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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Painful Bm's In 1 Yr Old
tarnalberry replied to norahsmommy's topic in Parents, Friends and Loved Ones of Celiacs
The autoimmune reaction in the gut can sustain itself for up to two weeks. So, seeing symptoms for a few days, then her getting glutened again and seeing more days of symptoms, is not all that unusual. She is, though, if she's getting gluten that often, NOT (for medical purposes) on a gluten free diet and is at risk of all the things that come along with... -
You're only thinking about the cost to yourself. Only 1% of the population is celiac; only 1% would need this testing. But you would increase the cost of the drugs for EVERYONE who used them - including those who don't need it. If that's a $5 increase in cost per prescription, that's $95 out of $100 dollars that is being spent to NOT help people. I'm...
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I don't find it hard at all to cook gluten free.
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ARCHIVED Tried The Tinkyada Pasta
tarnalberry replied to TPT's topic in Gluten-Free Foods, Products, Shopping & Medications
I've never had Tinkyada be mushy. Like one of the other posters, I start checking it at half way and stop when it's al dente. Usually less time than what's one the package. The other important thing is making sure that you've got a good rolling boil for the bulk of the cooking. (I do use the brown rice version, not white rice version.) -
ARCHIVED My Family Just Doesn't Get It
tarnalberry replied to jasonD2's topic in Coping with Celiac Disease
Well there's your problem. Those two things are totally unrelated. They can (and should) RESPECT your choices. But they don't have to (and may never) UNDERSTAND them. For people who have a hard time *understanding* the issue, I find it's much better to ask them NOT to try to understand, just respect my decisions even when they disagree. That's a common... -
ARCHIVED "No, No Wheat In There, Just Bread."
tarnalberry replied to Monklady123's topic in Coping with Celiac Disease
This is where I stare and say "and bread is made from.....?" -
ARCHIVED I Want To Quit My Job!
tarnalberry replied to Rowena's topic in Introduce Yourself / Share Stuff
Have you talked to them about this? What do they say? Is it a large enough place to have HR? -
ARCHIVED Need To Get A Job, So Nervous To Leave Daughter With Someone!
tarnalberry replied to norahsmommy's topic in Parents, Friends and Loved Ones of Celiacs
the skin test doesn't test for celiac - it tests for an allergy. they are two different things. not only that, but the skin tests are notoriously unreliable for diagnosing food allergies. his advice - eliminate it and then challenge - is the best way to figure out what food is bothering her. unfortunately, your family's work on ignoring doctor's orders... -
ARCHIVED I'm A Newbie...need Help Understanding Cc!
tarnalberry replied to Free-CountryGirl's topic in Coping with Celiac Disease
gluten may or may not come off in the dishwasher - it is sticky. a good scrubbing with a scouring pad may be more effective in some cases. (this is why we suggest replacing collanders - pasta bits get stuck in the holes, and you can't scrub the inside of the holes. if it's plastic, you can't scrub out the scratches, nor can the dishwasher clean them out... -
ARCHIVED So Hard To Cope With Thanksgiving
tarnalberry replied to terri's topic in Coping with Celiac Disease
I went to a family friend's house for Thanksgiving once. Everyone thought for sure the mashed potatoes would be ok. She even got dairy free margarine to use since I'm dairy free too. But many people use some variety of liquid in their potatoes when making mashed potatoes, and the Swanson's Organic Chicken Broth had gluten clearly listed on the label. ... -
I am sorry for your loss. ((hugs))
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ARCHIVED Accidentally Glutened While Pregnant?
tarnalberry replied to Laennie's topic in Related Issues & Disorders
While I was pregnant, I SIGNIFICANTLY curtailed going out - and we didn't do it much to begin with. Just two places that I felt safe with (sushi and thai). It meant more cooking at home, but it's worth it to be not quite so paranoid. -
ARCHIVED Gas & Heartbeat - Possible Cure
tarnalberry replied to Wind's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Nothing particularly amazing about it - the breath is tightly connected with the nervous system. The inhalation preferentially activates the sympathetic nervous system (fight or flight response - increased heart rate and pupil dilation, decreased digestion, amongst other things). The exhalation preferentially activates the parasympathetic nervous system... -
ARCHIVED So Hard To Cope With Thanksgiving
tarnalberry replied to terri's topic in Coping with Celiac Disease
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I'm hoping I can get out skiing this year. With the breastfeeding baby, it's more challenging. Though, I have to admit, if I'm going out of state, I'm heading to Whistler, not Utah. (It's also much closer. )
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ARCHIVED Accidentally Glutened While Pregnant?
tarnalberry replied to Laennie's topic in Related Issues & Disorders
A single accidental glutening will not cause a miscarriage. Repeated exposure to gluten (if you are gluten intolerant or celiac) does increase the risk of miscarriage. Certainly don't freak out about a single incident, but do be quite vigilant. -
We've got about five inches of snow at our house, but I have an Outback (and even have chains for it for icy conditions, just in case), so my husband was able to get to work. If Daphne wakes up before it gets dark, I might walk over to the store - we're lucky that it's can be a pretty short walk (~5-10min) if we shortcut through our backyard. It's looking...
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ARCHIVED Oats At A Gluten Free Bakery
tarnalberry replied to tbritt's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't think it's fair to insist that a bakery eliminate an ingredient that makes a big difference improving the quality of goods for 10% of their potential client base. Heck, it's not even good business sense. But it's good that you let them know, so that they can make sure to label their food properly so that people can make a decision. (ALWAYS suspect... -
ARCHIVED Non-Compliant Celiac Breastfeeding Harmful To Baby?
tarnalberry replied to sadii7's topic in Related Issues & Disorders
While it may be hard to find, and cost money, I would HIGHLY recommend a THOROUGH search for physical therapists, occupational therapists, and MD's who specialize in breastfeeding. (Open Original Shared Link should help locate someone.) Yes, it may be expensive, but it's cheaper than having to use formula in the long run, (both in health care costs and... -
ARCHIVED Which Baby Washes And Shampoo's Are Gluten Free?
tarnalberry replied to norahsmommy's topic in Gluten-Free Foods, Products, Shopping & Medications
avalon makes one, but it's pricey. burts bees also makes one (but read the labels). -
ARCHIVED Non-Compliant Celiac Breastfeeding Harmful To Baby?
tarnalberry replied to sadii7's topic in Related Issues & Disorders
On of the amazing things about breastfeeding is that it's moderately immune to nutritional deficiencies in the mother's diet. She will get osteoporosis and iron deficient anemia before her milk has too little calcium or iron. -
ARCHIVED Non-Compliant Celiac Breastfeeding Harmful To Baby?
tarnalberry replied to sadii7's topic in Related Issues & Disorders
I don't think that anyone knows. There are a lot of things that they don't know the effect of passing through breastmilk. If the BABY may be celiac, then she should absolutely need to be gluten free, as gluten passes through breastmilk. But it's not so clear whether or not anti-gluten antibodies in breastmilk are a problem. -
ARCHIVED Oceanspray And Fruits In General
tarnalberry replied to fakename's topic in Gluten-Free Foods, Products, Shopping & Medications
I have never seen date pieces that are NOT coated in oat flour. Every store, every package, even those in cereals. Whole dates are an entirely different thing. (And if you've ever eaten whole dates, you know why!) So, in this case, I certainly couldn't point to a single brand, because it's every single one I've ever seen from those at Trader Joe's to... -
ARCHIVED Oceanspray And Fruits In General
tarnalberry replied to fakename's topic in Gluten-Free Foods, Products, Shopping & Medications
dried date pieces are regularly dusted in oat flour to prevent sticking. it is, however, the only dried fruit - and fruit that is "just fruit" of any kind - I know of that is processed as such. -
ARCHIVED What Do You Do When You Are Dairy And Soy Intolerant As Well?
tarnalberry replied to norahsmommy's topic in Gluten-Free Recipes & Cooking Tips
I don't really use them anymore - I've switched to making things that don't require them or find unusual substitutes (avocado for ricotta in lasagna, for instance). Almond milk (and the other non-dairy, non-soy milk subs) and coconut milk (either the thicker canned ones or the thinner drinkable "So Delicious" stuff) work as fluid milk substitutes.