cristiana
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Latest Celiac Disease News & Research:
Everything posted by cristiana
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Coronavirus more susceptible to celiacs?
cristiana replied to Jewel Pancake's topic in Related Issues & Disorders
That is interesting. Certainly, my own consultant told me I was immunocompromised as a coeliac (and I believe him in my own case, because I've had a lot wrong with me since long before my diagnosis and even since adopting a gluten-free diet) but I've read so much to the contrary ever since that I'm completely confused. I'm not medically trained so I... -
Coronavirus more susceptible to celiacs?
cristiana replied to Jewel Pancake's topic in Related Issues & Disorders
Hi Jim! Thanks for posting that. (My grandmother here in England was a great fan of your programme! I never thought I'd be talking to you like this!) It does sound as if we are not at a severe risk. I know, though, that I don't feel as well as I did before I first fell ill with coeliac disease which makes me wonder if my immune system isn... -
Coronavirus more susceptible to celiacs?
cristiana replied to Jewel Pancake's topic in Related Issues & Disorders
This is the latest advice from Coeliac UK, emailed to members today. https://www.coeliac.org.uk/information-and-support/coeliac-disease-and-coronavirus-covid-19/ It seems reduced spleenic function is an important factor affecting up to 30 per cent of us - but as this isn't really tested routinely among coeliacs, it seems we are being encouraged... -
Coronavirus more susceptible to celiacs?
cristiana replied to Jewel Pancake's topic in Related Issues & Disorders
I wonder what to make of this? (follow the link and it takes you to vaccinations) https://www.coeliac.org.uk/about-us/media-centre/news/coeliac-disease-and-coronavirus-update/ For the first time this year I was offered the pneumoccal vaccine, alongside my flu vaccine by my National Health Service nurse on the grounds I was a coeliac. I didn't... -
Coronavirus more susceptible to celiacs?
cristiana replied to Jewel Pancake's topic in Related Issues & Disorders
This is a great video - thank you. I have to say I feel deeply uneasy in crowded places, so I'm hoping that the UK government will act soon to stop mass gatherings and all those who don't need to commute will stay at home, to help those who still need travel. -
From the British Coeliac UK website. https://www.coeliac.org.uk/about-us/media-centre/news/coeliac-disease-and-coronavirus-covid-19/ I would think if it is easy to do so, it would be worth getting this vaccination. Things are just taking off here in the way they did in Italy a month ago.
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Hi Laura I'm so pleased you found answers. This is very encouraging. Seven years on from my own diagnosis I wish I could have some vitamin and mineral screening, I'm sure I'm still deficient. Cristiana
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Hi Posterboy Thanks so much for posting these helpful links. I do think that PPIs dished out at a drop of a hat here in the UK, but it's important to find out if they are really needed. There have been a few instances when I've been given a PPI prescription. Once I was prescribed omeprazole when I had very sore, burning stomach pain but it turns...
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Just by way of conclusion, folks, tests revealed nothing (endoscopy, chest X-ray) so it has been concluded I have silent reflux. Very relieved, but also surprised at how much trouble it has caused! I have actually met someone recently who has been coughing up blood, had all the tests, and she too has had a diagnosis of silent reflux! I've found that...
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How funny! I was just online and this notification came up! I'd even forgotten I'd posted it! It's taken over a year for someone to respond - but thank you!☺️ I don't think it can have lasted very long as I'd forgotten all about it. However, my friend has had it for years and now says HRT has helped. I do get sick headaches occasionally and...
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Hi RMJ Anyone can have one - the pharmacies provide them - but if you want a free one, paid for by the National Health Service, you have to meet certain criteria: https://www.nhs.uk/conditions/vaccinations/who-should-have-flu-vaccine/#flu-vaccine-for-people-with-medical-conditions The NHS is brilliant, but under great pressure, so a lot of...
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Thank you all, things are a lot clearer in my mind now.
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I've just found this... it looks as if Coeliac UK are saying the need for flu jabs should be decided on an individual basis. Perhaps rather than assess people on an individual basis, it's just easier to give all us coeliacs the injection! However, there is an interesting bit of information included in this which discusses reduced splenic function ...
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Thank you so much everyone for responding. As I see it, then, coeliacs are no more at risk than any other health individual of catching flu? But if that is the case, I wonder why we are given flu shots in the UK, along with diabetics, the elderly, etc? I'm still a bit confused.?? Oh... but just editing this as I have only just seen the info about...
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Hello everyone I'm very confused... maybe someone can help?! I'm given flu shots and even this year was offered a pneumonia vaccine because I'm a coeliac and presumably considered to be more vulnerable. When I asked about this the NHS doctors said to me, being a coeliac is an excellent reason to have these injections. And yet this report (it dates...
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I'm finding the same - at the beginning I was taking it as and when I needed it which was not what the doctor instructed. She told me to take it four times a day, two puffs each time, and now I'm finding it is really helping. I have bought a wedge which I sleep on but I find I end up slipping off it at night, and sleeping in that position triggers...
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It is amazing that your are seeing these results. Great news! I am awaiting biopsy results from my endoscopy to see if there is some sort of allergic reaction going on. I guess if they don't find anything in my esophagus they will need to look at my respiratory tract. I'll keep you posted.
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I remember being told once that, words to the effect, celiac disease is a lot more complicated than people realise, and about the "intricacies of a gluten free diet". Now, seven years down the line, I cannot believe how complicated a journey it has been. I don't think the doctors could afford to spend the time explaining the half of it to us! Thank goodness...
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Wow... it sounds like you are getting somewhere! I had to google the condition as I wasn't sure what it was, then I realised that in the UK we call it Glandular Fever. It would explain so much of what you are going through. You must be so relieved to be getting some answers. Thank you so much for your update. I will certainly discuss this with...
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Next question... Still on this thread, assuming that my problems are caused by GERD, when all the websites say avoid chocolate, tomatoes, onion, garlic etc... is this because said ingredients actually irritate an alread irritated esophagus when you swallow them, or is it because they cause extra acid after you have swallowed them? I'm a bit confused...
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Thank you for the tip on zinc. Funnily enough, I was wondering if anything might coat the mucus membranes to help against viruses and infections - you've answered this question. It's also good to know that synthetic A, E and folate can cause cancer. I really need to put some research into decent supplements, and improved nutrition.
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Cyclinglady... that's rather alarming about the OTC, prescription drugs and supplements, I didn't realise. Thank you so much for the heads up on that. We have a system in the UK where you can look for a product licence number on a pharmaceutical product and if there is one, it guarantees that the medication is gluten free. But now I am wondering? It...
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Thank you for posting this, but I'm so sorry you have had this problem for so long. Out of interest, did they say what caused your esophagitis? I've been googling causes and healthline direct (https://www.healthline.com/health/esophagitis#types) states that apart from reflux, it can be caused by eosinophils (what my gastro thinks I have) triggered...
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Yes... and oddly I did see your response and pretty sure I "liked" it - how bizarre. I wonder where it went. I think I need to really up the nutrition and supplements. I've now got a really bad sore throat caused by a virus (it's doing the rounds here) which has added pain to the mix. I have an endoscopy next week but it can't come soon enough! I...
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Knitty Kitty.... this is so so interesting. Some of my blood tests are suggestive of deficiencies. Pre-coeliac diagnosis I was eating bread and breakfast cereals with lots of added vitamins and sometimes iron. Now those same gluten-free foods that I eat have nothing added. There is a Spanish study that shows women with chronic coughs improved...
