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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Family Going Gluten Free
tarnalberry replied to JeepMom's topic in Parents, Friends and Loved Ones of Celiacs
Good choice! It's not for everyone, but we find having virtually everything gluten free works well for us. -
ARCHIVED So Sick Of Being Sick!
tarnalberry replied to sandsurfgirl's topic in Introduce Yourself / Share Stuff
Yes, neti pot 2-3 times per day (when sick, less when not sick). It gives a decent gauge of how the sinus congestion is going, too, since you can see how fast the water drains through. I recommend it for *anyone* with allergies or a cold. -
ARCHIVED Whole Wheat / Whole Grains
tarnalberry replied to Canadian Girl's topic in Coping with Celiac Disease
I'm going to give the long winded answer that lies behind peter's answer. All Open Original Shared Link means is that the grain has not been processed to remove the bran (shell-like covering for the grain) and germ (think of it as the yolk inside the egg). It doesn't say anything about gluten. Gluten *technically* is the primary protein in any grass... -
ARCHIVED So Sick Of Being Sick!
tarnalberry replied to sandsurfgirl's topic in Introduce Yourself / Share Stuff
It's a head cold. It doesn't *need* a bunch of meds. Of course, when I had a fever (all of 99.0) I took tylenol. But it's a head cold, and the benefit I would get out of something like a decongestant (which is never very much) isn't worth the risk for what I would get at this time. I know that there is plenty of stuff that is "safe" during pregnancy,... -
ARCHIVED So Sick Of Being Sick!
tarnalberry replied to sandsurfgirl's topic in Introduce Yourself / Share Stuff
I feel ya. I have had a cold this week, and am frustrated that I can't take a darn thing since I'm pregnant. Unfortunately, illness happens - and this time of year is a good one for it! Feel better soon! -
ARCHIVED Help Me Before I Litterally Waste Away.
tarnalberry replied to razberrykisses's topic in Related Issues & Disorders
I would encourage you get to a new doctor, ASAP. -
ARCHIVED Cheap Work Lunch Ideas?
tarnalberry replied to katinagj's topic in Gluten-Free Recipes & Cooking Tips
If you're gluten free before testing, the results will be worthless. The tests look for a reaction to gluten, so if there's no gluten in your system, they can't say if you would react if there was gluten there. As for cheap work lunches - I always took leftovers. -
ARCHIVED Help Me Before I Litterally Waste Away.
tarnalberry replied to razberrykisses's topic in Related Issues & Disorders
If you were able to maintain a stead weight *before* the pregnancy, and are able to keep food down and consume enough calories, and haven't changed what you were eating, it's probably not the food. If your OB/midwife hasn't been helpful, FIND ANOTHER ONE. Even if just for a second opinion. And honestly, in that case, I would go with a high risk maternal... -
* scrambled eggs on rice cakes (takes ~10 min to prepare and eat, which is part of the reason I eat this - it's moderately balanced for fat/prot/carbs, and whoofing down your meal isn't terribly good for your stomach) * fruit smoothie w/ protein powder (takes ~5 min to make, and I take it with me in a nalgene and slurp it down in the course of half an hour...
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ARCHIVED A Note To My Non-Celiac Dad
tarnalberry replied to breavenewworld's topic in Parents, Friends and Loved Ones of Celiacs
Same thing. Love the general idea, but "if that's ok with you" and the tone of apology make you sound like you're trying to find a solution that he's good with. You need a solution that YOU are good with. Clearly, I would probably be a little more straightforward (*cough*b%$@#y*cough*) than you, but that's my style. You can be less apologetic, less wishywashy... -
ARCHIVED Is Gluten Free Diet Safe For Non Celiac
tarnalberry replied to momofcdson's topic in Parents, Friends and Loved Ones of Celiacs
That article (and the study it references) is insufficient to make a full determination on. There shouldn't be any reason why gluten is necessary (plenty of cultures in the world lives for ages without wheat, barley, rye, or oats). Why European celiacs on a gluten free diet experienced lower levels of beneficial bacteria is unclear - you can eat healthfully... -
ARCHIVED Could Salicylic Acid Cause Problems?
tarnalberry replied to jackay's topic in Coping with Celiac Disease
While severe reactions are possible, so are more mild ones. You could certainly be sensitive to it. Are you ever bothered by aspirin? -
ARCHIVED Casein Intolerance Symtoms Vs Gluten?
tarnalberry replied to Diva1's topic in Food Intolerance & Leaky Gut
What jestgar said - your symptoms overlap with lactose intolerance (bloating, pain (possibly from bloating), and D). You need to single them out to determine if it's casein or lactose. I find that too much casein gives me headaches and constipation. But everyone's symptoms vary. -
ARCHIVED Looking Closely At Casein
tarnalberry replied to NorthernElf's topic in Food Intolerance & Leaky Gut
Casein sensitivity is a complicated beast. A couple of things: 1. There is more than one sub-type of casein and many people are only sensitive to one type. That means that cow milk may bother you, but goat milk or sheep milk or buffalo milk won't. No guarantee, however, as there is some of each subtype of casein in each mammal's milk - what varies (significantly... -
ARCHIVED How Should I Handle This In The Future?
tarnalberry replied to BigDogz's topic in Coping with Celiac Disease
Schnapps is a tasty choice, but I'd check with the bartender before getting schnapps over ice (especially cinnamon or peppermint). The good stuff (IMHO ) tends to be the 100 proof stuff, and a good bar will use better stuff for straight up drinks, rather than mixed ones. (Well, that's my experience tending an in-dorm "bar", anyway. ) Speaking as a fellow... -
ARCHIVED How Should I Handle This In The Future?
tarnalberry replied to BigDogz's topic in Coping with Celiac Disease
I wanted to make one more suggestion - go to the bar (maybe when you first head in, if you don't want to do it while a round is being ordered) and talk to the bartender (find one who isn't really really busy). Ask him to be creative, but give your limitations. You might say something like: "I'm a light drinker, and soda doesn't sit well with me. I can... -
ARCHIVED Was Just Tested
tarnalberry replied to simplyconfused's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
keep eating pasta - but get the gluten free kind. the diet is a major shift, but *once you get past the learning curve* it doesn't have to be that hard. you find the alternatives that work FOR YOU. and there are so many foods out there (which you probably haven't tried before, but could eat) that can taste excellent (even if they're not a substitute for... -
ARCHIVED Questions About Symtoms And Testing
tarnalberry replied to sebbitt01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
fructose intolerance? -
ARCHIVED Help Needed...
tarnalberry replied to Isis's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The gene test is NOT conclusive. But you have done (at least) two dietary tests that are strongly indicative of celiac. If nothing else, why would you continue eating gluten when you know it doesn't agree with you. (You may well want to pursue further testing, but it's hard to predict what will happen.) Those blood tests and biopsies you had were WORTHLESS... -
ARCHIVED Test Say Positive/No Symptoms ?
tarnalberry replied to beksmom's topic in Introduce Yourself / Share Stuff
Yes, he needs to go on a gluten free diet. Particularly during adolescence, symptoms diminish greatly, but there is still damage being done to the intestines, which results in incomplete digestion of the food he's eating. Many, many people with celiac are "silent celiacs", displaying no symptoms that they identify with the condition. You may be surprised... -
ARCHIVED New To The Site And In Need Of Some Advice... For Survival!
tarnalberry replied to ojayt's topic in Gluten-Free Foods, Products, Shopping & Medications
1. I don't think you could separate wheat/gluten/rye intolerance from gluten intolerance. Sure, you could have an allergy to those and not be celiac or gluten intolerant, but that's because it's a different immune reaction involved with allergies. But really, does it matter to separate names? It's still the same foods you can't eat. 2. No, if it contains... -
ARCHIVED Should I Get More Strict?
tarnalberry replied to Roda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Honestly, if there are that many crumbs on the counter and around the house, I'd pretty much say that you're not gluten free. I'd also say, you gave a good shot, for a year, trying it a way that was more generous to your family. Happy or not, they need you healthy, and you need you healthy. I'd crack down on the crumbs/eating around the house. (My husband... -
ARCHIVED Acidopholus
tarnalberry replied to Chattyaholic's topic in Gluten-Free Foods, Products, Shopping & Medications
Acidopholus is a probiotic - a strain of beneficial bacteria that live in your gut. You can take either just that strain, or probiotic supplements that contain other strains as well. You can get them in pill form, or liquid. Yogurt and kefir contain probiotics as well. -
ARCHIVED New And Questioning Decision
tarnalberry replied to shepgs's topic in Coping with Celiac Disease
Yes, it's worth it. But a week - a week is nothing in the grand scheme of your life. You're learning an entirely new lifestyle, an entirely new (and seemingly contradictory to our culture) habit. This is something that will take many weeks, maybe many months. Don't let that scare you off - it's a big adjustment, but it's an adjustment of practice, and... -
ARCHIVED How Should I Handle This In The Future?
tarnalberry replied to BigDogz's topic in Coping with Celiac Disease
A bar is actually *quite* likely to have juice - many many mixed drinks require juice. Orange juice and grenadine would be something I might go for, or just the orange juice. You'll likely be able to get cranberry juice. (Cranberry juice with a touch of lime is good. Orange juice with club soda is also quite tasty.) (Due to meds I took for a long...