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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Diagnosing Toddlers
tarnalberry replied to carrie11777's topic in Parents, Friends and Loved Ones of Celiacs
Two bits of advice: 1) If you strongly suspect food-based reflux but really don't want to put her on meds, try eliminating things from her diet. (Be very careful that she still has a well balanced diet, however.) Try removing a food for at least a week, better three or four, and see if there is ANY change for the better. Dairy is the biggest dietary... -
ARCHIVED Lactase Supplement -- Silly Me...
tarnalberry replied to Monklady123's topic in Coping with Celiac Disease
That means that it would be time to explore more foods to eat. Keep in mind that different brands of alternative milks taste differently (one brand of hemp milk may be awful, the other acceptable). And that you may have to explore not just different things to eat, but a different approach to eating. (Ethnic cuisines can be a big help here.) -
ARCHIVED Thanks
tarnalberry replied to loubyloo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Even without prescriptions, you can eat gluten free. Just get naturally gluten free whole foods. No prescription needed for beans, rice, veggies, fruit, and meats. -
ARCHIVED So, Tell Me Why I Need This Endoscopy....
tarnalberry replied to Monklady123's topic in Coping with Celiac Disease
Because doctors don't like to believe subjective evidence provided by patients. They much prefer "repeatable", "objective" tests that someone else does and reports the results. At least for a lot of things, they do. -
ARCHIVED Can't Control Hypoglycemia And Celiac Together? Help :o(
tarnalberry replied to Melissaann829's topic in Coping with Celiac Disease
you may want to start keeping track of what you're eating and it's carb content. white rice and potatoes are going to leave most hypoglycemics feeling like crap. balancing protein, fat, and carbs at every single meal is important. (even snacks.) while I do best with something around about 25%protein, 25%fat, 50%carbs, the ratio that works best varies... -
ARCHIVED Lactase Supplement -- Silly Me...
tarnalberry replied to Monklady123's topic in Coping with Celiac Disease
The lactose free milk is sweeter because all the lactase enzyme does is split a two-sugar molecule, lactose, into it's two component sugars - glucose and galactose. Those sugars (the glucose in particular) tastes sweeter (activates more "sweet" taste receptors) than lactose does. No difference in the amount of sugar in it, just a difference in how it affects... -
ARCHIVED Pregnant And Celiac Testing
tarnalberry replied to bincongo's topic in Related Issues & Disorders
If she is eating gluten, then she can have the regular antibody bloodwork done now. She can have the gene test done regardless, but many people carry the gene without it being activated (celiac disease requires both the gene and a trigger to activate it) so it won't really tell her if she has it or not. (To top it off, the US, especially, only tests for... -
ARCHIVED Doing A Gluten/dairy Free Challenge W/ 7 Yr Old
tarnalberry replied to srall's topic in Parents, Friends and Loved Ones of Celiacs
There's a lot of space between gluten free junk food and fish and salad. I had eggs on refried beans for breakfast (maybe she'd eat just the beans - perhaps with some avocado on them?) Fruit smoothies are also good. It may mean experimenting with other foods, but there will be something that everyone will eat. -
ARCHIVED Are Oats Really Gluten Free?
tarnalberry replied to Natalya's topic in Gluten-Free Foods, Products, Shopping & Medications
10% of celiacs have a gluten reaction to oats, because the oat protein (avenin) is molecularly similar to the wheat protein (gliadin). -
ARCHIVED Questions About A Loved One
tarnalberry replied to Dixiebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It may help them the most if you can help them transition to a naturally gluten free diet. Maybe a cookbook or file of recipes that relies primarily on inexpensive, gluten free items like beans, lentils, and rice. -
ARCHIVED Shared Kitchens?
tarnalberry replied to TwitchyMcLurcherson's topic in Coping with Celiac Disease
It's not that you can't have a mixed kitchen, it's that - unless you do a thorough, deep clean of the kitchen EVERY TIME YOU GO IN THERE, the people sharing the kitchen have to do their part as well. If he is leaving bread crumbs on your cutting board (as you say in your first post), he isn't even close to doing his part - he is knowingly making you sick... -
ARCHIVED Questions About Millet And Oat Flours
tarnalberry replied to OHgal's topic in Gluten-Free Recipes & Cooking Tips
While many celiacs do not tolerate oats, oat flour is a fairly close substitute for wheat flour. (I used to use it all the time before I was gluten free.) -
ARCHIVED Develop Celiac Disease At 35
tarnalberry replied to uruboy02's topic in Introduce Yourself / Share Stuff
Celiac disease requires the genetics, and a "trigger" to turn the gene expression on. That trigger can occur any time during life. -
ARCHIVED Shared Kitchens?
tarnalberry replied to TwitchyMcLurcherson's topic in Coping with Celiac Disease
Any chance, then, that this is a case of "I know what I need to do, but I don't want to have to do it"? At the least, you may find that you have to move out - you need *someplace* that you can be safe, and it doesn't sound like it's with your husband. (And I'm just talking about food, not even the emotional aspect.) -
ARCHIVED Pasta Alternative?
tarnalberry replied to SayJay's topic in Gluten-Free Recipes & Cooking Tips
Tinkyada is the most popular of most of us, though a few don't like it. You can also just use other things - spaghetti sauce on rice or potatoes, for instance. -
ARCHIVED How Do I Teach A Grandparent To Be Vigilent?
tarnalberry replied to twohokies's topic in Parents, Friends and Loved Ones of Celiacs
If she won't take responsibility for watching kids (which means taking responsibility for what they get into (food, sharp objects, electrical sockets, whatever) then she should never be left alone with a small child. She sounds completely unsafe. -
ARCHIVED Shared Kitchens?
tarnalberry replied to TwitchyMcLurcherson's topic in Coping with Celiac Disease
I am going to suggest that you two go to couples counseling. It's like telling your asthmatic spouse that you won't stop smoking in the house. If he doesn't care that you are getting sick, it's not an issue with the food that's the source of the problem - it's the person. -
ARCHIVED Bread Cost Effectiveness
tarnalberry replied to SayJay's topic in Gluten-Free Recipes & Cooking Tips
For many of us, myself included, it's simpler to just get rid of bread. There are lots of things to eat besides sandwiches! -
FWIW, restless leg CAN be painful. (Though I'm not saying that you're trying to describe restless leg.)
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ARCHIVED Diagnosed Celiacs And Not Following The gluten-free Diet 100%?
tarnalberry replied to SaraKat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't have super bad reactions. I could still work and do all the regular stuff I did. I still don't have super bad reactions. But I stay completely gluten free, because it's just silly to knowingly eat something that you know makes you sick. -
ARCHIVED How Much Wheat Does My Child Need To Consume For Blood Test?
tarnalberry replied to mama2kade's topic in Parents, Friends and Loved Ones of Celiacs
For adults, the common recommendation is three to four pieces of bread a day for three months. A few days is NOT enough to test for celiac, because the blood tests require enough damage to the intestinal villi that significant amounts of antibodies get through to the bloodstream. That takes a while of accumulating damage. -
ARCHIVED Diagnosed Celiacs And Not Following The gluten-free Diet 100%?
tarnalberry replied to SaraKat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm going to take the other side of the argument and say that I think it's a mistake for people to be so short sighted that they're willing to make major sacrifices in quality (and length) of life later for a few moments of taste now. But that's true of more things than just food.... -
ARCHIVED Are Some A Little Ocd?
tarnalberry replied to realmaverick's topic in Coping with Celiac Disease
Like anything in life, you have to figure out how far you want to go. Does everyone need to be paranoid about door handles? No. Does everyone need to avoid sharing scuffed up old plastic colanders used for pasta? I'd say yes. You have to figure out what *your* particular line is, but let prudence, rather than resistance to change, be your guide... -
If you have a shared kitchen, and are eating prepackaged gluten free items, you mayt still be getting contamination. Some people are VERY sensitive, and have to avoid all processed foods, have a dedicated kitchen, and some avoid even gluten free grains, which a recent study has show may tend towards contamination just from the process of growing/transporting...
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ARCHIVED Intestinal Recovery Rate
tarnalberry replied to bincongo's topic in Related Issues & Disorders
Well, keep in mind that studies also find that fewer than half of all diagnosed celiacs actually stay strictly gluten free.