LauraTX

 Epsom salt (small amount) can also help because it has direct antifungal effects. 

I would exercise extreme caution taking epsom salt off label as it is a laxative.

Hi Salaw, and welcome to the forum!  Do you have Celiac disease?  As for your lower left abdominal pain, since you have ruled out female issues, the likely cause is gas or constipation.  There are two bends in the colon in that area (see this pic:http://img.webmd.com/dtmcms/live/webmd/consumer_assets/site_images/articles/image_article_collections/anatomy_pages/colon.webp) and if you are prone to constipation, things can get hung up around there.  You can rule out gas by taking some gas-x and seeing if it helps.  If it doesn't, it may help you to do things to improve the flow of things, there is a ton of information on the internet about help with constipation, but make improvements in your diet before you try medicine or any natural remedies.

Welcome to the forum, Bluelove!  I made your post into a new topic, you will get more help here since the one you replied to was very old and the people aren't on anymore.  The original thread replied to is this one: https://www.celiac.com/forums/topic/70118-how-strictly-do-you-avoid-your-igg-reaction-foods/

Can you give us more information about how you came to the conclusion you are intolerant to cane sugar and yeast?  Also, do you avoid gluten?  Most of the people here are well versed in the gluten-free lifestyle due to their medical necessity, but not as much with the sugar and yeast.  There are a handful of people who may share that, though.

If your appointment is at the end of August, and you can schedule a biopsy very soon after it, don't discontinue eating gluten so you can be tested properly.  Think of it as your possible last hoorah with those donuts.  As georgiaguy said, If you are pretty sure you feel better off gluten and will be going gluten-free either way, his suggestion of popping in a few slices of bread per day and otherwise working on gluten-free cooking is a good one.

Yes, usually when I make it, I will use 1C of dry quinoa which makes 3-4 big servings, and it stays in the fridge well.  Quinoa doesn't overcook and change texture easily so the texture keeps, too.

I sometimes make what I call quinoa oatmeal.  I cook it up in a pot with half milk, half water, and whatever fruit like granny smith applies, a dash of cinnamon, etc.  It keeps through the week nicely.  Here are two recipes of that kind of preparation, one is DF:

Open Original Shared Link

Open Original Shared Link

Yep, the fact that your total IgA is so low, means the tissue transglutaminase IgA is not reliable.  The IgG one is positive.  It would be a good idea to look into getting an endoscopy done so you can get a biopsy and follow through with a proper diagnosis.  I would also follow up with your primary care doctor about the IgA deficiency to make sure it is just that, and not a full blown immunodeficiency,

ALVoo3 looks promising, but I am holding out for the ability to make me a new lupus-free, celiac-free, immunodfeciency-free body when I am an old lady so I can finally enkoy myelf!  LOL

User001, as someone who worked in the pharmacy world before becoming disabled by all my health issues, I can tell you confidently that many people do not read medicine labels, let-alone research something properly before taking it.  Any time something silly like these products is marketed to the world of gluten haters and Celiacs, and we can spread the truth about it, is a good thing.  There is absolutely no reason for you to be acting this hostile to any of our forum members.  There is nothing semantically wrong with the original post as it was a commonly reoccurring question on the forum at the time it was posted.

With Marsh 2 changes on his endoscopy, it is possible they also ran bloodwork but missed the diagnosis of Celiac.  If there is another GI doctor you can take him to, I would request copies of his chart from them and keep one for when he is older, and let the new doctor review what testing has already been done.  But overall, he does seem to need to be gluten-free with those symptoms.

Oh yes, I remember why I navigated to this thread today, now.  I had a great GI day!  Congrats to us all, and to those who have yet to attain it, we are here to help you through your journey!  Open Original Shared Link

Open Original Shared Link

There is a clickable link for the less tech savvy of our readers.  It is a good read.  Thanks for pointing us to it, Beth!

  

I don't think this is funny.

kareng, 

I get that you like to criticize other people's posts. But did it cross your mind that I was responding to the original post and not commenting on the post before mine? 

Some of us like to stick to the topic that the original poster started rather than get into arguments with other people commenting.

I give you the benefit of the doubt and presume that you have the best of intentions, but a lot of the time, it feels as if you are bullying other people, as you just did to me.

This is the joy of the internet and specifically, message boards.  Naturechick, you replied to the OP.  It was read by someone else as a reply to the comment above your reply, since you hadn't quoted anyone.  It does look like currantbun could use a little help in this department and not be laughed at, and the wonderful setup of the internet message board thing is going to lead to misunderstandings like this.  I don't think Karen's comment is bullying... you can really read through the thread two ways, and in one she is the one who is not nice, and in the other Naturechick is the one who is not nice.  If you read through it as given, it does seem like your comment wasn't the nice one, so it is good to get clarification that you were laughing at the overall jist of the thread.  Because poop=funny.  I don't care how old you are.

Hi Goregemom, and welcome to the forum!  Generally, the point of a gluten challenge is to make a proper diagnosis possible.  Before you go back gluten-free, you may want to look into getting yourself tested.  Also, do you know what tests were ran on the kids?  The fact that the kids show improvement on a gluten-free diet means they may have Non Celiac Gluten Intolerance, but if they haven't seen a GI specialist, you may still want to take them to one.   Sometimes people eat healthier once they go gluten-free and the improvements are from that.  Either way, especially when kids and their school is involved, you are going to want to get an official recommendation from a doctor so you can have it documented. 

As Karen said, abdominal massage can help.  You can also lay on the ground with your face down, cup your belly with both forearms, and roll back and forth a little.  Also, laying on your left side helps things escape more naturally due to the placement of the exit route.

I'm relieved to hear you were gluten-free for all those years.  I highly recommend going to see a real doctor.  I would start with a visit with your primary care doctor, and they can refer you from there.  

I would eat the cake.  I agree, you are very thoughtful, and you seem to understand the needs of the Celiac world.  I will add that you may want to do a practice run with the cake layers... sometimes gluten-free stuff comes out a bit different, so give yourself time to remake the layers if you need.  

I agree with nvsmom/nicole, I think people tend to notice it more easily.  But the main thing is that everyone is different, you just have to go with the flow

I do have a spare room where I've never had food before, would it be safer to mix up there, bring down to bake in the oven, then take back up to decorate?

It would be a great idea to do the mixing and decorating in there, less to worry about.  

AFitGirl:

 

I know some will disagree with me, but I am not quite as "anal" about possibly ingesting small amounts of gluten.  I do agree that you should be anal about avoiding foods that are likely to contain more than 20 ppm gluten content.  I was diagnosed with Celiac's 2 years ago. I do react to significant amounts of gluten, but I am not as severely sensitive as some.  For those that are severely sensitive, they do need to be very anal to avoid symptoms.

 

I have read that one research test program showed that 10 mg of gluten did not damage intestines of adults with celiacs in the program and that 50 mg of gluten did damage intestines.  So "a few molecules of gluten" may not be harmful, but you do need to minimize your gluten intake.

 

I am not as concerned about cross-contamination as some.  I try to take reasonable precautions, but I don't get paranoid about eating in restaurants or buying prepared foods that don't "guarantee" a gluten-free facility.  I do check all labels for ingredients and will not typically buy items that list products known to contain gluten. But I do consume Kikkoman soy sauce and Corona beer occasionally - both were shown in previous tests to contain less than 20 ppm million gluten, even though wheat or barley is used to produce them.  (I have read that the processing they use destroys much of the gluten.) 

 

For every meal I order at a restaurant, I do ask if the meal contains any gluten or wheat flour.  I previously had made the mistake of not asking when I thought a meal I often eat would be gluten free - but I then found that some restaurants do use gluten in the meal.  (In the past year I had two severe glutenings when I forgot to ask.)  So now I always ask.

 

So, yes you do need to always be "vigilant".  But you may not need to be "anal".

 

Redbeard52

While the over the top approach may not be necessary for everyone, I think your approach consuming corona and regular kikkoman is unwise.  Although you may not feel it, purposefully ingesting gluten containing products does harm you in the long run.  I urge you to re-think what you are doing.  You don't have to get outright glutening symptoms from something for it to cause damage in the small intestine.  A few molecules of gluten is not going to be what is transmitted through cross contamination, it is generally going to be much more, since even a tiny speck of wheat flour is much larger than a few molecules.

On the forum here we only support the spread of information from legitimate sources, and there is no science to support a person with Celiac disease purposefully eating gluten. 

Laura thanks for your info it helped me step back and tell mysel, I,m still healing, which may mean random wacky things can be experienced. Plus with having worked some insane hours on a project I'm on that physical stress can be part of being the culprit.

Thank you both for helping me not feel like I went crazy.

I have picked up their box noodle mixes, I think alfredo, and butter herb flavors, and they were pretty good.  Better than most corn pastas, which I usually don't like.

Welcome, nooblet!

A lot of people are misdiagnosed before actually getting a Celiac diagnosis, sadly.  Did your doctor tell you how bad your damage was on the endoscopy?  (May have said something like Marsh 1, Marsh 2, Marsh 3, Marsh 4, blunted villi, etc.)  Overall, the damage in your gut takes a long time to heal.  It can be months before you see changes, and longer if the initial damage was very bad, but it is totally worth it to stick it out. 

1) If you are still having stomach issues, try out avoiding dairy for a while, since a lot of Celiacs cannot handle dairy with all that damage going on in there.( Open Original Shared Link)  Same thing with oats since they have a lot of fiber and stuff, many GI doctors will tell you to avoid them for three months.  ( Open Original Shared Link  )

2) Pain in the upper right abdomen like you describe are classic signs of gallbladder issues.  If after a few months of being gluten-free that doesn't seem to be better, have your GI doctor look into that. 

3) As you seem to know, emotional issues definitely are associated with Celiac.  That, along with the gut healing, will take a bit of time.  I am sure the stress of the diagnosis process and learning how to eat again don't help with the stress.  Just try to reduce your stress level as much as you can and stick it out a while longer.  

Overall, you are just barely into your healing.  Especially with you likely having had active Celiac for 10+ years, it is going to take a while for your body to recover from the damage.  Not ten years though, thankfully  Just be very strict with the gluten-free diet for now, avoid eating out, and try to eat healthy stuff so your body gets all the good stuff it needs to thrive.  Eventually you will hit a point where you do feel better, and feeling better will also help with your anxiety.  If you haven't already, check out this thread for newbies:  https://www.celiac.com/forums/topic/91878-newbie-info-101/ and feel free to ask any other questions you may have!

It definitely seems that with your situation, it would help your happiness to have an official diagnosis.  I agree with you keeping it a secret, there is no reason to disclose things to your family that they can get on to you over.  Definitely eat gluten for 12 weeks before doing a blood test.  For an endoscopy, it doesn't have to be as long, but a lot of people do the full twelve weeks and then do a blood test and endoscopy just to make it easy.  Here is the University of Chicago Celiac Center's recommendation:   Open Original Shared Link

In the event you don't have Celiac disease, you may be able to get your doctors official opinion on you having a Non-Celiac Gluten Intolerance.  Called NCGI for short.  If there is an obvious link to your illness and gluten, the doctor will probably tell you to still avoid it, and you can bring your family member there to hear it themselves.  But, for now, absolutely go ahead and pursue a diagnosis.

I have been diagnosed with Celiac Disease over ten years ago, even when not much was  known about it.  Over the years, I have led a normal lifestyle...

Janedoe, does this mean you have not been eating gluten free?  Or have you been gluten-free for ten years?  That makes a huge difference.