. I might have to go one a campaign to switch brands.
  12. kbtoyssni

    ARCHIVED I'm New

    kbtoyssni replied to a topic in Coping with Celiac Disease

    I loved the book Dangerous Grains - it details all the issues you can have due to celiac. It's not a "how do I deal with this" book. I love "The Gluten Free Gourmet" cookbook. Try the bread and cake recipes in there - they are delicious! Oh, and pizza crust! I like Food for Life brand red and black rice bread. It's pretty common so hopefully you can...
  13. kbtoyssni
    I don't use one. I know my safe brands and do a search of this board if I need to buy a different brand. But I have a very good memory for this kind of information so I've never been in the grocery store and not been able to remember my safe brands. If you have trouble remembering, I could see it being helpful. If it were me, I'd probably just bring a...
  14. kbtoyssni
    You might have casein intolerance, or you might have a slight lactose intolerance. I feel sick if I eat a ton of dairy (like more than three servings a day) so I try not to eat too much. Sounds like you ate a lot so maybe you'll be able to handle it if you ate less.
  15. kbtoyssni
    I would also disagree. I do not have positive bloodwork or biopsy. I figured it out through an elimination diet. By that point I'd been gluten-free for too long to get positive bloodwork, and I was not willing to keep making myself sick just to get an "official" diagnosis. I may have been "just" gluten intolerant, but I feel that celiac is the last stage...
  16. kbtoyssni
    I'm just speculating here, but if your villi are worn, I would think you'd have trouble digesting anything. It's like having half of a healthy intestine if all the villi surface area isn't there. I did a bit of googling and it looks like you do need fat in your diet to absorb fat soluble vitamins. So if you're not absorbing as much fat because of villi...
  17. kbtoyssni
    I agree that you need to find the source of gluten. I don't think you'll ever feel better if you don't deal with that. You just moved so I'm assuming you've changed brands of many of your foods. It's probably time to look at the brands you are now eating and starting making some calls. Or post the new brands here and I'm sure someone's made the call already...
  18. kbtoyssni
    Gluten is what damaged your gut to start with so if your gut heals and you start eating gluten again, you'll be right back where you are now. I think of gluten intolerance as the first stage on the road to getting celiaa. Think of yourself as lucky - at this point you're "only" gluten intolerant and you haven't damaged your gut enough to have full-blown...
  19. kbtoyssni
    Could you talk to someone above your boss about the issues you've been having? Or an HR rep? Or transfer to a different area of the company if it's a large enough company?
  20. kbtoyssni
    Gosh, practically everything can be a symptom of celiac! I also had joint/muscle pain (with a diagnosis of fibromyalgia). The pain was gone in probably a month, but I'd lost a lot of strength and stamina from lying in bed for six months and it took a long time to get that back. Congrats on your diagnosis and welcome to the board!
  21. kbtoyssni
    Well, if the company said the foundation is gluten-free, I'd be inclined to believe that. What brand is it? Maybe someone else has used it and can testify if we can trust this company. I don't think it's out of the ordinary to feel sick for two weeks, especially after a vacation which may have contained multiple glutenings. I find deviating from my...
  22. kbtoyssni
    It looks like you might be recently diagnosed. In that case, you can also emphasize that your body is still healing and that you shouldn't need to miss much work once you're fully healed. Short-term disability would probably only be necessary while you're healing. Good luck!
  23. kbtoyssni
    I don't think gluten in the coffee is the problem. If anything, I'd say it could be the caffeine. I get really bad stomach pain and foggy head from caffeine - maybe you have a similar reaction?
  24. kbtoyssni
    Most chocolate is ok. Again, just read the labels, but there's plenty out there that you can have: Snickers, M&Ms, Mounds, Almond Joy, Dove, Andes Mints, Milky Way DARK (note: Milky Ways made with milk chocolate is NOT gluten-free).
  25. kbtoyssni
    The diet will seem more expensive at first because you're trying to buy gluten-free alternatives to your old gluten foods. You have to start thinking differently if you want to save money. Use potatoes or rice as a base instead of pasta. Use rice cakes or corn tortillas (you can get 3 dozen of these for $1-2) for sandwiches. Hit up a grocery store that...
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