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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Oat- Oatmeal Yes/No
tarnalberry replied to Bobbijo6681's topic in Coping with Celiac Disease
I'm afraid there isn't an easy one-size-fits-all answer for this one. Most commercial oats have been tested (independently) and shown to be contaminated with gluten, at levels above anything anyone considers possibly safe. (We're talking microscopic amounts here.) But, as you note, there are "certified gluten free" oats available. However, the primary... -
ARCHIVED Help Needed With Low Gi Breakfast Ideas!
tarnalberry replied to Tick's topic in Coping with Celiac Disease
This is why glycemic load is more important than the glycemic index of any one food. You may find that, despite millet being the base ingredient, because it is combined with more slowly digested foods, the glycemic load of the museli as a whole actually is NOT that high. For me, glycemic index tables don't actually do a lot of good on day to day decisions... -
ARCHIVED Negative Transglutaminase Antibody, Autoimmune Disease, Pain
tarnalberry replied to gofigerr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If something bothers you, why eat it? It's hard to say, from the experiment that you did run, what the problem is. You can certainly try a dietary challenge, but try to keep a food log, and try to be a little more systematic about it. It might not be all carbs, it might be grains. It might not be all grains, it might just be gluten (or one other grain... -
ARCHIVED Gluten Contamination From A Buffet?
tarnalberry replied to itfigures's topic in Coping with Celiac Disease
Possibilities: 1) seasoning on the potatoes 2) shared cooking surface for the potatoes 3) pancake batter added to eggs, esp. if scrambled 4) contamination from nearby things in the kitchen (bread board near the fruit tray) 5) contamination from other people's plates (or utensils - ick) in the buffet stations themselves Buffets are notorious for contamination... -
ARCHIVED Most Accurate Food Allergy Testing
tarnalberry replied to Myooshka's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The MOST accurate way to test for food allergies is dietary challenge. Any serology is hit or miss at best (though still better than nothing). Skin prick tests are notoriously unreliable, and will catch large reactions, but not smaller ones. If you want to start with serology, I'd start with the IgG and IgE tests; even dyed-in-the-wool traditional allergists... -
Are you working with a psychologist at all? While my thoughts are a little different than mysecretcurse's, it's in the same camp. Stress can make you feel like crap. And I don't mean the purely dismissive "oh, you're stressed; go get some exercise" thing. I mean long term, chronic stress, even at moderate levels that you might not think of as stress any...
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you're eating gluten when you eat soy sauce that's made with wheat (any that's what the soy sauce that is out at a japanese restaurant will have), and you ate gluten when you had meatballs with (presumably wheat) flour. if you want to feel better, you must avoid ALL gluten. you can get wheat-free tamari (San-J, for instance) or a couple of gluten-free soy...
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ARCHIVED Glutened By Canned Salmon
tarnalberry replied to Julysailor's topic in Coping with Celiac Disease
I've had theirs, and not had a problem with it. Heck, the canned salmon I had wasn't even in broth, just water with a little salt added. Could it have been something else you ate with the salmon? -
ARCHIVED Testing - How Long After Starting To Eat Gluten?
tarnalberry replied to kampingal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
2-3 slices of bread a day (or the equivalent) for 3 months. -
ARCHIVED How Long Can I Be Gluten-Free Before It Affects Biopsy Results?
tarnalberry replied to rachel-gf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
How quickly the gut heals varies from person to person. Some see distinct improvement in a few weeks, others take months or more. But I certainly wouldn't expect accurate results if you're gluten free for two months prior to a biopsy! And, honestly, you don't need one. It's fairly old-school to rely on the biopsy as the only way to conclusively diagnose... -
ARCHIVED My Stomach Is Killing Me!
tarnalberry replied to jenngolightly's topic in Food Intolerance & Leaky Gut
As was pointed out, it could just be that your stomach was not happy to have Skittles - even if they are Gluten-free Casein-free. My stomach usually can't handle them either, certainly not more than 5 or 6 pieces. Just because something irritates your stomach doesn't mean that it has gluten (or dairy). (There's a fair amount of candy that my stomach isn... -
ARCHIVED We'Ll All Be Eating Gluten In About 15 Minutes...Sorry
tarnalberry replied to camprunner's topic in Coping with Celiac Disease
If someone asks me to bring food, I'm not bringing it unless I can eat it. I think it's inexcusably rude to expect someone to bring something that is harmful to them, and I would suggest you not let your friends get away with that. As for the pizza and the lasagna... Well, there are a lot of things that I and my husband eat differently. Sometimes, I... -
ARCHIVED Trying To Go Cf
tarnalberry replied to jenngolightly's topic in Food Intolerance & Leaky Gut
While I am casein intolerant, I found that I didn't have any problems with the pharmaceutical grade lactose that was in my meds. Your mileage may vary, of course, but I don't worry about casein in pharmaceutical grade lactose. -
ARCHIVED Positive Blood Test But Doctor Suggesting That I Eat Wheat?
tarnalberry replied to KristenInWA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your post said, and I quote the original, as it stands when I type this today: "There are DNA tests available that will either rule you out completely, or include you in the possibility that you may have celiac disease." That statement is not true. Your post said, and again, I quote the original, as it stands when I type this reply: "The DNA test... -
ARCHIVED People Who Don'T Understand The Seriousness Of Celiac
tarnalberry replied to sandsurfgirl's topic in Coping with Celiac Disease
This is what I would have assumed. Because, it's my opinion, being gluten free for over six years, and dairy free for over five, it's not "that big of a deal". That's a relative phrase, of course, but it's not "incurable" (in so far as staying gluten free puts the autoimmune disease in complete remission, and celiac is the ONLY AI disease where we know... -
ARCHIVED Thinking About Another Pregnancy
tarnalberry replied to Healthy's topic in Related Issues & Disorders
It's worth noting that midwives are generally prohibited from caring for high-risk pregnancies by either state laws, insurance provisions, licensing standards, or some combination of the three. No reason that you can't see one *in addition* to an OB in that case, if you can find one who'll see you. And I don't know that you'd qualify as high risk - usually... -
ARCHIVED Advice For A New Mom?
tarnalberry replied to Emily Elizabeth's topic in Parents, Friends and Loved Ones of Celiacs
For us anyway, it's because that's how we decided to do things. My husband is a picky eater, and I trust him to be responsible for his own things. So he has a shelf (that I can't really even reach) for his cereal, granola bars, and oatmeal. He has a toaster and cutting board for frozen waffles and french bread. Everything else is gluten free. It works... -
ARCHIVED I Think My Dog Has Pink Eye!
tarnalberry replied to purple's topic in Introduce Yourself / Share Stuff
I would strongly encourage you not to "self-diagnose" your dog - dogs can have issues that look like pink eye but are caused by different things, quite often something very small in they eye (particularly caught under the third eyelid). Call the vet, and leave a description. You may find that you need to make the hour long drive, but perhaps they can help... -
ARCHIVED Advice For A New Mom?
tarnalberry replied to Emily Elizabeth's topic in Parents, Friends and Loved Ones of Celiacs
The researched "magic window" so far is actually 4-6months. Open Original Shared Link, Open Original Shared Link Why they tested that time frame, when all the recommendations are to avoid solid food when possible before 6 months is beyond me, but that's what the research shows. I'm almost certainly going to wait until after a year, as there are all... -
ARCHIVED 3 Months Of Gluten Free
tarnalberry replied to secretsauce's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your test results are a classic negative for celiac disease. They didn't run the exact tests you requesd (looks like they left out the anti-gliadin IgG, at the least), but didn't give you quantitative results on three of them because they were below their range for negative. If you had been gluten free for any significant length of time (say, more than... -
ARCHIVED Cultural Aspects Of Food
tarnalberry replied to sandsurfgirl's topic in Coping with Celiac Disease
You don't have to lose the whole experience. We seem to often feel that we can't have the social experience that comes with "eating dinner" without the food. But you can. Is it exactly the same? No. But it changes throughout life anyway. Take your food and enjoy the company! Yes, at first, you'll be doing it because it's a practice. But over time... -
ARCHIVED How Do You Get More Fiber
tarnalberry replied to Kathleen Smith's topic in Coping with Celiac Disease
Some items and their fiber count Beans (navy) 19g/cup Split peas 16g/cup Lentils 15g/cup Beans (black, pinto, kidney) 14g/cup Garbanzo beans 12g/cup Raspberries 11g/cup Green peas 9g/cup Blackberries 8g/cup Pumpkin 7g/cup Sweet potato 6g/cup Broccoli 6g/cup Greens (turnip, collard, etc.) ~5g/cup Blueberries 5g/cup Carrots 5g/cup Pears 5g... -
ARCHIVED To Test Or Not To Test?
tarnalberry replied to MissKristy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There's no right answer here. You're right about needing to be eating gluten for a reasonably accurate test. (You'd need to eat the equivalent of three slices of bread a day, for three months, to have confidence the blood tests could pick up antibodies to gluten.) For some people, it's important. They need the "officialness" of the diagnosis. They... -
ARCHIVED How Long On Gfd Until Improvement Seen?
tarnalberry replied to mhalpin12's topic in Dermatitis Herpetiformis
Yes, going gluten free and seeing how it goes is perfectly valid. But only do it if you know you can trust yourself to be honest with yourself. If gluten *does* cause problems (anything, really), then you need to be honest that you can't have ANY, and not just sneak a little here and there because there isn't an official DX. For some people, that works... -
ARCHIVED How Can Getting Glutened Once Cause Months Worth Of Symptoms?
tarnalberry replied to srthomas21's topic in Coping with Celiac Disease
Ditto this. The celiac autoimmune reaction can be self-sustaining for two weeks, so, I can honestly see two or three weeks for someone sensitive, but months leads me to believe that there is an underlying complication. However, your post implies something a little different. You are talking about only having ever been gluten free for six months, minus...