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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Gluten Free Before Conception
tarnalberry replied to sanamy's topic in Related Issues & Disorders
If you aren't dealing with a number of other issues that you need to heal (low iron, osteopenia, etc.), then I would wait as long as it took for you to feel CONFIDENT that you can be 100% gluten free. -
ARCHIVED New Here But, Not New To Celiac Disease
tarnalberry replied to oldmann1's topic in Coping with Celiac Disease
what are you getting for fat in your diet? I don't see a whole lot of protein sources, and not much at all in the way of fat. both of those are important (at every meal) to balance blood sugar levels. -
ARCHIVED Thoughts After Recent Blood Test
tarnalberry replied to miobrien's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
have you had your iron levels checked? fatigue and restless leg are both connected to low iron levels and iron stores. -
ARCHIVED Elimination Diet - Feel Like Crap!
tarnalberry replied to JenniferLynn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Also, are you getting enough food? When we eliminate a number of things, we may not get enough food (or eat a lot of things that bother us). For me, I have to watch that I get enough (and balanced enough) food to avoid the horrid low blood sugar headaches that accompany hypoglycemia. -
ARCHIVED Vulvodynia And Celiac Disease
tarnalberry replied to pellegrino's topic in Related Issues & Disorders
Dr. John Willems at the Scripps Clinic in La Jolla is one of the top doctors in vulvar disorders in the country. (Not quite as well known as the ones on the east coast, but he's been treating and researching on it for years.) It (as of seven years ago) took about six months to get in to see him, but is absolutely worth the wait. -
ARCHIVED Is Generic Amerge (Naratriptan) Gluten-Free?
tarnalberry replied to Alison2's topic in Gluten-Free Foods, Products, Shopping & Medications
The statement you got from the manufacturer is a standard cover-your-arse statement, and many of us will forego the legal nuances and use such products. BTW, if you are using rescue medications for migraines more than once a week, you should talk to your doctor about prophylactic treatment. Triptans aren't fabulous for taking often (though I understand... -
This is what we plan to do. The house is mostly gluten free, aside from a few things my husband eats. But I have no doubts that a baby/toddler is a messy eater, and if I let her eat gluten in the house, I will get sick. So she will be gluten free at home, and (if she is not gluten intolerant) will have the option to have some at home. (Her dad will get...
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ARCHIVED Snacks?
tarnalberry replied to ToriMartin's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
carrots and hummus apples and peanut butter -
ARCHIVED Anyone Know How I Can Put Weight On?
tarnalberry replied to jasonD2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I want to echo this sentiment. Depression, anxiety, and chronic stress can all cause digestive issues all on their own - ones that may mimic "food intolerances". In fact, if almost all foods give you problems, I wouldn't be looking for specific foods, but other things that are a constant instead. Chronic stress on the body (be it emotional, psychological... -
ARCHIVED Gas On My Date...why? ;)
tarnalberry replied to jasonD2's topic in Coping with Celiac Disease
carbonated beverages make me pretty darn burpy. some people don't burp nearly as well as they pass gas out the other end. do you feel this way when you get carbonated beverages? -
ARCHIVED Its Been Suggested My Toddler Has Celiac Disease
tarnalberry replied to dj-rose's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
there are many cultures that do not eat wheat regularly - anyone can thrive perfectly fine without wheat, barley, rye, or oats. we have a culture that tends to rely upon these items for calories (and I won't say nutrition, because there are more nutritious foods out there), so it's a very hard habit to break, but there is nothing unhealthy about being gluten... -
ARCHIVED Breastfeeding-- Does Gluten Travel Through Breastmilk?
tarnalberry replied to BrooklynFamily's topic in Parents, Friends and Loved Ones of Celiacs
RiceGuy: she's not gluten intolerant/celiac, her first kid is. So, no antibodies to pass to the fetus. BrooklynFamily: yes, gluten is passed through breastmilk in such a way that a celiac baby would be adversely affected. celiac is not always "activated" at birth, so it's your choice whether or not to wait to see if the newborn has problems or not... -
ARCHIVED Camping Gluten-Free
tarnalberry replied to grechn's topic in Parents, Friends and Loved Ones of Celiacs
For what it's worth, when I backpack, I often make regular meals (like chili or soup) and dehydrate them. Only needs water to reheat. -
ARCHIVED 1 Month Gluten Free - Still Some Hiccups
tarnalberry replied to IveGotEffinCeliac's topic in Coping with Celiac Disease
It certainly can be, but - for me - it developed years after going gluten and dairy free. Good luck figuring out the sleep issues. A chronic lack of sleep is murder on the body, throwing MANY systems out of whack and creating problems that you might not ordinarily assign to sleep. -
ARCHIVED Negative Biopsy And Negative Blood Test
tarnalberry replied to MacieMay's topic in Parents, Friends and Loved Ones of Celiacs
Tests in children under 2 are notoriously unreliable. How does she do on a gluten free diet? -
ARCHIVED One More Poop ?.......black Poop?
tarnalberry replied to brendab's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The chemical reaction in the intestines that is "glutening" is self sustaining and can last up to two weeks. This could well be from the barley. -
ARCHIVED Road Trip With Gluten Sensitive Kids
tarnalberry replied to JessAnn's topic in Parents, Friends and Loved Ones of Celiacs
This! Even if it's mostly regular supermarkets and no specialty stuff, for four days, you guys can make it. (Heck, Bush's baked beans out of a can (no heating) are still tasty!) -
ARCHIVED Gluten Free Cooking...what Kind Of Cookware?
tarnalberry replied to tweeks2010's topic in Coping with Celiac Disease
I'm partial to my Calphalon anodized aluminum. (NOT the non-stick stuff. Non-stick is useful for a few things - eggs, pancakes - but the opposite of helpful for many other things.) If you think you can keep a few things reserved for your use only, I would get a cast iron skillet, because they're useful for some things (especially for getting more iron... -
If you ever need to make use of the disabilities act, a documented diagnosis is worthwhile. If you want to get your children tested based on family history, a documented diagnosis is helpful. If you want to monitor celiac antibody blood levels regularly, a documented diagnosis is useful. But those are all if's, and many of us here are happy without a...
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ARCHIVED Following Gluten Free Diet Without Having Celiac Disease
tarnalberry replied to irish daveyboy's topic in Publications & Publicity
From the article: "Also, many products that are gluten-free pack in the sugar, fat and salt, according to the Daily Mail. When wheat flour is fortified with vitamins and iron, it boosts the nutrient content of the diet. When it -
ARCHIVED 1 Month Gluten Free - Still Some Hiccups
tarnalberry replied to IveGotEffinCeliac's topic in Coping with Celiac Disease
How is your sleep? Do you feel tired during the day, regardless of how many hours you spend "in bed" or "asleep"? You might consider a sleep study. What you describe is similar to how I would describe my fibromyalgia, which was significantly contributed to by restless leg (which was contributed to by anemia, but not due to celiac disease). -
ARCHIVED Boost
tarnalberry replied to Tigercat17's topic in Gluten-Free Foods, Products, Shopping & Medications
but then I read your quote of her saying she felt better not drinking them! sounds like something to avoid! (of course, I would blame the dairy, but that's me. ) -
ARCHIVED Trader Joe's / "shared Equipment....shared Facilities"
tarnalberry replied to Redeemed's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm one of those who uses many products produced in shared facilities. IMHO, if you let anyone bring a cookie or sandwich into your house (which means you now have a shared facility), it's silly to avoid all products just because of a shared facility label. (That's not to say that there aren't some that you learn to avoid, of course!) But if you want to... -
ARCHIVED Boost
tarnalberry replied to Tigercat17's topic in Gluten-Free Foods, Products, Shopping & Medications
Did they say it HAD 200ppm or was tested to 200ppm? It could easily have gotten confused. If the test goes down to 200ppm, they might have 10ppm, but the test wouldn't detect anything other than "no gluten here". -
ARCHIVED No Way To Turn Entire Home gluten-free
tarnalberry replied to Aphreal's topic in Parents, Friends and Loved Ones of Celiacs
I think our grocery budget also went down gluten free. We don't buy specialty gluten free things. I don't do a lot of baking. I make use of the cheap, naturally gluten free stuff - rice, lentils, beans - and get seasonal produce. Sure, if you're replacing bread with broccoli, it's going to be more expensive per calorie, but also a lot more nutritious...