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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Can Anyone Recommend A Gluten Free Soy Sauce?
tarnalberry replied to David in Seattle's topic in Gluten-Free Foods, Products, Shopping & Medications
Heh, some of us with low blood pressure have no incentive to stay away from salt. Fortunately, however, you can use low sodium varieties in dishes and it's really not that much salt you end up getting. If I make a stir fry, I might use two tablespoons of soy sauce. At 700mg/tbsp (for San-J's low sodium wheat-free tamari), that's 1400mg in a dish we get... -
ARCHIVED What Is Your Daily Diet?
tarnalberry replied to Stylo's topic in Related Issues & Disorders
Some common things I'll make for food: Breakfast - * eggs on rice cakes * peanut butter on rice cakes * fried rice (eggs, frozen mixed veggies, rice, and gluten-free tamari ) * frozen gluten-free waffles with peanut butter * pancakes (either made that day, or batch made and frozen at home) with peanut butter * fruit smoothie with protein... -
ARCHIVED To Those With Dogs
tarnalberry replied to dhiltonlittle's topic in Coping with Celiac Disease
gluten free (and grain free, really) dog foods are better for your dog anyway. The good ones without gluten are more expensive, but you'll often feed less of them. And you can get WAY better treats than those with gluten in them. Freeze dried chicken/beef/lung, dried chicken (my dog *loves* these), and other ones that are more traditional "cookie" shaped... -
ARCHIVED Nature Valley?
tarnalberry replied to bridgetm's topic in Gluten-Free Foods, Products, Shopping & Medications
McCann's has tested at over 200ppm, and themselves do NOT recommend that celiacs eat their oats. :/ If you have *any* lingering symptoms, I'd encourage you to try eliminating them to see if it makes a difference. -
ARCHIVED I Wasn't Sure What To Say...
tarnalberry replied to shepgs's topic in Coping with Celiac Disease
Don't do it. Yeah, you go hungry (and I say this as a hypoglycemic who feels like S#@! when she's hungry and can't get food). But it's better to not get sick, and not show the person that you don't immediately pass out or die upon ingesting glutened food. -
ARCHIVED Nature Valley?
tarnalberry replied to bridgetm's topic in Gluten-Free Foods, Products, Shopping & Medications
They all have oats - unless you have determined that you do not react to oats (10% of celiacs do), you should avoid them. Additionally, they do not use gluten free oats, and EVERY commercially available regular (not certified gluten free) oat supplier has high levels of contamination with wheat. To answer your particular question, however, YES, you need... -
ARCHIVED Baby Formula
tarnalberry replied to emily ann's topic in Parents, Friends and Loved Ones of Celiacs
Most are NOT dairy free, but that only matters if the little one is casein intolerant. You can get hypoallergenic formulas, but they are significantly more expensive. I don't know of a single formula that has gluten in it. BTW, if you are able to and decide to give breastfeeding a shot, gluten *can* be found in breast milk, but you are likely gluten... -
ARCHIVED Please Help Me With Menstrual And Ab Pain!
tarnalberry replied to Liveenjoylife's topic in Coping with Celiac Disease
Tylenol is unlikely to do a whole heck of a lot - wrong type of pain med for the job. You may find that taking either ibuprofen or naproxyn sodium (Advil or Aleve), starting a two or three days before the pain starts, and continuing until it's over, helps. Starting it ahead of time is very important. Other things, like taking extra calcium and magnesium... -
ARCHIVED People Who Were Diagnosed And Feel Much Better
tarnalberry replied to somersat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sleep well? Eh... I have restless leg, apparently independent of but worsened by low iron stores. Even when the iron is back up, there's still come RLS. It's better on meds, but I'm off meds due to pregnancy. With the meds, I'd say I sleep pretty darn well. Without them, I'd say I sleep well enough. (With the pregnancy in 3rd trimester... HAHAHAHA!... -
I'm not sure I understand the question. Is this a brand you're asking about? I'm unfamiliar with the brand "Organic", but know of a couple of brands that have a very large, ornate "organic" on the front that could be mistaken for a brand...
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ARCHIVED Vegetables
tarnalberry replied to Juliebove's topic in Parents, Friends and Loved Ones of Celiacs
Ugh, gotta say, I can't stand a plain salad with NO dressing. You don't have to use anything with allergens, though - balsamic vinegar and olive oil are just fine. (Add italian herbs if you want to be fancy. ) I would talk to her about why she won't eat the veggies, really try to understand her side without pressuring. This advice may be useless for... -
ARCHIVED Never Ending Bloating -
tarnalberry replied to pufffee's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Are you taking probiotics? Have you looked into any other foods which may tend to bother you? -
ARCHIVED Neti Pot And Now Tinnitus
tarnalberry replied to BRUMI1968's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is one area where a real neti pot is better than a syringe or anything else that you can squeeze. I found I was able to create pressure in the eustacian tubes (they drain the ears) if my sinuses were fairly swollen and I tried to get water up there anyway. If you try a sinus rinse again, I highly recommend a real neti pot (something open to the air... -
Don't let the comments slide. I would probably respond with something like: "If you can't take a serious illness as an adult, I suggest you just refrain from talking." (Snarkier responses like "Do you hide a person's epi-pen before giving them peanuts they're allergic too?" or "What do you mock cancer patients about? or "Wow, I thought I'd moved on...
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ARCHIVED Enriched Rice - Really gluten-free?
tarnalberry replied to Erica Rodman's topic in Gluten-Free Foods, Products, Shopping & Medications
Some foods are "enriched" for ... social purposes. Rice is one of the foods typically enriched with folic acid to reduce birth defects in the population. But it is also to replace the iron, niacin, thiamin, and other vitamins/minerals stripped out when removing the bran and germ. (One good alternative here - just eat brown rice, which is more nutritious... -
ARCHIVED Mushrooms
tarnalberry replied to Juliebove's topic in Gluten-Free Foods, Products, Shopping & Medications
*IN* mushrooms, I'd say no. It's not like they are going to simply uptake and store gluten themselves. A reason to wash your mushrooms? Maybe. -
ARCHIVED Plaster Of Paris Hand Mold Project
tarnalberry replied to elle's mom's topic in Gluten-Free Foods, Products, Shopping & Medications
Totally different things, plaster of paris and drywall. I'd let my kid do it. -
ARCHIVED I Think I'm Celiac? Actually At This Point I Hope I Am.
tarnalberry replied to EternalEssence's topic in Introduce Yourself / Share Stuff
You know that eating gluten hurts you, so why continue doing it? Celiac disease/gluten intolerance is one of the few cases where you don't need a doctor's diagnosis to completely treat it. If there are still problems *AFTER* you go gluten free for a while, then you'd investigate other causes. -
ARCHIVED I'm New With Blood Test Results And Qs
tarnalberry replied to momof4inla's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You can do an elimination diet either way - and if you search on here, you'll find posts from a lot of folks who have done them. My background is in science, so my preference in doing an elimination diet is cutting out all but a dozen or so (literally) foods. Those foods you do eat should have a low potential for allergies and intolerances. You stick... -
ARCHIVED I'm New With Blood Test Results And Qs
tarnalberry replied to momof4inla's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't think there's a really great rule for how long to try it. I'd vote three months. The only reason I came across a little ... strident? something, anyway ... was that it can be easy to say "something is wrong with me", think we find an answer, and dismiss it when we don't get "all better". But it might not be gluten (or just gluten). If... -
ARCHIVED I'm New With Blood Test Results And Qs
tarnalberry replied to momof4inla's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gluten intolerance could cause any of those symptoms, but there's no particular reason to assume that everything that doesn't feel right with you is from a gluten intolerance, even if you have one. So, while I encourage you to try a gluten free diet, don't give it up if only half of your symptoms resolve - that big of a change is still a very very telling... -
ARCHIVED Possible Celiac Mum To Be
tarnalberry replied to Beccels's topic in Related Issues & Disorders
My doc encouraged me to be off all meds for two months before attempting to conceive. You may want to wait until the drugs have a chance to totally clear your system. (Totally a personal choice, of course! ) -
ARCHIVED How Do I Explain?
tarnalberry replied to elawphoto's topic in Parents, Friends and Loved Ones of Celiacs
In my opinion, boyfriend or not, he doesn't have to understand it at all - he only has to respect your decision to eat gluten free. It sounds like he's not respecting your decision if he's constantly questioning you. I'd tell him "My decision, not yours. Grow up and respect it." (Harsh, yes. But respect is a BIG important thing in relationships. ) -
ARCHIVED Please Tell Me It Will Get Better
tarnalberry replied to cheesycow5's topic in Coping with Celiac Disease
There are testosterone precursors that you can buy OTC, but I would just wait until you can get the real stuff (which requires a prescription) instead, as you don't know what your rate of conversion is in your own body. (It's not really cheap, but I think I paid $100 for a three month supply, without insurance.) Not all doctors will treat it (especially... -
ARCHIVED Gluten Free Does Not Mean Gluten Free? Did You Know...
tarnalberry replied to meatslayer's topic in Gluten-Free Foods, Products, Shopping & Medications
Most studies suggest that 20ppm in moderate amounts of most foods won't cause damage to a celiac's intestines (or elevate antibody levels detectably). Nothing, medically speaking, is true for everyone, of course. And *some* testable (0 is NOT testable) limit has to be set if there is going to be a industrial use for the term.