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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    The blood tests don't give false positives (that's not 100%, but it's about as close as you can get with any diagnostic blood work). The biopsies *can* give false NEGATIVES if they don't biopsy the right place, expect more damage than you've yet had, or you just happen to heal quickly. You have your diagnosis - a positive blood test and a positive dietary...
  2. tarnalberry
    I take Rainbow Light's Open Original Shared Link. It does have a couple of extra things - dong quai, spirulina, red clover, kale, spinach, dandelion greens, and beets, and some digestive enzymes and probiotics - though. It's never bothered me at all, but I'm not the most sensitive in the world.
  3. tarnalberry
    You can still use packets of tuna (not cans, but the pouches). You just have to put them in your trash bag (usually a good ziploc) and hang your trash with your food anyway. (BTW, an Ursak is GREAT for food.) (ALL food you bring is going to attract animals. Hence food is put in its own bag, and hung from a tree. I use a combination of odor proof bags...
  4. tarnalberry
    turns out for me, dairy was what left me with constipation. have you looking into other food intolerances?
  5. tarnalberry
    The other trouble you run into if you coat the foods (I don't think I'd like to eat them this way, to be honest) is that rather than introducing one food at a time, you've got two foods going on. IF you are doing one food at a time (not yet mixing them), it would be an issue. If you're not, no problem.
  6. tarnalberry
    Lots of us are dairy free. How dairy free you are depends on what your problem is. If you're lactose intolerant (common in the early stages of healing, before the villi have recovered), then it's avoiding milk, and/or taking a lactase enzyme when you have dairy. If you're casein intolerant, degrees of intolerance vary. Some people avoid any dairy strictly...
  7. tarnalberry
    What tests did he run? What were the results? The tests are not a clear cut yes/no - they generally need a fair amount of interpretation. Have you tried the diet? That is a valid, and important, test itself.
  8. tarnalberry
    Gliadin is the protein in wheat. The human body does not make it. Celiacs create anti-gliadin antibodies when exposed to gliadin, but on when exposed to gliadin and the glutens that are similar to it - horedin (barley), secalin (rye), and (for some) avenin (oats). Allergies to other foods are an independent reaction from that immune system creating antibodies...
  9. tarnalberry
    Lentils - ~16g/cup Black beans and pinto beans - ~15g/cup Kidney beans, garbanzo beans, and lima beans - ~13g/cup Green peas - ~8g/cup Blackberries ` ~7g/cup Pumpkin - ~7g/cup Broccoli - ~5g/cup Pears - ~5g/each Sugar snap/snow peas - ~5g/cup Sweet Potato - ~5g/each Carrots - ~5g/cup And that's without touching a single gluten free grain.
  10. tarnalberry
    I sympathize, but you absolutely need to keep her in the crate. When Neo had his shoulder surgery (7 months old), he had to be kept crated for four to six weeks. NOTHING outside the crate for the first two weeks, outside of pottying (we even had him on leash as we took him from the crate through the house to outside). After that, it was gradually increasing...
  11. tarnalberry
    If a doctor "accused" me of doctor shopping, I would find the only appropriate response to be "yeah, damn right I'm doctor shopping. why should I pay for crappy service when I can get better? are you going to provide that better service or do I need to find someone else?". And no, I'm not kidding. If they don't want to be a SERVICE PROVIDER then I'll...
  12. tarnalberry
    Outside of any concerns of contamination (and everyone has their own approach to how conservative they are on this one), fruits don't have gluten and sulfur dioxide is not a gluten containing ingredient. (I eat the dried mango from whole foods all the time. )
  13. tarnalberry
    Yes, lactose intolerance can develop after you are gluten free - but there may or may not be a connection. Lactose intolerance in adults is, throughout the world, QUITE COMMON. It is more rare to be able to digest lactose into and through adulthood than to be lactose intolerant. Genetically, once we are done weaning, we tend to produce less and less...
  14. tarnalberry

    ARCHIVED What A Let Down

    tarnalberry replied to jenngolightly's topic in Doctors

    skin tests are notoriously unreliable for food allergy testing, and blood tests aren't a whole lot better (but somewhat). they are safer than the gold standard that an allergist will do - challenging with a food in office. I have had three skin tests in my life, and haven't personally had the "lack of any reaction". It will certainly make testing harder...
  15. tarnalberry
    Pharmaceutically, I used a combination of mirapex (as a sleep study determined I had restless leg which impacted my sleep which had a HUGE impact on my fibro symptoms) and cymbalta (as a meeting with a pain-specialist psychologist determined I had cocommitant mild-moderate depression). Both those did help. But it is VITAL to keep up with the non-pharmaceutical...
  16. tarnalberry
    Some of us do, some of us don't. I don't generally worry about it, and haven't had a problem, but I'm not the world's most sensitive celiac either. Others find they have to completely stay away from things made in shared facilities. I would remind you, however, that if there is any gluten containing food in your house, or guests ever bring in even a...
  17. tarnalberry
    That's fair - 3 months on a strict gluten-free diet generally ought to show *some* change (though not necessarily complete relief, of course). I'm not a huge fan of genetic testing. It gives you a clue, but it's like a riddle - the clue is hard to gauge for its real value. If you've got the patience for it - and it sounds like you do - I would go with...
  18. tarnalberry
    what to do if you go gluten free now, the blood tests come back negative, and the doc wants a biopsy? well, by then, you'll know if the gluten free diet makes any difference - if it does, say no to the biopsy and keep him gluten free. for some docs the dietary change is enough to diagnose, for others it isn't. but no doctor's approval is needed to maintain...
  19. tarnalberry
    when you take out gluten and dairy, you probably put something in it's place. what? if you're eating lower fat and lower protein, sure you may have more hypoglycemic issues, but it's not because you're gluten and dairy free, it's because you need more fat and protein. (honestly, I find the hypoglycemia requires me to do more "from scratch" cooking than...
  20. tarnalberry
    1. What you describe is consistent with a baby with celiac. That doesn't mean it's not something else, but it's not inconsistent. 2. Depends on if you're going to do any more diagnostic testing. If you're going to do a biopsy, or further blood work, she needs to be on a gluten-containing diet. But since the celiac panel has been run (assuming it was a...
  21. tarnalberry
    If they're asking for the security code on the back of the card, that's pretty common, even among major online retailers. It's to verify that you have the card in your possession, and that the number wasn't read off of something else. (Not sure how useful it is, 'cause it needs security too, but that's the goal.)
  22. tarnalberry
    I look forward to joining you guys after the baby comes! The scale is up to 150 (which is 5 pounds shy of what I've topped out at life-time; I'm 5'3" and small framed), and I know the baby needs it, but man, I look forward to being able to get more aerobic exercise. I do teach yoga, so I'm getting 1.5-3 hours of yoga a da, not to mention walking the dog...
  23. tarnalberry
    Since celiac? Fibromyalgia/restless leg (and it wasn't just diagnosed after I went gluten free, it started after that). Everything else - asthma, vulvar vestibulitis, chronic migraines, hypermobility - was before celiac, some long enough before that I am certain they are not related (and I'm actually sure that none of the others are related - for me - because...
  24. tarnalberry
    Personally, I don't find genetic testing very useful. It can't actually rule out celiac disease - not all genes that contribute to celiac are tested for. It can't actually rule it in - 30% of the population has at least one of the two most common celiac genes, but only 1% develop celiac disease. I could see using it as a screening, but you already have...
  25. tarnalberry
    There is a huge difference between "no significant change" and "no change at all". Two questions: 1. Are you certain you are completely gluten free with no contamination? New wood cooking things (cutting boards, spoons, etc.), new colander, no shared scratched non-stick pans, no shared condiments, no hidden gluten in food items (soy sauce, etc.) or other...
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