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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Krispies Or Beans?
tarnalberry replied to welshbird's topic in Parents, Friends and Loved Ones of Celiacs
As always, check the ingredient list. Kellog's Rice Crispies contains barley malt - that means they are not gluten free. Yes, getting a little bit of gluten can cause these sorts of things, depending on the person. Yes, an overload of carbs can cause a hypoglycemic crash which can also lead to behavior issues (because you feel crappy). So it could just... -
ARCHIVED Elimination Diet - Help!
tarnalberry replied to lucia's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
FYI, depending on in what way you're feeling better, you may well want to eliminate the green tea. Green tea (and a number of other foods) can contribute to reflux, and if you're having any of those types of symptoms, it's worth a try. Trust me, I know how hard it is - when I got pregnant, though I could have a cup or two if I really wanted, I went without... -
ARCHIVED Confused About Test Results
tarnalberry replied to Coolclimates's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Blood tests for allergies are hit or miss. Even skin tests are so so. And neither is very good for food allergies. (I've had more than one allergist tell me this.) Celiac disease is entirely different from allergies. Celiac disease is an autoimmune response - wheat triggers the production of antibodies which attack the body. An allergy is the overproduction... -
ARCHIVED Krispies Or Beans?
tarnalberry replied to welshbird's topic in Parents, Friends and Loved Ones of Celiacs
most rice crispies (like kellogs and store brands), unless specifically marked otherwise, have barley malt and are not gluten free. -
ARCHIVED There's Nothing Left To Eat Without Feeling Sick
tarnalberry replied to sweeeeet's topic in Food Intolerance & Leaky Gut
oh yeah, 6 hours is nowhere near long enough to see what's bothering you. food takes up to a few days to get through your system, which is why they highly recommend doing elimination diets and challenges with new foods no more than once every few days (three or four at the most, a week is better). waiting only six hours doesn't actually allow you to test... -
ARCHIVED Labeled "gluten Free" Vs. No Gluten Listed In Label
tarnalberry replied to chilligirl's topic in Coping with Celiac Disease
It's a personal decision. I go by what's in the ingredient list (with an eye on "manufactured on shared lines" sorts of warnings, though not so much for "in a shared facility"), since "gluten free" as a label itself doesn't have particular meaning in the US at this time. Some folks are sensitive enough, however, that they avoid prepackaged food due to cross... -
ARCHIVED Pregnancy And Cravings
tarnalberry replied to piglips82's topic in Gluten-Free Foods, Products, Shopping & Medications
The normal advice still applies: take a prenatal with folic acid, take extra iron if appropriate, take extra calcium/magnesium, and extra vit D, get regular (low-impact) exercise, and get plenty of sleep (hahahaha!). There isn't any special consideration for a celiac preggo other than maintaining a STRICTLY gluten free diet. Cheating is NOT an option... -
ARCHIVED Inconclusive
tarnalberry replied to gibsongirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My blood tests were even more inconclusive than yours, but the dietary test (which is a very valid test) was quite positive. I never had a biopsy and don't intend to get one. I know that gluten makes me feel crappy, so why would I eat it? -
Many celiacs are "silent" celiacs - no GI symptoms. Of course, they may not realize that their headaches, fatigue, or joint pain was a symptom. You are symptomatic, since you were anemic and are low weight, which means that your body is not properly absorbing what you eat. Stick, strictly, to a gluten free diet to avoid the long term complications of untreated...
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ARCHIVED Rolaids, Tums, ?
tarnalberry replied to gflooser's topic in Gluten-Free Foods, Products, Shopping & Medications
Also, chewing fennel seeds can help with heartburn. Avoiding cold (iced) beverages can help as well. -
ARCHIVED Help - Waiting For Results
tarnalberry replied to Smarts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's why I don't like the gene test - it does *NOT* rule out celiac like people think it does, because they don't test for all the known genes (and don't know if they know all of them). Anywho - make sure that you are *ENTIRELY* gluten free (including dealing with possible contamination issues both from store-bought items and in your own house). It... -
or is it possible to sand them down and reseason them?
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ARCHIVED Share Your Favorite Cold Meals
tarnalberry replied to GlutenFreeManna's topic in Gluten-Free Recipes & Cooking Tips
Tuna tacos. Can of tuna fish mixed with a mashed avocado, and chopped tomatoes and green onions if you can have them. Stick in a heated corn tortilla with lettuce (or just wrap in lettuce). Chicken salads are good too. Or, if you want to make it at night when it's cooler, homemade chicken rice soup tastes just as good cold. -
ARCHIVED College Search...
tarnalberry replied to celiacprincess17's topic in Introduce Yourself / Share Stuff
I was fortunate enough to get into the dorm that had all single rooms. They were tiny (9'x10' my freshman year), but they didn't require roommates. (I went to a small school - Harvey Mudd. If you're interested in math/science/engineering, I highly suggest checking it out.) -
ARCHIVED College Search...
tarnalberry replied to celiacprincess17's topic in Introduce Yourself / Share Stuff
It was 10 years ago (god I feel old!), but I had a mini-fridge in my dorm room. I used the dorm microwave and dorm kitchen (I wasn't gluten free at the time). I also bought an electric skillet and did some of my own cooking outside (better than the crappy pans the dorm kitchen had). As was suggested, talk to each of them about the housing and dining... -
ARCHIVED Casein Intolerance Or Glutening?
tarnalberry replied to Tigercat17's topic in Coping with Celiac Disease
Dairy is a common reflux trigger. I'd encourage you to give it up, and if it helps, keep off of it. I know it sucks (dairy free is harder than gluten free, for me), but your health is worth it. There are other things in life to enjoy. -
ARCHIVED Gluten Free Surprise
tarnalberry replied to SGWhiskers's topic in Related Issues & Disorders
Unless there's something you haven't mentioned, you have no need for a high-risk doctor. Celiac disease isn't sufficient reason, and you achieved a natural pregnancy. Do start taking a prenatal vitamin along with extra calcium (spread throughout the day). Wait for a blood test to determine if you should be taking iron supplements - you don't want to get... -
ARCHIVED Very Strange/scary Sleep 'tremors'
tarnalberry replied to Chele8198's topic in Related Issues & Disorders
Yup, sleep paralysis. Basically, your brain is waking up before your brain wakes up. (The parts of your brain that process sensory input wake up before the parts of your brain that operate movement.) It's freaky as heck, but not particularly dangerous, as I understand it. Always worth talking to your doctor, of course, particularly if you suspect something... -
ARCHIVED Non Dairy, gluten-free Flavored Coffee Creamer?
tarnalberry replied to Miss.Slick's topic in Gluten-Free Foods, Products, Shopping & Medications
Coffeemate is NOT really dairy free. The dairy free label in the US really means LACTOSE free, not necessarily CASEIN free. -
ARCHIVED Is Dh Relieved With Antihistamines?
tarnalberry replied to sparklette's topic in Dermatitis Herpetiformis
DH takes a while to clear, and antihistamines won't do it. If it's responding to the antihistamines, it's probably not DH. (But no guarantees, of course.) -
No need to be nice about it anymore. You tried that, and it didn't work. Doing the same thing over and over and expecting a different outcome is the definition of insanity and all that. Do put your foot down, do call them on it, do tell them you don't give a rat's backside about whether they think it's reasonable or not because it's your decision and you...
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ARCHIVED Celiac Dinner Discussion
tarnalberry replied to labrisbin's topic in Coping with Celiac Disease
I keep it fairly simple. I say I'm gluten intolerant (I don't have a formal diagnosis, but even my dr. said I should stay gluten free since I feel better that way). So, it'll go something like this: "I'm gluten intolerant, so I can't have wheat, barley, rye, or oats. It's simply WAY easier and safer for me if I just bring my own food, so PLEASE do not... -
ARCHIVED Can We Talk About Body Temperature Regulation?
tarnalberry replied to GlutenFreeManna's topic in Coping with Celiac Disease
If you either haven't gotten out into the heat this year, or it's the first heatwave for your area, your body may need time to adapt and acclimate to the different temperature, as well. It's kind of like easing your way into exercising - ease yourself into tolerating the heat. (One way to do this would be to start upping the indoor temperature (a bit) so... -
ARCHIVED Pergnancy And Celiac
tarnalberry replied to Benjamin.A's topic in Related Issues & Disorders
As was noted, 1 in 22 is the chance of a child of a celiac developing celiac. They not only have to inherit the genes, but also have an environmental trigger set it off. (No, we don't know exactly what these are or how the process works.) But being celiac isn't a huge deal (imho) as long as you stick to the diet. A celiac who is on the gluten free diet... -
ARCHIVED Issue With Tidying Up
tarnalberry replied to stef-the-kicking-cuty's topic in Introduce Yourself / Share Stuff
My husband and I both tend to not throw things aren't. We aren't exactly hoarders, but we're not exactly sparse in our keepings either. One thing that's helped me - "outside of photographs, have I used it in two years?" If not, it gets thrown out. There are a couple exceptions we've made - golf clubs and the replacement stone tiles for our fireplace and...