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marciab

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marciab last won the day on March 19 2010

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  • blueshabooMoon

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About Me

Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)

August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...

July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)

Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)

September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

  1. marciab started following blueshabooMoon
  2. blueshabooMoon started following marciab
  3. marciab

    Happy birthday and may God bless you today!

  4. marciab
    Yes .. I have a friend who can get by with being CC'd on a regular basis, but when it finally hits, he knows he has to back off all possible gluten for awhile. He appears to be very insensitive to gluten where as I get CC'd / sick very quickly. But, it would be hard to know what extent you've been CC'd if you're eating gluten-free foods since our standards...
  5. marciab
    It could also be a blood glucose problem. Open Original Shared Link
  6. marciab
    A few months ago, I had stool testing for food intolerances by Dianos-Techs and was glad I did. It showed that I getting gluten antibodies still and that I was allergic to egg whites. I'd been making my own mayo with eggs so this was a shock. I thought I was fine with them. It came back positive for candida and some kind of digestive immune system problem...
  7. marciab
    It could be the fiber in the oats too. I have a few freinds who use oats as a laxative. Flax meal is good for this too. I started on the oats because I wanted to make oatmeal choc chip cookies for a celiac mtg. I used Bob's choc chip cookie mix and this and it turned our really well .. be sure to add some water too. I used 6 tblsp ... Then I...
  8. marciab
    The oats went down really well. They gave me a full calm feeling in my stomach that I'm not getting from the other foods I'm eating. I'm mostly Paleo so I'm mostly eating meats, fruits and veggies. I know I overdid it though ... I've always like the taste of oatmeal. Good tip on the Sunbutter. I have soy issues too but forgot about it when I was eating...
  9. marciab
    I wanted to bump this and update it ... I'm still using Himalayan, celtic and Redmond's salt. I really can't say that I've noticed any further improvement in this. I did notice on occassion that if I feel weak, a shot of salt will bring me back to life but so will eating. And I still have to eat every 2 -3 hours. I'm still struggling with chronic hypoglycemia...
  10. marciab
    I could've written this .. Narc episodes are very different from hypoglycemic. I used to try to sleep standing up. I think the only think keeping me awake was my nocturnal myoclonus (jerking when I'd go into REM). I'm working on my OI (orthostatic intolerance) now too. Sorry to get off topic, but have you tried salt loading ? It helps quite a...
  11. marciab
    Sorry to hear you're having such a tough time. I was doing this for the first 2 - 3 years but now I'm recovering quicker now. I was told it's probably because my nutrient levels are have built back up .. which is true ... my labs show this. Have you had your nutrient levels tested ? And have you tried DPP-IV ? I've heard a lot of people say that...
  12. marciab
    That was the certified gluten free one too ... I woke up with myoclonus in my hand this morning and I know it's been at least 2 years since I've done that ... It could always be a problem with oats too. I love 'em and couldn't wait to try these. Maybe my body started creating antibodies to oats proir to going gluten free since I was eating so much of them...
  13. marciab
    So far I've only tried the name brand Natural Sunbutter by Sun Gold foods .. it says gluten-free on the label. I've been ok with it .. This is my 4th jar in the last 2 months ... I forgot .. here's the leaky gut article I've been looking at ... Open Original Shared Link
  14. marciab
    Here's another article on leaky gut that goes into great detail on what leaky gut is ... Open Original Shared Link
  15. marciab
    Have you tried Sunbutter ? It's made from sunflower seeds and it's better than peanut butter .. I'm a super sensitive celiac too. It really sucks ... I'm fairly certain I'm reacting to Bob's Red Mill oatmeal now. Of course I ate it for 4 days straight so that didn't help. I don't get "D" either. At least not anymore. I had it all the time before...
  16. marciab
    I agree all this info can be overwhelming but getting your nutrient levels tested could save you some recovery time. I was tested after about a year on the diet and found to be B12 and iron deficient. I felt a whole lot better once I got those built back up. And .. I was just retested a few months ago, 3 years after starting the diet and found out...
  17. marciab
    Welcome. I had iron and B12 anemia when I was first diagnosed as a celiac too .. While I don't remember exactly how those iron pills affected me, I did have to stop them. I used a cast iron pan and ate rare beef and buffalo to get my iron back up. If it's too low a doctor can order iron IV's, but my doc thought the risk involved with these was too great...
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