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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    I avoid ANYTHING that has sauce. Stuff like eel is marinated in sauce, and the egg has soy sauce in it as well. While some folks here have noted they've seen sticky rice with gluten (in the rice vinegar? mirin? I don't know how it's getting in there), I've never seen it myself. Additionally, some folks have noted that they have gotten wasabi that has...
  2. tarnalberry
    There is no good evidence (or solid reason) that sourdough would be safe for celiacs. The portion of the gliadin protein segment that causes the autoimmune response is VERY stable, and I've seen no solid research that suggests the fermentation/enzyme breakdown by the microbes in a sourdough starter would break down that particular segment of the protein...
  3. tarnalberry
    Deep breath. Once relatively small instance is quite unlikely to cause a miscarriage. It happened, and the best you can do is move forward being even a bit more conservative (if you choose). I will keep my fingers crossed for you, but continue eating healthy and gluten free, and like many one time "oops", things will probably be just fine. (A friend of...
  4. tarnalberry
    Thanksgiving is my grand occasion of gluten free cooking. Turkey, turkey gravy, cranberry sauce (homemade, of course), mushroom stuffing, roasted root veggies (sweet potatoes or beets), sauteed greens (usually chard or the beet greens), sauteed green beans, salad, pumpkin pie, baked apples... It's all good. A solid 8 hours of cooking for a lot of tasty...
  5. tarnalberry
    You have DH and he said you "could" try a gluten free diet? Dumb doctor. DH is a positive marker for celiac disease. Not every celiac has DH, but everyone with DH has celiac. If you have DH you SHOULD remain completely gluten free.
  6. tarnalberry
    Lots of us have mixed households. Many of us do not cook multiple versions of the same meal - the family can eat the same gluten free meals you eat. (Lots and lots of foods are naturally gluten free - meats, veggies, rice/corn/millet/quinoa/buckwheat/amaranth, fruit, dairy (if you tolerate it), eggs. It's packaged or processed foods that are relatively...
  7. tarnalberry
    Yes. Celiac disease is where the villi are damaged (generally termed "flatted", but I don't want to use that term because it could imply a level of damage necessary to be Celiac disease). That's simply what villi damage due to an autoimmune response to gluten is called. As for whether or not gluten intolerance develops into Celiac - we don't know. There...
  8. tarnalberry
    Mack, I know they're pricey, but I'd recommend investing in a few pairs of SmartWool socks. Yeah, yeah... you'll probably spend at least $50 getting a decent number of pairs (I buy them on outlet sale at REI, so they're cheaper. ) But they last a long time. I wear mine all the time (I only wear wool socks - I like them better), and I use them hiking and...
  9. tarnalberry
    Oh sure! I didn't mean to imply that I think you should let her talk to you like that. Rather that YOU might try bringing up the stuff she's leaving unspoken. Really, to her, she doesn't "care" that you have the same issues. It isn't going to make her feel any better to know that you're suffering too. So, though it's tempting, I don't think it's going...
  10. tarnalberry
    Yup, totally over thinking this. "breaking the news" is what you do when you tell someone you're leaving them. when you tell a friend another friend died. when you tell someone they didn't get the job they want. This isn't a negative thing; it's just a thing. "I'm celiac, so I can't eat wheat, barley, rye, or oats. So you'll get to hear me ask a bunch...
  11. tarnalberry
    It was based on the information that my doctor told me. And yes, she also mentioned that magnesium is important for managing vasospasm as it is required for vascular control. She suggested at least as much magnesium as calcium in my diet/day, if not more. BTW, it's not cold extremities that is Raynaud's, it's the vasospasm that pushes all the blood out...
  12. tarnalberry
    I am in the camp that votes "it's not worth the risk when you can get a waffle maker for $20". If you can't get to the store, make pancakes for now, instead, and then go to the store.
  13. tarnalberry
    Oh, what's a little thread hijack? While there are meds you can take for it (nifedipine), but we're trying OTC methods at the moment - keep the nipples covered outside of nursing, apply warm compresses (oh, that's fun in the summer), avoid getting cold (I'm wearing socks most of the time now), ibuprofen when necessary, upping magnesium intake, and trying...
  14. tarnalberry
    Never assume that something is gluten free. Anything can have gluten added to it, and you can't see it by looking.
  15. tarnalberry
    I don't have Raynaud's, but have recently learned that the same sort of thing - vasospasm - can occur in the nipples of women who breastfeed. And I have it. It is NOT the autoimmune condition that Raynaud's is, but is thought to also be affected by an overactive sympathetic nervous system (something that acupuncture seems to be able to work on). A friend...
  16. tarnalberry
    You might consider that she was upset because you weren't listening to her because she wanted you to hear "all these replacement things aren't as good as the real thing and it sucks and is awful I have to eat this kind of crap" rather than "this particular item you got me is disgusting". She (probably) wants you to hear, validate, and sympathize with the...
  17. tarnalberry
    All that thing tests for is TTg IgA. If you're IgA deficient, you'll get a negative whether you have celiac disease or not. If you think you have it, and you're eating gluten, I'd encourage you to get a full celiac panel, including the IgG antibodies and total IgA.
  18. tarnalberry
    They are different chemical processes in the body. It is possible to produce ONLY IgG and IgA antibodies to gluten (celiac disease) OR to produce ONLY IgE antibodies to wheat protein (wheat allergy) OR both. Having one does NOT predispose you to the other.
  19. tarnalberry
    Don't argue with the waitstaff. Just ask for the manager the moment they "talk back".
  20. tarnalberry
    She's actually in a K'Tan, which is similar to a Moby, but much easier to use! She's not a huge fan of that cradle hold, but stayed long enough in it with my husband for me to get the pic! You might try feeding her the graham crackers outside, at least while we still have summer?
  21. tarnalberry
    Honestly, what you write is a lot of classic pregnancy symptoms. Assuming you know you can't be pregnant, I would consider seeing an endocrinologist, to check on what the hormones are doing.
  22. tarnalberry
    There is scientific study to suggest that introducing gluten before 9 months reduces the risk of a child developing celiac disease over waiting a year to introduce. But that doesn't mean you have to. I'll probably have my husband introduce her to gluteny foods out of the house when she's 7 or 8 months, and see how she does. We'll stay gluten free at home...
  23. tarnalberry
    Ditto what everyone said - you need to be eating gluten at least three months prior to testing for a realistic expectation not to get a false positive.
  24. tarnalberry
    The equivalent of 3-4 slices of bread a day for 3 months to feel fairly confident that you've got low odds of a false negative. There's no exact answer that works for everyone, as it depends on how quickly your intestines are damaged (and how much repair work is going on at the same time).
  25. tarnalberry
    I'm not sure how long you've been gluten free, but I do what you do - most of the time - and just deal with being "not-normal". When the questions are too many, you simply have short, "end of conversation" answers followed by changing the subject. (And, for the clueless, a brief "I don't want this meal's conversation to be centered around my eating. What...
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