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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED How Much Protein Do We Need?
tarnalberry replied to shirleyujest's topic in Related Issues & Disorders
Well, there are gluten free grains that are higher in protein content than wheat - wheat really isn't special in it's protein content. And your needs will vary depending on your body (it's natural state, what you're doing with it, any stresses it's under, etc.) But, for instance, if I'm eating 1600 calories per day, and want 25% of my calories to be protein... -
ARCHIVED Interesting Info On Cross "contamination"
tarnalberry replied to mattathayde's topic in Coping with Celiac Disease
eh, one of the important parts of effective communication is speaking the language of the audience. if you want to use the "proper use" argument, we should not be using the term gluten as we do, because it technically refers to a whole lot more than wheat, barley, rye, and oats. but we use it because of history and context, and for some people it creates... -
ARCHIVED Restless Leg When I'm Tired
tarnalberry replied to glutenfreejenny's topic in Related Issues & Disorders
Based on my research, I'm not particularly interested in trying guiafenesen. There's plenty of peer-reviewed research to suggest it's equivocal or not effective. And, based on my reading of research looking for the cause of fibromyalgia, I suspect that the same symptoms are caused by a couple of different things, and salicylates are almost certainly not... -
ARCHIVED Anyone React To Gluten Free Oats?
tarnalberry replied to Crayons574's topic in Coping with Celiac Disease
I would wait about six months, myself. Maybe four if you feel totally great in four months. But you want to give your intestines time not only to clear out any existing gluten reaction, but repair the gut as well. (The gluten molecule just triggers the immune system to attack itself - the immune system reaction is somewhat self-sustaining, and can continue... -
I never do mine with dairy (being dairy free and all), and it can be just fine. It depends on what flavor you go for - you can make *SO MANY* different flavors out of risotto. (I also never add peas - can't stand them mixed in most things. The aesthetics disturb my taste buds. ) I'd look up different recipes, and modify as you like, because it *really...
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ARCHIVED What To Do With A Can Of Salmon?
tarnalberry replied to shirleyujest's topic in Gluten-Free Recipes & Cooking Tips
salmon pasta salad w/ lots of veggies, and a balsamic vinaigrette. NOM! -
It is very difficult at first. But it's creating a new habit, and that's hard. Don't let the task deter you! Wheat, barley, and rye are out. Oats are questionable - you have to figure out for yourself. But everything else is fine. Packaged products are tricky, but there's a whole host of whole foods that are naturally gluten free.
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ARCHIVED Anyone React To Gluten Free Oats?
tarnalberry replied to Crayons574's topic in Coping with Celiac Disease
The reason why is because the oat protein - avenin - is molecularly very similar to gliadin - the wheat protein. Some people's systems do not differentiate between the two, and react to oats. -
ARCHIVED Hypoglycemia + Celiac Disease
tarnalberry replied to bbbjenkins's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Any particular reason you're not eating after 6:00pm? If your hypoglycemia isn't in a happy state, that's 12-14 hours without food! That's going to cause most hypoglycemics serious trouble. If you think eating is causing the syptoms you describe which prevent you from sleeping, I'd check into stomach issues - reflux in particular, and food intolerances... -
ARCHIVED Benefits Of gluten-free Diet If No Allergy
tarnalberry replied to sharkmom's topic in Coping with Celiac Disease
There isn't a single answer. Since they share your genes, they may find that they also do better without gluten, but may not notice as big a difference. Or they may not notice any difference at all. Since they share your house, they will increase your risk of contamination. It's a "figure out what works for you and your family". In my house, my... -
ARCHIVED Celiac And Vulvodynia And Vaginal Issues
tarnalberry replied to fiore's topic in Related Issues & Disorders
Do check out the available support groups for other ideas. It seems like there are sub-types, difficult to distinguish from one another, that need different forms of treatment. Some people do well with lidocaine, I know, and it makes others worse. Some people found success with tri-cyclics, others got nothing but side effects. Some people find that identifying... -
ARCHIVED Help With Testing While On gluten-free Diet?
tarnalberry replied to Crayons574's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
After a year gluten free, you won't find much. Even Enterolab says that about a year is how long they have a decent chance of detecting gluten intolerance. I would encourage you to become more self-confident in the self-testing you did. Really *own* that knowledge. It doesn't matter if your family believes you or not, they just have respect your decisions... -
ARCHIVED Hypoglycemia + Celiac Disease
tarnalberry replied to bbbjenkins's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have found, with my hypoglycemia, that it's a careful balance of protein, fat, and carbs. So, if there isn't enough fat - no good. If there isn't enough protein - no good. If there isn't enough carbs - no good. It took a while to figure out what worked for me (what ratios), and that changes sometimes. For now, you might try eating small amounts more... -
because the site doesn't allow uploading images. (from a website admin perspective, there are a number of good reasons for this - storage volume, bandwidth, etc). you'll want to find a image hosting service (flickr, picassa, etc.), upload the image there, and then link to that url. (please note that I'm not a moderator here, but am somewhat familiar...
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My husband isn't a fan, so I don't make it often, but definitely. Risotto is just a variety of rice, like sushi or long grain. (Incidentally, in a pinch, you can use sushi rice for risotto; not quite the same, and I wouldn't use the sub in reverse, but it's got enough starch that it will cream a bit.) My thanksgiving mushroom 'stuffing' is risotto based...
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ARCHIVED I'm Living Inside A Box
tarnalberry replied to jasonD2's topic in Coping with Celiac Disease
not everyone likes the taste of bean flour - some people find it far too strong. there are a lot of different tastes in the gluten-free world. you can't try one type of bread, say "eww, all gluten-free bread sucks". there's a HUGE variety, and you have to experiment to find out what YOUR tastebuds like. -
ARCHIVED Celiac And Vulvodynia And Vaginal Issues
tarnalberry replied to fiore's topic in Related Issues & Disorders
I have vulvar vestibulitis myself. I tried the low oxalate diet (didn't help), and yeast may have been involved, but I do not think that was it. I was fortunate not to get the doctor run around (ditch a doctor who tells you that the vulvar burning is nothing), but it still took about a year to get in with a specialist. A year of PT after that, three years... -
ARCHIVED So Delicious Coconut Milk?
tarnalberry replied to KarenFe's topic in Gluten-Free Foods, Products, Shopping & Medications
they also have a straight up milk (coconut based) in the dairy case. quite tasty - better for milk use (like cereal) than canned stuff. ) I've tried most of the flavors of yogurt - all are yummy! -
ARCHIVED What Has Casein But No Lactose
tarnalberry replied to JBaby's topic in Food Intolerance & Leaky Gut
no dairy products can be certain to have *NO* lactose. if you want to do a test, eat something low lactose (harder cheeses or yogurt) WITH lactaid. if you find you have some variety of reaction, it's almost certainly from the casein. -
ARCHIVED Does This Sound Like Diabetes?
tarnalberry replied to Mord's topic in Related Issues & Disorders
Not without appropriate testing. And I wouldn't with only those symptoms. Not if you don't get symptoms of blood sugar highs when you're not OD'ing on apples. It could be an issue with apples. It could be an issue with yeast. It could be a sugar intolerance. It could be a lot of different things. If you suspect diabetes, PLEASE go get tested. It... -
I imagine those in Portland, particularly near Alberta, know about this place already, but for those who don't know about it - YUM! LOTS of gluten-free options for breakfast, lunch, or dinner. Many vegetarian/vegan options. Many can be CF and/or SF as well. Tasty food. Good prices (virtually everything is <$10, a number of options under $7). Fun...
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ARCHIVED Does This Sound Like Diabetes?
tarnalberry replied to Mord's topic in Related Issues & Disorders
Is that your only symptom? I would take a look at the available lists of symptoms of diabetes, and see if you have any of the other ones... -
ARCHIVED Restless Leg When I'm Tired
tarnalberry replied to glutenfreejenny's topic in Related Issues & Disorders
I should have added, RLS SEVERELY impacted my sleep. Like total brain fog, tired all the time, major contributor to my fibromyalgia impact to my life because I could not get good quality sleep *ever*. And I didn't have the worst case either. A very low dose prescription Mirapex worked fabulously (as long as I took it on time ), until I needed to get off... -
ARCHIVED Pregnant & Wondering What Is Wrong ?
tarnalberry replied to youngdecor's topic in Related Issues & Disorders
this is a tricky situation - if you want a medical diagnosis, you need to have formal testing, which means you need to continue eating wheat. but that will not help you gain weight if you do have it - which is certainly possible. it's a decision you'll have to make: try the diet for empiric evidence and the chance of being able to gain weight and absorb... -
ARCHIVED Tried Regular Oatmeal Twice
tarnalberry replied to sixtytwo's topic in Coping with Celiac Disease
it's worth adding that since avenin, the oat protein, and gliadin, the wheat protein, are structurally so similar, approximately 10% of celiacs DO react to pure, truly wheat free,oats exactly the same as they do to wheat.