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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED How Many Parents And Kids Have Celiac?
tarnalberry replied to shezatrip's topic in Parents, Friends and Loved Ones of Celiacs
Because it is not genetics alone that determines if someone has celiac disease, no, I would not put my child on a gluten free diet without some other reason than myself needing to be gluten free. Something has to "activate" the gene, as it were, and in MANY people, that never happens. Some variety of symptoms (be it gastointestinal, neurologic, behavioral... -
ARCHIVED Hope I Don't Offend Any Of You Southerners, But....
tarnalberry replied to Monklady123's topic in Coping with Celiac Disease
Bob's Red Mill makes millet grits. I often have them with breakfast, cooked in almond milk and a sprinkle of flax meal, with either sugar/cinnamon added, or frozen fruit, or jam. Reminiscent of the steel cut oat texture. Tasty. -
ARCHIVED Problems With Support Groups
tarnalberry replied to Wise's topic in Introduce Yourself / Share Stuff
On the first statement, I couldn't disagree more. I don't consider myself formally diagnosed since I didn't get the biopsy, but I - and my husband - do not have doubts about it. Do some? Sure. But celiac diagnostic status does not determine a person's personality. On the second statement - so you found a group that didn't have the goal you wanted it... -
ARCHIVED How Careful Are You With Pots/pans/dishes/counters?
tarnalberry replied to tinkity's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
cast iron can never really be scrubbed well enough. you need dedicated cast iron if you're going to use it. stainless steel (or anodized aluminum) will generally be cleanable if you want to share it, but I don't. you do need your own cutting boards, and porous materials (colanders, wooden spoons, etc.), and things like toasters. ceramic plates, glasses... -
I really wish that our country would "get with the times", as it were, for those sorts of situationas and promote the donation and use of donated breast milk.
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Yes, it is safe to breastfeed while gluten free! It's healthier!!! If you get gluten, it will pass through the breastmilk, but will only cause any effect if the baby is also gluten intolerant/celiac. Fair warning: I'm a closet lactivist working her way out of the closet. Formula is the right choice for some families, but IMHO, there is not enough...
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ARCHIVED Does Anyone Have This Problem?
tarnalberry replied to Rowena's topic in Related Issues & Disorders
I have a bunch of stretch marks from going from 0 to puberty in one summer. Hips and boobs. Over time (think a year or two or three), they will fade such that you can barely see them - and other people will be able to see them even less than you can. They won't ever disappear completely, and there is nothing that has any evidence behind it for helping... -
Telling yourself you have no willpower is just a self-fullfilling prophecy. You can have that willpower, but it's like a muscle - you have to exercise it in order to have it. Keep practicing/exercising it and you'll get there.
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ARCHIVED Problems With Support Groups
tarnalberry replied to Wise's topic in Introduce Yourself / Share Stuff
I think the problem you describe has nothing at all to do with the diagnostic status of the person in question, and everything to do with his/her personality. Not saying someone is "too negative" or having the same reactions that you do or having osteoporosis - none of these things are required with celiac disease. As someone who decided NOT to make herself... -
You said you added a lot of dairy. Were you guys eating a lot of dairy before? Lactose intolerance is not uncommon in the general population at large, and is even more common in celiacs, particularly early in their gluten-free diet experience. You may want to try cutting out dairy or using lactose free products or lactaid.
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ARCHIVED More Cross-Contamination Advice
tarnalberry replied to HonoluluVic's topic in Coping with Celiac Disease
This. Clearly I don't mean "dump him now", but rather, if you can't get him to care about your health, well... does he care about you? Will he go with you to the doctor? Will he talk to a counselor about the issue? Will he discuss it at all? -
ARCHIVED Blood Test Soon - Purposefully Eating Gluten....
tarnalberry replied to OpheliaBee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
exactly what mushroom said. you have to do significant enough damage to make sure that you're producing lots of auto-antibodies and that they can escape the GI system (which they shouldn't be able to do in a healthy situation) and can be detected in high enough levels in the blood. 3-4 slices of bread for 3 months gives you decent odds on not getting a... -
ARCHIVED Food Looks The Same In Her Poop..
tarnalberry replied to norahsmommy's topic in Parents, Friends and Loved Ones of Celiacs
While that's not abnormal in babies just starting solids, the fact that you're seeing it shift means that there's a problem. I think you're on the right track. Honestly, I'd keep him gluten free, and if you want to try challenging in a few years when he can better communicate, great. But for now, there's nothing inherently unhealthy about the gluten free... -
ARCHIVED Holding Toddler?
tarnalberry replied to mham1126's topic in Parents, Friends and Loved Ones of Celiacs
I would definitely try eliminating dairy. My 7month old will often start fussing if I sit down - it's usually if she's tired or not feeling well. There's something about the motion of standing, and the change in pressure on their bodies, that seems to make a difference. Good luck!! -
ARCHIVED Cross Contamination From Laundry?
tarnalberry replied to Trymester's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've not only never had an issue with laundry, we wash the baby's cloth diapers in the wash - exclusively breastfed poop just goes right in. I think if poop will wash out, the gluten will as well. -
ARCHIVED Whistler Anyone?
tarnalberry replied to jasonD2's topic in Introduce Yourself / Share Stuff
there's a market in the main shopping area. it has plenty of options. (I usually stay at a rental unit and cook my own meals when I go to Whistler.) I do like the sushi place in Whistler Village, though. -
ARCHIVED Dealing With The Holidays - Presents
tarnalberry replied to jparsick84's topic in Coping with Celiac Disease
Be thankful for the thought (even if it was fleeting and not fully formed) and pass it on to someone who will enjoy it. Then, you get to be a part of making two people happy! -
ARCHIVED 18 Month Old Being Tested
tarnalberry replied to mavsmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would call the GI ahead of time and get their opinion. Personally, I would take my daughter gluten free in that situation. It's important for babies to continue their growth, not just physically, but neurologically, and I wouldn't want to continue stunting her growth. Without a total IgA, the antigliadin IgA test is worthless. You have positive blood... -
ARCHIVED Me Again - Sorry - About My Daughter
tarnalberry replied to macocha's topic in Dermatitis Herpetiformis
Dose anything else go on her skin? Soap (she could try avoiding it)? Shampoo (try baking soda & vinegar, perhaps)? Lotion (try olive oil?)? Detergent from laundry? Is there any other doctor you can get to sooner? -
ARCHIVED Invited To Boss's House For Holiday Meal
tarnalberry replied to laura4669's topic in Coping with Celiac Disease
I would simply, but firmly, state, "I have a number of food intolerances that make it very difficult to cook for me without getting me sick. I'd rather not put you through the trouble or take the chance of being ill for the holidays. I will bring my own small dish, so please don't worry about me being hungry. I look forward to getting to spend time talking... -
ARCHIVED How Not To Make My Dh Flare Up
tarnalberry replied to Lincoln's topic in Dermatitis Herpetiformis
DH can take quite a while to clear from your system, even while gluten free. Do make sure that everything is gluten-free and that you aren't getting any cross contamination. For those with DH, topical products that are gluten-free are really the best bet. Also, for the time being, eliminate sources of iodine from your diet, as iodine is required in the... -
ARCHIVED Nervous About Medications At Hospital Being Gluten Free
tarnalberry replied to zeta-lilly's topic in Related Issues & Disorders
I apologize for the presumption, and I hope you have a successful VBAC. I have had a baby naturally, and most everyone I've heard who had a c-section has noted that the recovery is rather unpleasant. -
ARCHIVED Parents Visiting After Baby Is Born
tarnalberry replied to SGWhiskers's topic in Introduce Yourself / Share Stuff
With a seven month old, a lot of similarities, lots of friends with newborns, and working with a lot of pregnant moms, I have lots of advice to offer. As with all advice you're getting, though, I want to encourage you to take it with a grain of salt, and see only if it resonates with you (or the contrary). In this vein, I offer the general advice that my... -
ARCHIVED Poll: gluten-free Diet - Easy Or Hard
tarnalberry posted a topic in Coping with Celiac Disease
Fairly straightforward poll here about whether you find the gluten free diet hard or easy and how long you've been on it. I realize that this is a simplification of the situation - that's the whole point. This isn't a "I find the gluten free diet convenient or not" sort of question, but rather "in the sum total of your life (not just the holidays, work... -
ARCHIVED People Who Think It's So Easy....
tarnalberry replied to kristianne75's topic in Coping with Celiac Disease
Eh, I don't understand this one. It's no claim to say I'm gluten free - I am. (And dairy free.) And I don't think it's hard. I don't know that I'd say "it's so easy", but I do say "it's not difficult". Then again, I see nothing wrong with eating meat and vegetables. No one said it had to be "plain" in taste to be safe. We make soups and stir fry...