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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    10% of celiacs react to the protein in oats. They may be free of wheat, barley, and rye, but you may be reacting to the oats themselves.
  2. tarnalberry
    I appear to be casein intolerant, but I do not worry about "may contain traces of" warnings, or shared facility issues. It's worked for me. BUT, some of the more sensitive will need to avoid those as well. I wouldn't assume that your casein sensitivity is the same as your gluten one, and you'll have to decide, or experiment, with yourself. :/
  3. tarnalberry
    Since it's only been five days, it's not really surprising you'd miss something you often had (and presumably enjoyed). After six years, I don't really miss it that much (feel a little nostalgic now and again, perhaps). I second the "just avoid bread" route, at least for a while. Gluten free bread doesn't taste the same, but it can be enjoyable as it's...
  4. tarnalberry
    As for the being gluten free on a budget (and having to read labels), as much as possible, avoid things with ingredient lists. Buy whole, naturally gluten free foods, and cook yourself simple meals. Fresh fruit and veggies, fresh meats, and rice/corn/beans/etc. can make a relatively inexpensive, and VERY healthy meal. You may want to spend some time browsing...
  5. tarnalberry
    Ditto everything ravenwood said. Right on the money!
  6. tarnalberry
    My opinion only, but for a child that young, with tests that are indicating she is celiac, I would take her gluten free. The biopsy is NOT the gold standard docs claim it to be - it depends on how many samples are taken from exactly where and exactly what standards are used for classifying the damage to the villi. (Some labs will see "mild blunting" and...
  7. tarnalberry
    False positives are extraordinarily rare. (Virtually never. But hey, labs can make mistakes. :/) Whether to take him gluten free now or not entirely depends on your (and his) need for an official diagnosis. If you want an official diagnosis, he needs to stay on gluten (and plenty of it) before the biopsy. If you don't care if he ever has a doctors dx...
  8. tarnalberry
    Since they referred you to an allergist, not a GI, I'm guessing your doc didn't even listen to the whole of your question, and said "no, you don't have to be eating it" because he/she was thinking about allergies, NOT celiac. Honestly, since you've got four weeks until the allergist appointment, I'd put her on a strictly gluten free diet and see how she...
  9. tarnalberry
    Ditto. "Can't guarantee raw materials are gluten free" does not mean "contains gluten".
  10. tarnalberry
    I've been dx'ed with mild-moderate depression. A lot of psychotherapy has definitely helped. I was on Cymbalta for a while (before getting pregnant), which helped a little. Getting better quality sleep (RLS meds and increasing my iron) helped as well. Exercise is the most important thing for me, and I'm sure it would be worse if I haven't been practicing...
  11. tarnalberry
    I really don't get how doctors can be this dumb. How can an antibody test have a chance at being positive if you're never exposed to the antigen? If it makes you feel bad, why do it?
  12. tarnalberry
    Yes, not getting enough food can make you tired. You may also want to be tested for vitamin deficiencies, particularly iron and B-12. Talk to your doctor about your fatigue (in terms of impact to your life).
  13. tarnalberry
    She could have celiac disease AND something else going on. If she's gluten free, you can't test her to find out if she has celiac; the tests are useless. If I were in your shoes, I'd probably stick with gluten free ('cause it won't do any harm), and continue with the additional testing.
  14. tarnalberry
    Ah, that particular worry - that you'd be sequestered - wasn't clear. You're right - it is REALLY unlikely that would ever happen. But let them know the problem - that being sequestered and not being able to get your own food (and prepare it) is a medical problem. I don't know the details, but I expect they would let someone bring you particular food...
  15. tarnalberry
    False negatives are not uncommon at all.
  16. tarnalberry
    Well, is your doctor right, despite evidence otherwise (your response to the diet), or are you right? (It's the old "if I hit myself in the head, it hurts. what do I do?" "stop hitting yourself in the head." thing.
  17. tarnalberry
    Your body is producing antibodies to gluten - you need to go gluten free. Test panels are done because you need to read the tests as a whole to find the answer. You may get some negatives, but it's the mix of everything together than gives you your answer.
  18. tarnalberry
    How long it takes varies widely. Some people see improvement in a week, more a month, and some people take closer to six months. But that's "starts to feel improvement". Really, it's a slow healing process, so you may see some improvments, but just small ones, incrementally over time, until - after a while - you're feeling a fair amount better.
  19. tarnalberry
    What they gave you isn't enough. If you didn't get a copy of the lab report itself, but rather a hand written note, demand a copy of the lab report. You need reference ranges to compare the values to. (On a guess, I'm guessing that just the IgG test went positive, but the biopsy results - which are not listed in what you typed at all - were positive.)
  20. tarnalberry
    Talk more about the physiologic symptoms than the behavior ones. Emphasize how those physiologic symptoms are affecting his quality of life. That way, you can tune your message. (I'm not saying to lie or omit anything, but to focus the message to best reach your audience. The poor sleep alone could be causing the fatigue and behavior issues. But then...
  21. tarnalberry
    Bring your own food. Eat your own food. It's worked for me any time I've been out of the house for any length of time covering a meal (including five day backpacking trips). Can you explain why bringing your own food would be a problem? Many, MANY people pack lunches to work/school/etc. all the time.
  22. tarnalberry
  23. tarnalberry
    There are other things that can go wrong with the body besides celiac, so there is no reason to expect going gluten free will be a cure-ALL. But it's also hard to know if there is a second issue occurring at the same time, or if symptoms are gluten related. At one month gluten free, it hasn't been very long at all, and many chronic issues may take a year...
  24. tarnalberry
    While wrinkles are a good deal genetic, diet plays a major role. Are you getting plenty of fat in your diet? Especially omega-3's? It's one of the best things you can do for your skin (not to mention a bunch of other systems ).
  25. tarnalberry
    While I don't agree with the reasoning behind your choice, the only thing that really matters is that YOU are COMFORTABLE with your choice. Anything else is going to feel forced - to both you and your daughter. Be confident that you are making the best decision for YOUR FAMILY AT THIS TIME; it's all we can do.
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