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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    and to add to what tim-in-va said, negative blood work but a positive biopsy can be caused by other things. not as common, but still possible. enteropathy (destruction of the villi) has been documented other causes - including dairy. (this is rare and I do not suggest that we should all go dairy testing if we're otherwise feeling fine.)
  2. tarnalberry
    choose other foods higher in protein. beans/legumes, whole (gluten-free) grains, soy (in moderation), dairy (if you can have it), eggs, nuts/seeds, plenty of whole vegetables. with that, and eating meat once or twice a day, you don't need supplements to get to 100-120g of protein a day. there are gluten free protein powders out there aplenty. do you...
  3. tarnalberry
    Steaming is very boring. I find that there are some vegetables it works well for, and others that it fails to bring out the good flavors. Leafy greens are one of the latter. Sautee - in a pan, on high heat, with oil, and an aromatic - the vegetable. It will allow for a little bit of a different flavor which, imho, makes all the difference in the world...
  4. tarnalberry
    "Get over it" was meant in a friendly, "this is what I did" sort of way. (It's such a loaded phrase - it's usually said with a direct, in-your-face, well-isn't-this-obvious sort of tone. But it doesn't have to be used that way. I usually use it in a sympathetic, hard-but-no-other-good-option, this-will-take-a-while tone.) Because, no matter how friendly...
  5. tarnalberry
    Yup - sometimes the damage takes a while to accumulate to the point where you NOTICE it. Doesn't mean it's not there, just means you don't notice it. (Like four days after you dust - there's some dust accumulating again, but you don't *notice* it for another couple weeks.) Celiac isn't something that can be treated once and then ignored, unfortunately...
  6. tarnalberry
    a little olive oil and fresh garlic is all I use to sautee almost any of my greens. (and some salt. ) Different ones are better than others; I like chard far more than I like kale. Rinsing isn't too hard - separate the leaves (undo to the twist tie, cut off the 'roots'), stick 'em all in a colander (or half at a time), and rinse with the water...
  7. tarnalberry
    ANY changes are important to note. And I really mean ANY - digestive or not.
  8. tarnalberry
    She'll need new prenatals, obviously. But there are LOTS of gluten free grains, and they're pretty hard to find in any fashion other than 'whole' (unprocessed). Brown rice, wild rice (not technically a grain), buckwheat (kasha), quinoa, amaranth, teff - are all gluten free and a good source of fiber and complex carbs. On the other hand, I have no idea...
  9. tarnalberry
    You will find no scientifically reliable reference that states that the blood tests for gluten intolerance are both 100% accurate and 100% specific. They are highly specific, but accuracy ranges with the suite of tests run (and analyzed in tandem), and generally do not get over 90%.
  10. tarnalberry
    TotalKnowledge, it boils down to this: Not everyone is like you. Different people are going to have different preferences on how they "know" they can't eat gluten. Some may find a single dietary challenge enough to be convinced beyond doubt that they must forevermore eliminate every crumb of gluten. Some people will not be so certain that gluten is...
  11. tarnalberry
    BTW, yelling at you to eat something and threatening to hit you IS ABUSE. It's just.... ..... WRONG! GAH! (at your father - and mother for supporting him) What HORRID parenting! Sorry, but there is really no excuse for their behavior. You could try to reason with them, and say that you'll eat all kinds of X, Y, and Z, and they can watch. Just not...
  12. tarnalberry
    Yes, it is covered by the ADA. Though lawyers to enforce that might be expensive. I'm surprised you couldn't get a private loan. I had one (my undergrad was also ~32k/yr), and had no trouble getting approved. It was, specifically, however, a private student loan, not a random "go to the bank, ask for a 10k loan". Have you tried working closely with...
  13. tarnalberry
    I thought you said you were going to try a dietary challenge (where you avoid the food being challenged for a while, and then try it for a few days, and see what the results are). Specifically, a challenge to determine whether it's gluten intolerance or wheat allergy, so you would have to avoid rye or barley (not wheat, since you already know wheat bothers...
  14. tarnalberry
    how did your dietary challenge with a non-wheat gluten source go?
  15. tarnalberry
    This is something that comes up from time to time: "I didn't have a choice." Yes, you did. You might not have liked the consequences of not eating it (going hungry, upsetting a family member, looking awkward in front of others, etc.), but YOU control what YOU pick up and what YOU put in your mouth. (Unless someone is literally force feeding you, of course...
  16. tarnalberry
    gah! please stay away from anyone who would force food down your throat. (I'm not even sure that's legal.) it could well still be allergic if it doesn't happen to the same degree every single time, but yes, some people do find that their reactions are worse after being gluten free for a little while, usually not that soon, but it's not out of the realm...
  17. tarnalberry
    I certainly hope there's no one *FORCING* you to eat gluten! What you describe sounds more like an allergic reaction, and pretty significant one! You might consider seeing an allergist about possible allergy testing, and avoid the culprit(s) in the mean time.
  18. tarnalberry
    you're a silent celiac. you don't get noticeable symptoms (well, that you connect to eating gluten, anyway), but you do still get intestinal damage and inflammation. this also makes you an 'untreated celiac' (since you still eat gluten - presumably at least a tiny bit once every two weeks?). this decreases your life expectancy by approximately 10 years...
  19. tarnalberry
    soy free chocolates: Michel Cuizel (French) Chocolate Bonnat (French) Slitti (Italian) Bernard Castelain (French) Domori (Italian) Theo (US) Available in some stores (Whole Foods, Pier 1), and online (I use Open Original Shared Link)
  20. tarnalberry
    I generally notice a fibro flare if I'm not "eating well". It's not a particular food that's the issue for me, it's an overall balance of fresh foods (and not too carby ). Of course, not taking my supplements makes it worse too.
  21. tarnalberry
    quite honestly, most of the time, you can't. at the least, you can't be certain. what I do when I get intestinal issues that are possibly consistent with gluten contamination, I review what's gone into my body over the past two days. could anything have been contaminated? if so, I just make a mental note to be aware of what it was. (if it's cross-contamination...
  22. tarnalberry
    a gluten-free label just means "no gluten detected" and that's usually subject to the test's limits, like 20ppm. a gluten-free label does *not* mandate "no gluten ingredients". that being said, we've had the distillation discussion a number of times. the collective hive mind came to pretty much the conclusion that mamma goose left - in theory, a thorough...
  23. tarnalberry
    Not True! (though I probably wouldn't have sweet peppers (red/yellow/green peppers), if you're allergic to both tomatoes and potatoes - they're in the same family) that leaves you with things like - "grains" - buckwheat, millet, quinoa, amaranth, and teff vegetables - summer squash (zucchini, crook neck, etc.), winter squash (acorn, pumpkin, butternut...
  24. tarnalberry

    ARCHIVED Choosing A Doctor

    tarnalberry replied to njbeachbum's topic in Doctors

    I don't have a GI. Never have seen one. Totally IMHO, but I think that if you've got a pretty uncomplicated case of celiac (not a lot of concomitant issues), I don't think a GI is necessary. Of course, you'd still want a GP who is aware of celiac, and willing to work with you when you suspect something is up. But I'm a *very* involved - if not the leading...
  25. tarnalberry
    I did this yesterday. I now have 18 breakfasts sitting for me in the freezer. To make the pancakes a little heartier for grab'n'go, I'll put peanut butter on them after I've reheated them. weird, but effective.
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