LauraTX

Haha yes!

I and a few people I know eat them, and use them to make rice crispie treats.  Never heard anything otherwise.

I'm glad my suffering experiences with these kinds of things has finally helped someone!  LOL. 

I have tried the cauliflower crust before and I really liked it.  Definitely squeeze the moisture out after grating it.  But pretty good tasting.  It sticks to stuff so that is probably what the parchment is for.

Yeah, what gemini said.  Dish soap is made to rinse off, so if you feel like looking it won't hurt, but I think it isn't going to be worth too much effort.  I always buy the basic kind anyways, I avoid the ones with hand moisturizers in it and such because I don't want moisturizers left on my dishes, haha. I use seventh generation fresh citrus and ginger because I LOVE the nice mild and fresh smell, and it actually says gluten free on the back.  But I only use it because I like to sniff it while I am hard at work, haha,

Good to hear, Sara.  It will take a little time for your skin to go back to normal depending on how severe the irritation was.  Try not to try anything too new or crazy on it until you feel like it has healed up, don't want a reaction on top of a reaction, leads to a bad day, haha.

Does the spice agent process their gluten-free spices in the same area and on the same equipment as the gluten containing blends?  That is really important to know.

Do they really taste like cake?  !!!!

In general, you usually can get in to a specialist without a formal referral from your primary care doctor.  Just call up and say you need to make an appointment.  Sometimes an insurance plan will require a referral to be in place before a specialist appointment, but usually you just call the PCP's office and tell them the appointment day and they just do some paperwork.  I wonder if the doctor looks at it at all.  If not, it would be worth pushing or going to another doctor and have them give you a referral, check with your insurance company to make sure you do all of the formalities correctly so they pay for the specialist appointment.  

Great job on your part, Misty, for advocating for your kiddo.  My biological mother asked the pediatrician to do testing on my little brothers after my diagnosis and the doctor just brushed it off saying something like the insurance won't pay for it if there are no symptoms.  It upsets me greatly that she won't push to get them tested for that and another inherited disorder I have.  

Hi Christina, and welcome to the forum!

If you are going to seek out testing related to gluten problems, most of the tests need you to be still consuming gluten in order to accurately work.  So you may want to speak to your doctor before you start to go gluten free.  But it doesn't hurt to start paying attention to labels now.  If you aren't going to go through a doctor for a diagnosis, just know that if you want a formal diagnosis in the future you will have to go back to eating gluten for testing.  

Honestly, if you want to keep really detailed logs, you may just want to use your office-like app (Android uses quick office) word processor and just type out what you are eating, and that way you should be able to save it and print it out for your nutritionist.  Either that or the old fashioned standby of a small notepad, haha.  A food diary is a great tool to have when you show up to a meeting with your medical professional, it helps them help you a lot.

Livin, unfortunately yes you have to check the label on the most mundane things- Every label, every time.  A lot of the prominent name brands of baking powder say gluten free on them so I always just go with one of those.

However I do need to note, if you are in the U.S., modified food starch must say wheat on it if it is made from wheat (and that is uncommon-usually it is made from corn), so it is almost always a safe ingredient.  This page covers it nicely: Open Original Shared Link  If you are in a different country your labeling laws and practices may be different.

Great info, di, thanks  A lot of spice companies do have their regular brand, a premium line, and then a lower line.  Makes sense to me.

That is funny.  When I find something totally surprising and pleasantly unexpected I squeal with loud joy at the grocery shelf.  I also loudly go "AAAAAAGHHHH!" when I find something that I can't eat, like today was the squeezy pudding things that have flour in them.  WHO DOES THAT?!?!?!

I think a 14 year old would definitely be able to understand the advanced care of that kind of pet, and the whole "wash your hands after touching it" concept.  The only thing I can think of is, according to a quick google search, they live what seems to be 7-12 years in captivity so you may be stuck with it if she leaves home for college.  But at least it isn't a dog that will want attention all the time

This article is about fecal transplants curing C. Diff infection which is a completely different thing than celiac disease.   

It does mention that some doctors claim that this cures many other things with celiac thrown in the list but it says these are highly anecdotal and there is no real evidence.  

"Its use in C. difficile has been well established, but much of the rest is mainly anecdotal,"

Anecdotal means there is no actual scientific evidence to support these claims.

There is no current cure for celiac disease.  The only treatment is a gluten-free diet.  There are some drug trials underway for medicines you can take that will lessen symptoms upon accidentally ingesting gluten.  I understand the urge to seek out a miracle cure, but do understand the internet is full of pseudoscience and false promises.  A fecal transplant will not change the fact that your body produces antibodies against itself in response to exposure to certain things.

For a good quick breakdown on how they do a fecal transplant (FYI The article is from 2008 so it does not contain references to the more current C. Diff. research) and from this information you can infer that doing it properly/safely at home is out of the question unless you have a lot of scientific/medical equipment in your house, here is a good link:  Open Original Shared Link

...I really can't believe there are people out there that rudimentarily do this on their own at home.  That is ridiculously risky.

Mikey, if you want to seek out more information on this, no one can stop you.  But I urge you to not act on it, especially at home, unless it is done by an actual reputable medical professional in a controlled research setting.  Even then, just because someone has MD after their name does not mean they are doing everything according to good science.

As someone who seems to be sensitive to everything that is a personal care product... I have way too much experience with this.  First thing to know is product formulations change all the time.  Every time I buy something even if it is the same face wash I have used for years, I look at the ingredients and sniff it to see if the smell has changed or is stronger.  

If I were in your place (and like I said I have to do this a lot, it is a pain in my hiney) I would discontinue use of the lotion and re wash all of your clothes in one of the fragrance and dye free detergents.  I have tried tide, all,and purex and liked how they all perform, but I use all free and clear because I can get the giant thing at sams club.  I really think it may be your laundry soap because of the increased irritation around the seams of your clothing... and if any of those spots are where you do not put lotion on (wasn't said) I would definitely peg it on the detergent.  If it is a place where you do use the lotion, the seams of your clothes increase friction there and increase any existing irritation.

So anyways, If you can't notice any changes in ingredients like "new improved scent" or "new better cleaning formula" kind of thing written on one of the bottles which would peg it to be more likely one than the other, I would stop using both the detergent and the lotion and then add them back in one at a time.  Add in the one which you think was most likely not the culprit and wait about two weeks and if it doesn't do anything it was the other, and vice versa.

I like to do the thing where you get zuchinni and slice it long ways, so you have lasagna noodle shaped slices instead of noodles. For the meat like layer I get veggies chopped up really small, and sauteed in a pan until they are soft.  Mushrooms, carrots, cauliflower, squash, and zuchinni work well.  Add a little sauce to them and make those the meaty layer.  I use ricotta cheese in one layer, I don't know if there are any DF alternatives to it- I would think you could do something like it with tofu but out of my expertise area.  But definitely to replace meat go for the meaty mushrooms and use maybe more than one kind.  I am a big mushroom fan  I also like lots and lots of garlic.  Mmmm!

More entries will fill up the recent blog posts box, but I don't think it will highly bother people

Good to hear you may be able to get into the good PT place

A lot of doctors have problems with patients seeking medical care elsewhere and not telling them, and for continuity of care reasons I can understand why doctor number 2 discontinued the patient relationship.  It doesn't have to have anything to do with drug seeking behavior (of course if that is present it complicates things) but if they can't keep track of what testing and treatments their patient is getting, they can't safely treat the patient, which can lead to ethical and liability issues.  Now their policy is strict, but I understand why it is there.

If you change doctors of the same specialty it is safest for you to stay with just one.  Bouncing between two without clearly communicating what each does can create an unsafe situation for you and increase your costs as things can be done in duplicate.  Hopefully your insurance company will pay for all the visits and not tag them as duplicate depending on what kind of payment policies they have.

I understand you went back to the Dr 1 because of the lower lab costs, but if you don't trust a doctor and they completely rub you the wrong way, fire them and do not go back.  Also, when lab costs are involved, typically you can find out what the preferred laboratory is for your insurance company and use them.  If the tests were more because they are running different or more thorough tests, perhaps you should get the more thorough ones done.

Now, you may still be able to see Doctor 2.  I would call up and ask for the same person that called you, and just tell them you are sorry, you were just trying to get the lowest cost for things, but if it is okay can you terminate your relationship with Doctor 1 and only see Doctor 2?  If you do this nicely they may take you back as a patient.

If I am going to need more than just the snacks I keep in my purse at all times, I focus on protein like nuts and jerky, they keep you filled up longer.  I like the squeezy fruit stuff, too.

Yep. we're twinkies! Funny thing is now Sams club has that grill for $70 and I bought it for $80.... special spring item... lol!

Brown rice grits, 1/2 cup egg white, 2 tbsp peanut butter stirred in at the end of cooking. Pretty good stuff.

I haven't had grits in a long time, need to make some!   Every morning I usually eat a bowl of cereal and a banana, or oatmeal and a banana.  I am pretty boring.  If I make a big breakfast meal I usually make it at dinner time.

My Aunt bought me that cookbook as a surprise gift last week and I LOVE IT!   Hands down the best gluten-free cookbook out there.  They recommend their flour blend recipe 1st, king arthur flour blend 2nd, and bobs red mill blend 3rd, giving any needed adjustments for each.  I haven't combed completely through every recipe but it definitely seems like it is written towards Celiacs but they seem to avoid the Fad vs medical conversation.  It is focused more on how to make your stuff not taste like crap.  After I heal up from my surgery I am going to try out some of their stuff, I use King Arthur Flour but I may try out their blend recipe.  But great how-tos, reasons why they are doing things, etc.  

I think it is a great tool to have a few of those home test kits for when you just can't figure out what has the gluten in it.  Worth the price in my opinion.  

I checked out their website Open Original Shared Link and it looks like it is one of the gluten removed beers.  There is another one called omission that causes a lot of commotion about whether or not it is safe- I won't drink it.  Of course I was never a beer lover anyways.  But anyways, if you haven't written them to let them know, I think that would be a good idea.