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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    yup - since you are IgA deficient, you really can't tell, from your tests which are all IgA based, if you've got higher levels of antibodies. you'd have to be retested, so that they can look for antibodies you are not already short of.
  2. tarnalberry
    well... oats are the one place I would say "it's not that they've got gluten, or that they are gluten-free. it's more complicated than that." "gluten", at least as we use it, not as is botanically correct, refers to a cereal protein that someone with celiac disease will react to in an auto-immune fashion. this is true for gliadin (the wheat protein)...
  3. tarnalberry
    have you talked to your doctor about this? i vaguely recall this being something specific - when the blood pressure drop is included. it's not all that uncommon to get a fair amount of burpiness if you happen to swallow a lot of air when you're drinking, but if you're avoiding swallowing air, it's a bit unusual.
  4. tarnalberry
    after toothbrushing? no, i haven't experienced that problem. not saying it isn't impossible, just that i haven't had it. and why has him going gluten free been put in the no category/ it `is` an option. as in, he has the capacity to eat gluten free, and the capability to make that decision if he so chooses. so why have you rejected it/ it might be...
  5. tarnalberry
    without a full set of data (which would require tests from before you went gluten free), you just can't say. there's absolutely no way of knowing. everyone heals at a different rate (and different labs/dr's are better than others about what they pick up on). perhaps you're doing better than you were, but still have a ways to go. (in a situation like this...
  6. tarnalberry
    no, not at all unusual that arthritis would flare, or get that inflammed. that's quite typical of arthritis. did they say if it was rheumatoid or osteo? are you taking regular anti-inflammatories (even things like bromelain on an empty stomach, or higher doses of omega-3 (assuming no blood clotting issues))? regularly icing after extended walks (if those...
  7. tarnalberry
    besides brown rice, quinoa, and oatmeal (if you don't react to it), other gluten free grains you could add are: millet amaranth teff sorgum wild rice buckwheat (most of these are not technically grains, but are treated as such for most food purposes) also, I'm not sure I'm clear on the purpose of the flour restriction. if it's to avoid...
  8. tarnalberry
    it's about balancing the fear of that crumb every day, with the fear of 10 years being lost off your life. (10 years is the average reduction in lifespan for those who get 'contaminated' "often" - every two weeks or so.) you can't live in fear of your counter-tops; that would significantly affect your quality of life. but you can't live in fear of every...
  9. tarnalberry
    the symptoms you provide are very vague, and could stem from a number of things. especially since you don't talk about any findings from an x-rays or MRIs. I *HIGHLY* recommend finding a good orthopaedist who can help you find out what's going on in your knee.
  10. tarnalberry
    a neighbor's child had similar (though not quite as much vomitting) symptoms. turns out it was soy intolerance - no more soy! (so, almond milk, rice milk (but not rice dream), hemp milk... trouble was it was hard to keep soy out when she was dairy free as well.)
  11. tarnalberry
    if he isn't bothered by plain rice, then it'd be a little odd, but not impossible. of course, you don't have to use any substitutes. consider whether or not he's getting enough fiber and other vitamins, as well.
  12. tarnalberry
    Have you told him this? If you generally have done most of the cooking/shopping before, it's not such a stretch to assume that you'll continue to handle it all - which includes finding what foods are gluten free or not.
  13. tarnalberry
    additionally, if he is otherwise getting enough fiber in his diet, check to see how much calcium he's getting (it can be constipating), and how much magnesium (it can loosen things up).
  14. tarnalberry
    you can google for the tietelbaum method, but it mostly consists of a number of supplements. ironically, I take quite a few of them - malic acid I think has been the most useful for me, but B vits, calcium, magnesium, CoQ10, NAC and omega-3 (high dose, 8g/day) has also been useful. Oh, and fixing sleep issues (possibly the hardest part! the sleep study...
  15. tarnalberry
    The question comes down to: how big are the scratches, relative to the molecular size of gluten. Stainless steel generally can be washed very clean, but non-stick pans simply cannot be 'scrubbed down' without ruining the pain. And cast iron has all kinds of divots/pits/texture that can hold on to gluten. If you scour the whole thing down to a new surface...
  16. tarnalberry
    apparently, some very initial study on hydrangea root has been done in the scientific community. (same for ALA) Open Original Shared Link BUT, this isn't saying that it stops the immune system from attacking itself, it's saying that it reduces the inflammation caused by the auto-immune response. A gluten free diet is the only CURE for celiac disease...
  17. tarnalberry
    I'm guessing that they don't actually change the expression of your genes (they don't deactivate the genes, that is), so... no, they're not going to "cure* the autoimmune condition. Your body is still going to recognize wheat as a foreign substance. Whether it is actually reducing expression of that gene, reducing reactivity of the produced immune molecules...
  18. tarnalberry
    Some of those things will probably not end the world as we know it if they go undone. (Though, I do totally understand the feeling of "OMGEVERYTHINGHASTOGETDONEANDIHAVENOTIMETODOIT!AARRGGHH!!!!") Remind yourself of the things that *can* be left undone without the house falling down around you, and let those things slide. It will be ok!
  19. tarnalberry
    I suppose I'm not very tolerant of those who don't understand *AND* won't cooperate. It's not their choice what you eat- it's yours. If it's a little more difficult to eat communally (and it doesn't have to be - my picky husband and glutenfree/dairyfree self eat together just fine), well, you find a way to work it out. But if you're not going completely...
  20. tarnalberry
    I was dx'ed long after I went gluten free (four years or so) and dairy free (three years). I'm firmly convinced that the main trigger for my fibro was chronic, unyielding stress over the course of more than a year. (My boss was trying to get me in trouble.) I don't disbelieve in the guai protocol, but don't strictly believe in it either. A lot of research...
  21. tarnalberry
    you yourself said that you aren't vigilant. that means you're probably getting glutened. have gluten even once a month, well... you're going to feel like crap. and the longer gluten is out of your system, you may find the stronger your reactions when you do ingest some. as has been noted, you call the office and simply ask for them to send you a copy...
  22. tarnalberry
    It's worth calling the company. As I recall, it *used* to contain trace amounts (or, rather, they used ingredients that were derived from gluten containing ingredients), but reformulated and no longer have any gluten. I switched to Crest Sensitive a while ago, and haven't looked back, so I am not certain of their current status.
  23. tarnalberry
    The worst of my migraines came on long after I went gluten free (and dairy free, and I don't eat a whole lot of soy or corn). They got worse when I moved to Washington, and I think they are at least somewhat triggered by weather changes. (Recent study has backed up the "related to the weather" theory.) I had to go on daily preventatives (Topamax, for me...
  24. tarnalberry
    I presume you've already got an array of protein powders to add to your smoothies (and maybe sometimes juice)...
  25. tarnalberry
    The cause of migraines, period, isn't entirely understood. Current thinking is that some trigger causes a change in various levels of chemicals in the brain, the brain responds with inflammation, the inflammation causes the blood vessels to dilate, which presses on nerves and causes horrid, horrid pain. (My bad migraines require me to be stone still, or...
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