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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Is Shampoo W/ Gluten Ok?
tarnalberry replied to jasonD2's topic in Gluten-Free Foods, Products, Shopping & Medications
I made a combination of cocoa butter, shea butter, lanolin, and emu oil as "preggo belly butter" that I gotta say I love. (Mostly solid, but sort of soft like a ripe avocado, at room temperature.) For an "out of bottle" one, I tend to like Open Original Shared Link line (you don't have to use much at all). Locally, there's a company called Open Original... -
Congrats!!
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and using cast iron pans, particularly on acidic foods.
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ARCHIVED Still No Diagnosis, With Positive Blood And Dq2
tarnalberry replied to shelbysmom's topic in Parents, Friends and Loved Ones of Celiacs
This is what frustrates me so much about diagnosis with celiac - it seems to vary on the doctor what is considered "good enough". I would ask him "what do you think could be occurring now to raise her antibody levels that won't be occurring in May? what cause for change are you looking for?" -
ARCHIVED What To Do About Inaccurate Info On Forum
tarnalberry replied to kareng's topic in Board/Forum Technical Help
realize, however, that in many cases, things are a simple right or wrong on this subject. take the example of McDonald's fries. there was a big hubub here (and elsewhere, I'm sure) about McDonald's announcing that one of their flavoring ingredients could contain wheat, but it was gluten free because of how processed it was. independent testing showed... -
ARCHIVED Lab Results
tarnalberry replied to Carin3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your bloodwork isn't very useful. They (apparently) only tested for IgA antibodies, and not a total IgA count or IgG antibodies. IgA deficiency is fairly common in celiacs, so without a total IgA count, the IgA antibody tests are useless. -
ARCHIVED Any Gluten Free/caffine Free Hot Drinks
tarnalberry replied to Brien's topic in Gluten-Free Foods, Products, Shopping & Medications
There are all kinds of herbal teas you can have. The simple peppermint or chamomile or what have you. But there are a WIDE variety of blends. Stash and Celestial Seasonings and Tazo have plenty, but find a local tea shop for more inventive variations. Teavana makes a fruity blend (sweet fruit garden) that I think is fabulous (even better with some honey... -
ARCHIVED Any Gluten Free/caffine Free Hot Drinks
tarnalberry replied to Brien's topic in Gluten-Free Foods, Products, Shopping & Medications
Herbal teas (often gluten free, but always check the label). Hot chocolate (I make mine with cocoa powder, almond milk, and agave nectar, but there are lots of other options). Hot cider. Hot lemonade. -
ARCHIVED Chicken And Gluten Intolerance
tarnalberry replied to Peace41's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
These animals have digestive systems which break down what they eat and convert it to energy and the building blocks that make up their body. No, there is not a concern of getting gluten from the animals that eat it. -
ARCHIVED Bowel Movements
tarnalberry replied to Danni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
1. It's early in the healing process... I'd give it more time. 2. Are you confident that you are avoiding ALL sources of wheat, including things like soy sauce and barley malt (common in many boxed cereals)? 3. Have you eliminated all sources of contamination including shared cutting boards, toasters, wooden spoons, condiments, counter space, and non... -
ARCHIVED Genetic Testing...?
tarnalberry replied to Malmo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Honestly, I think your doctor is doing a relatively good job. As Lisa mentioned, the other causes of villious atrophy can usually be ruled out based on history and simple tests, so partial atrophy SHOULD be a reason for a diagnosis. (I would consider asking your doctor why he isn't considering that enough evidence.) But it is incorrect to say that... -
ARCHIVED Lady Parts Question Related To Celiac?
tarnalberry replied to PrincessHungry's topic in Related Issues & Disorders
You might look into the oxalic acid content of the foods. Some women experience vulvar pain (and it can include urethral pain) due to oxalic acid crystals. Finding a specialist for vulvar pain is tricky, and you may need to be willing to travel. (I have vulvar vestibulitis - it started after nine months on and off antibiotics for repeat lung infections... -
Whole Foods has liquid iron supplements. A popular one is Floradil or Floradix is a liquid iron supplement - but check the ingredients, one of the two has gluten, the other does not (it's clearly labeled). I use a different one, but don't recall the name at the moment.
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ARCHIVED Dental Issues With Gluten Free
tarnalberry replied to LJ-Mom's topic in Parents, Friends and Loved Ones of Celiacs
What does the doc say is in wheat that you can't get anywhere else? I simply don't buy it. But enamel defects are a common problem in children with undiagnosed celiac disease, since the body is unable to properly absorb calcium and other minerals needed for enamel formation. -
ARCHIVED What To Do For My gluten-free Anniversary?
tarnalberry replied to foodiegurl's topic in Coping with Celiac Disease
If it were me, I would celebrate by going out to sushi. But I'll take ANY excuse I can get to go out for sushi. Other alternatives - find a gluten-free bakery (I know others here have posted about ones in Chicago) and buy yourself a gluten-free cake (no work involved!). -
ARCHIVED Antibodies Present But No Symptoms
tarnalberry replied to Akber Biberkopf's topic in Parents, Friends and Loved Ones of Celiacs
Definitely don't wait for him to be symptomatic. Many celiacs are asymptomatic, but that does not mean they are healthy - they are subject to all of the complications of untreated celiac disease. -
ARCHIVED Is Shampoo W/ Gluten Ok?
tarnalberry replied to jasonD2's topic in Gluten-Free Foods, Products, Shopping & Medications
shampoo isn't a big risk, but it's nonzero. if you're still having issues, why take any risk you don't need to? lotion is something I would change. unless you *NEVER* touch your mouth, never pick up a piece of food with your hands, and never handle your utensils and plates directly, there is a chance of transfer from lotion that ends up on the hands ... -
ARCHIVED I'M Cold, My Hands Fall Asleep, My Hair Is Dry...
tarnalberry replied to StacyA's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is possible that something else is going on entirely. It is also possible to have a vitamin deficiency even without have celiac. (Vit D is a common one in many geographic locations and in many different groups of people.) And anemia also doesn't require a absorption issue. Checking the thyroid is also a good idea. -
ARCHIVED Now That I'Ve Got The Soy Sauce, What About Sushi?
tarnalberry replied to David in Seattle's topic in Gluten-Free Foods, Products, Shopping & Medications
Wacky - I've never seen (or tasted) ANY soy sauce in masago. Heck, I've never seen a sushi restaurant put soy in any of their roe. But sushi seems to vary from geographic loacale to locale. Just one of the reasons it's always good to ask around locally! -
ARCHIVED Now That I'Ve Got The Soy Sauce, What About Sushi?
tarnalberry replied to David in Seattle's topic in Gluten-Free Foods, Products, Shopping & Medications
What on earth are they putting in the fish eggs to make them not gluten free? -
ARCHIVED Does Vomiting Have To Be A Symptom?
tarnalberry replied to flowerpower12's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Definitely not a required symptom. I wouldn't even say it's one of the more common symptom. This is a reaction in the intestines, NOT the stomach. -
Celiac and migraines can be connected, but they're not always. My migraines got worse long after going gluten free, when I moved to Washington. I strongly suspect rapid changes in barometric pressure play a role in mine. I also know that stress and poor neck posture contribute to them, as working with a chiropractor has definitely helped. For a while...
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ARCHIVED Best Book About Gluten-Free Living?
tarnalberry replied to Lynayah's topic in Coping with Celiac Disease
The problem is that ANY book is going to be potentially out of date by the time it's printed. Certainly not worthless, but also not something you could necessarily rely upon solely. -
ARCHIVED Is It Possible To Have False Pos Serology And Biopsy?
tarnalberry replied to Streetlegal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
10% of celiacs react to oats (even the uncontaminated variety) because the proteins are so similar. If you're not seeing improvement, eliminating oats is definitely important. If you have a casein sensitivity, any increase in milk you had (lactose quantity is irrelevant) could contribute to the problem. And some people find that too much veggies and... -
ARCHIVED Can Anyone Recommend A Gluten Free Soy Sauce?
tarnalberry replied to David in Seattle's topic in Gluten-Free Foods, Products, Shopping & Medications
I know that Uwajimaya has it. Not the low sodium version, at the Bellevue one, but I haven't tried Seattle or Renton recently. (Not sure if they have one up north for ya! )