Jump to content

dotsdots

Advanced Members
 View Profile  See their activity

  • Posts

    24

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by dotsdots

  1. dotsdots
    I'm a little over 20 years past 40, bartful. I would love one of your Christmas CDs. I guess my list would be closer to a bucket list, but I'm hoping the bucket doesn't appear until 30 more years, doggone it!! Some of the things I'm doing already, like spending time with my granddaughter by going to the Little League Softball World Series and showing...
  2. dotsdots
    Lots of good comments. So sorry that you are having a hard time. But the good news is, you are preventing more damage by going gluten free whether you can see it or not. You are preventing cancer, kidney failure, etc., etc. You are giving yourself a chance to live a normal life span. Your kidney stones could conceivably continue to exit your body...
  3. dotsdots
    How long does it usually take for blood tests to come back?
  4. dotsdots
    I am now in the process of getting tested for celiac disease. But I have had at least 100 oxalate kidney stones. (No kidding - 3 to 4 a year for almost 30 years.) I've had them zapped with a laser in the hospital 4 times, one time with complications where I had to stay a week. Plus a myriad of ER visits and stones passed on my own. The pain can radiate from...
  5. dotsdots
    Okay, I'm pretty new at this. I thought buckwheat was okay to eat. I make buckwheat pancakes for my granddaughter who has a problem with gluten. I am now being tested for celiac disease myself and have been thinking that I can at least eat buckwheat. Someone, please get me up to speed on this...
  6. dotsdots
    Our son who has autism is now an adult and lives in the duplex next door to us. He has support services from a company here in Oregon to help with his daily needs. (We moved to Oregon from Arizona in 2010 as he lost services there during the Great Recession and we had two other children and a granddaughter here. When we lived in Arizona, he lived at home...
  7. dotsdots
    What would a positive test for celiac disease look like in a full celiac panel?
  8. dotsdots
    I have trouble getting my husband to go anywhere, and he's not the one with celiac disease! Is there a support group where you guys live that you could go to together? A physical one, where you meet people in person rather than just online. (Although online support is great - it's why I'm here!) Other couples might be going through the same thing and...
  9. dotsdots
    I know this topic is a couple of years old, but I just stumbled upon it and am interested because I have had a myriad of kidney stones. I've been hospitalized 4 times for laser removal where you blast the stone. Had to stay a week in the hospital due to complications one time. I've also had many ER visits and have passed a lot on my own. They were oxalate...
  10. dotsdots
    I had the blisters on my fingers and scaling on my hands and made an appointment with my doctor. I also took pictures of it on my phone to show her. When I got to the appointment, the blisters were no longer fresh and she was unable to do a biopsy. But she said it looked like dermatitis herpetiformis and ordered blood tests. So then I started reading...
  11. dotsdots
    I am relatively new to the forum and am in the process of having blood tests run for celiac disease. I am a senior citizen with 4 adult children and an 11 year old granddaughter. My youngest daughter and granddaughter have problems with gluten. My daughter sent me literature urging me to get tested. I have been reading that mothers with celiac disease...
  12. dotsdots
    I am new to this and am still in the diagnostic stage, but would be very unhappy if I have to give up coffee. What other coffees would you recommend for someone with celiac disease?
  13. dotsdots
    Hi Ouchie! I am a new girl too, but I'm actually getting up there in years - I'm 64 and just now getting diagnosed. I have had a myriad of symptoms all my life that no one realized was celiac disease, and I've had doctors discount me too. It's so annoying and has also caused me to mistrust doctors. So I feel for you, and understand a little how you might...
  14. dotsdots
    I have an Irish, Scottish, and English background. My husband, who I believe also needs to be tested as he has symptoms, is Irish and German. I've read that people from northern European countries have a higher percentage of celiac disease than other populations. I think there might be an article on this site about that, in fact.
  15. dotsdots
    Maybe it's because everyone eats pasta - LOL!
  16. dotsdots
    My husband does. I'm bugging him to get tested also. He often has diarrhea, but since he's had it forever, it doesn't seem like a symptom to him. His father had cancer of the small intestine, which could have resulted from celiac disease that wasn't properly diagnosed. He sleeps all day, sometimes - just gets so tired he can't wake up. Our daughter has been...
  17. dotsdots
    Thank you so much! Good to get the feedback.
  18. dotsdots
    Why is it so hard to get a biopsy from dermatitis herpetiformis? I have read that positive blood work plus a diagnosis of dermatitis herpetiformis, preferably with a biopsy, is pretty much proof positive of celiac disease and that you then may not have to have an endoscopy of the small intestine. Have I missed something on this?
  19. dotsdots
    I'm kind of wishing I knew how many "more" posts I need to make, doggone it! It's frustrating being new, realizing you have an autoimmune disorder, and can't really talk to anyone yet. I have a question regarding dermatitis herpetiformis. Will doing a skin biopsy once the blisters are gone and are beginning to heal still work? I have lots of peeling skin...
  20. dotsdots
    I'm brand new to this. My children have been diagnosed as having a gluten sensitivity. My youngest daughter kept sending me info on celiac disease, thinking I should be tested also. I have had all the symptoms for 30-40 years, and no one has put it all together yet. I've been diagnosed with chronic fatigue syndrome, irritable bowel syndrome, have brain fog...
  21. dotsdots
    So, how many posts must I make? Just wondering? I have made 4-5 and haven't seen them show up? Please let me know how this works. Thank you.
  22. dotsdots
    I have ridges on finger nails and very thick toe nails with fungus. I believe it's part of celiac disease.
  23. dotsdots
    I am new to all of this and new to the forum. My doctor is having blood tests run to see if I have celiac disease. I have a rash that she believes is dermatitis herpetiformis on my fingers and the palm of my hand. I have many other symptoms - previously diagnosed with chronic fatigue syndrome and irritable bowel syndrome, have poor teeth, have constipation...
  24. dotsdots
    I posted earlier, but as I am new, have to wait a while. Just thought of one more symptom - I've shown up several times as being anemic on my blood tests...
  25. dotsdots
    I am new to this site. My granddaughter has trouble with gluten, and my daughter has been reading up on celiac disease. She thinks I might have it, or at the very least am gluten intolerant. I have done some reading also and am surprised at all the symptoms that I have that don't seem to be related. I thought you had to have diarrhea and be skinny to have...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.