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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Restless Leg When I'm Tired
tarnalberry replied to glutenfreejenny's topic in Related Issues & Disorders
Since you describe primarily one leg, and after significant use of it, have you tried seeing a orthopaedist or chiropractor? It could actually be stemming from an issue in the low spine. -
ARCHIVED How Does Your Family Cope?
tarnalberry replied to hrly169's topic in Coping with Celiac Disease
you're mom's right that it is a choice, but you probably also choose to get an education, avoid playing in traffic, and other sensible and healthy choices. she doesn't have to understand your choice, though. she just has to respect that you've made the choice and are dedicated to sticking with it. -
ARCHIVED Failed Methacholine Challenge Test
tarnalberry replied to Roda's topic in Introduce Yourself / Share Stuff
fyi - the inhaled steroids do not have the same frequency or depth of long term consequences (like stunted growth) that systemic corticosteroids do, because they are mostly acting only in the lungs. -
ARCHIVED Failed Methacholine Challenge Test
tarnalberry replied to Roda's topic in Introduce Yourself / Share Stuff
you say he isn't showing any symptoms, and then describe a symptom - holding his chest and having some difficulty breathing during strenuous exercise. wheezing is *not* a necessary symptom for having asthma. a chronic cough isn't either. if he's exercising a lot and otherwise eating great and staying healthy, then his tendency towards lung inflammation... -
ARCHIVED Dealing With The Social Aspect Of Celiac Disease
tarnalberry replied to gluten-no-more's topic in Coping with Celiac Disease
your friends aren't treating you different when they ask where you can go - they're treating you like a friend. you ARE different, in that you have a dietary restriction they don't have. it's FABULOUS that they are so accommodating. I understand that it can feel awkward to have anyone pay any extra attention to you, but if you were pregnant, they'd also... -
if something needs to be said about it, I go with "I'm gluten intolerant, so I can't have wheat, barley, rye, or oats." explained. if someone who deserves more explanation asks, I say "I have celiac disease, so eating those foods triggers an autoimmune reaction that damages my intestines." no more explanation needed. if someone says ...
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ARCHIVED How Many People Are Actually Self-diagnosed?
tarnalberry replied to no-more-muffins's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
it's not as clear as "biopsy-diagnosed" or "self-diagnosed". There is a lot of area between those two. For instance, some doctors will diagnose based on just blood work, or even just a positive response to the dietary change. It's not a black or white line, because testing is just not that reliable in a disease as complex as this one manifests. I would... -
ARCHIVED How Long Should You Try The Gluten Free Diet?
tarnalberry replied to HelpinOhio's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'd stay on it for three months, then do a gluten challenge (something like three to five servings of wheat based items each day). Gluten challenge for three to five days, then gluten free again. See how things change. (And keeping a food diary may help.) -
ARCHIVED Wheat Allergy Vs. Celiac Diseases
tarnalberry replied to DPAZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I wouldn't use oatmeal. Only 10% of celiacs respond to avenin. Rye or barley are your best options for a reasonable test. And how can they say that only 1% are diagnosed if they don't know how many there are? Studies. http://www.ncbi.nlm.nih.gov/pubmed/1257850...=citationsensor You don't have to know how many celiacs there actually are, you just have... -
ARCHIVED Wheat Allergy Vs. Celiac Diseases
tarnalberry replied to DPAZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
want to know if it's a wheat allergy or gluten? eat a non-wheat gluten source. symptoms come back, it's gluten intolerance (if not celiac). they don't, it's wheat. given that only about 1% of celiacs are diagnosed, and the symptoms vary widely (there is no "look" to celiac - it's been disproven as a myth that celiacs are underweight, and not all of them... -
as you've noted that they include neck tension, are they related at all to using the computer or driving? (or sitting in a chair and reading, or something else) a *lot* of headaches can be related back to posture. either from a forward head position putting a lot of strain on the neck, or high shoulders tensing the upper traps placing tension on the...
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ARCHIVED Whole Foods Hot Bar & Prepared Foods
tarnalberry replied to jasonD2's topic in Gluten-Free Restaurants
Yup, I haven't had any problems there either. Occasionally, I'll pass on something that is gluten free, because it's next to something that isn't, and people have been a bit messy in spooning out the stuff that isn't gluten free. But that's about it. -
ARCHIVED Fresh Beans - Gluten-free?
tarnalberry replied to Roboalt's topic in Gluten-Free Foods, Products, Shopping & Medications
Organic simply refers to the use of pesticides and artificial fertilizers in the cultivation of the produce. Non-organic pesticide or fertilizer use does not add wheat, barley, rye, or oats to the produce. -
ARCHIVED Gluten's Impact On Conception?
tarnalberry replied to amwayxsj's topic in Related Issues & Disorders
I'd like to add - as long as you are getting enough nutrition to ovulate (and that includes having enough body fat, as that plays a significant role in the hormone cycle), gluten intolerance doesn't really affect CONCEPTION. BUT it most certainly CAN affect gestation. Nutritional deficiencies can greatly affect what happens as the embryo implants, including... -
I tried a low-oxalate diet before (though I've not heard it connected to zonulin/gut-health). It was for pelvic pain. Unless it means my life depends on it, I will never do the diet again. I know some people *DO* follow the diet, and they do fine, but there are SO FEW vegetables and not a whole lot of fruit you can eat on the diet. No green tea (which...
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ARCHIVED Problem Telling Wait Staff
tarnalberry replied to jasonD2's topic in Coping with Celiac Disease
I'm going to go out on a limb and guess you're feeling that you're going to be - GASP - "different" if you "admit" to having "special needs", and different would be "WEIRD". BAH! We're all different in some fashion. Having confidence that your "differences" are "ok" just means having confidence that YOU are OK! Practice it! Go to places you doubt you... -
ARCHIVED Food Labelling And Protein
tarnalberry replied to dream77's topic in Coping with Celiac Disease
well, it doesn't have to dip, as wheat isn't exactly this super high protein grain that people make it out to be. sure, if you've been depending on things like seitan for protein, you'll have to switch, but if you were using a concentrated, processed grain protein before, then try another one - like rice protein powder in smoothies. quinoa, amaranth, millet... -
ARCHIVED Ice Cream Or Cream Alternative
tarnalberry replied to darkhorse's topic in Gluten-Free Foods, Products, Shopping & Medications
mimiccream is a new thing I've seen at whole foods - made from almonds and cashews. might be worth a try? -
ARCHIVED Omg! I Can't Do This.. :(
tarnalberry replied to Vlo1980's topic in Coping with Celiac Disease
stick to naturally gluten free foods, and it's easier. "cooking" can take all of 15 minutes to chop veggies and meat and make a stirfry. and fruit, vegetables, meat, rice (gluten-free grains in general) are all naturally gluten free. -
ARCHIVED gluten-free Backpacking Food?
tarnalberry replied to eleep's topic in Gluten-Free Recipes & Cooking Tips
it's not worth trying to do in-house freeze drying, when dehydrating is easier, and works just as well. take almost any type of meal you want - I used chili quite often - and stick it in a dehydrator and dry it out. Take 'em with you in a freezerbag, then you just need to add water directly to the freezerbag, let it "cook" for 5-10 min (wrapped in a fleece... -
oh, so many things come into play here... 1) in the US, there is no legal standard for "gluten free" just yet. it's likely going to be set to 20ppm, but it hasn't happened yet. 2) yes, even at a low level, like 20ppm, if you eat a lot of something, you could get enough gluten to react to. so, you don't want to eat vast quantities of those items. ...
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if it's arthritis, you almost certainly want a stronger anti-inflammatory than tylenol! there are herbals/supplements you can use to help the inflammation. higher dose omega-3 (I'm 120lbs, and I take 8g - yes, grams - a day for inflammatory purposes), bromelain (on an empty stomach, otherwise it acts as a digestive enzyme), and quercetin come to mind.
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ARCHIVED What To Do I'm Driving The Wife Mad...
tarnalberry replied to and-h's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
if you want a dr's diagnosis, you need to be eating plenty of wheat for a couple of months to get a chance at an accurate result. you could do this now if you want. or, since you KNOW that wheat and dairy bother you, you can eliminate them. (as more than one doctor I've had says: 'if hitting yourself over the top of the head with a brick hurts, perhaps... -
ARCHIVED Artificial Sweetener's Side Effects & Dangers
tarnalberry replied to oblio-a's topic in Gluten-Free Foods, Products, Shopping & Medications
erythritol is not an *artificial* sugar alcohol, though it is a naturally occurring sugar alcohol. it occurs in fruits, but when mass produced, is usually made from fermenting glucose with yeast. it *is* absorbed by the body, and is unlikely (though not impossible, of course) to cause the digestive issues - like diarrhea) that un-digestable sugar alcohols...