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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Someone did a great job testing you - doing the IgG tests because your IgA was low. I hope you get a definitive answer from the endoscopy! Damage to villi can’t always be seen during the endoscopy - it depends on the magnification of the endoscope. So if the doctor says he didn’t see any damage don’t lose hope for a diagnosis, the histopathology on th...
  2. RMJ
    Same here often just the aura, although I did have a painful one last month.
  3. RMJ
    I was tested for celiac disease because of migraines, not gastrointestinal issues. Turns out I have it (blood tests and biopsy positive). I’m strictly gluten free and still have migraines, but overall feel better, more energy. In case the biopsy confirms celiac disease you may want to enjoy your favorite gluten-filled foods while you wait for the n...
  4. RMJ
    Companies might use that statement because the spices are packaged in a facility that also processes items containing wheat, or even packaged on equipment that also processes items containing wheat. So there’s a risk it could be contaminated with gluten.
  5. RMJ
    Some endoscopes that doctors use to look at tissue during the endoscopy have better magnification than others. So sometimes damage can be seen (with good magnification) and sometimes it can’t. I won’t hope that you have celiac disease, but I hope you get a clear cut diagnosis!
  6. RMJ
    You don’t really know if your Ttg-IgG is unchanged or not. Greater than 250 could be 25,000 or 251. It could have decreased from 25,000 to 251. Good job on getting the Ttg-IgA down to near normal! It is not at all unusual for results to still be high after only four months of a gluten free diet. I would be that the IgG has come down but is still a...
  7. RMJ
    Normal hemoglobin levels are defined by looking at results from thousands of healthy people and doing appropriate statistics to get an appropriate range. Those calculations may be revised occasionally, or different in different countries, or a lab could have their own range… Here is an article evaluating the World Health Organization range: Evaluation o...
  8. RMJ
    The only way to know for sure if your villi have healed is another endoscopy with biopsies. However, a good surrogate is to look at antibody levels and see if they have returned to normal. I see in another post that your Tissue Transglutaminase IgA was elevated. Watching my antibody levels told me how strict I have to be with the gluten free diet. I started...
  9. RMJ
    Definitely contact the company. They may have changed something about the manufacturing conditions. When my favorite cocoa powder was suddenly missing the gluten free claim I contacted the company. They had changed manufacturing sites and it was now made on equipment that also processed wheat.
  10. RMJ
    My personal theory is that the company of people is more important than the food. So I have been known to go out with people but not eat anything. Or just eat white rice. None of my friends or coworkers ever made a fuss about my doing that.
  11. RMJ
    Depending on how you parse the “contains” sentence, the wheat might be from the fermentation medium used to manufacture the enzymes. Enzymes are typically manufactured by growing microorganisms (bacteria or yeast) that make the enzymes, and those microorganisms need food!
  12. RMJ
    I was tested (biopsy) for microscopic colitis because of urgency issues. It turned out that I don’t have it, but my gastroenterologist said that it is more common in people with celiac disease.
  13. RMJ
    I sympathize, I’m also asymptomatic. Took me six years to get my deamidated gliadin peptide IgA into the normal range.
  14. RMJ
    How high was his Ttg IgA when he was diagnosed? I.e., is it at least coming down? (Note: can only compare results if they were run by the same lab).
  15. RMJ
    If that’s the typical EMA test the results are given as a dilution. In that case, it would have to be more dilute than 1:10 to be positive, so 1:5 would be negative.
  16. RMJ
    I had few to no symptoms, mainly some nausea. Without symptoms it is silent celiac disease.
  17. RMJ
    A colonoscopy cannot detect celiac disease, it looks at the wrong part of the intestines. Might you be having an endoscopy?
  18. RMJ
    I would probably wait until you’ve been six months gluten free to retest antibodies. They stay around for a while.
  19. RMJ
    My only experience is with the air travel part. You should be able to get gluten free meals, but they must be requested from the airline in advance. You can take plenty of “dry” snacks on planes. The only food limitations would be on liquids. There are cards available in various languages that one can show to a waiter to request gluten free food. H...
  20. RMJ
    You might consider going 100% gluten free IN your house, but allow non-celiac family members to eat gluten outside of the house when not with the 15 year old. This could make it a lot easier for the older sibling.
  21. RMJ
    When a result is reported as >250 it is difficult to see how fast it might be decreasing. It might have been 2500 and it’s down 50% to 1250 but it would still be reported as >250. Samples greater than the upper limit could theoretically be diluted and retested but labs don’t do it because it’s more work/expense for them. In the US the tests actua...
  22. RMJ
    I really wonder what the pediatric GI expects to see, or not see, with a gluten challenge and more testing. Test results are only useful if meaningful action can be taken. What if the results were the same - what would the GI say. What if the antibodies or endoscopy or both were normal - what would the GI say? Not celiac? Or not a long enough challenge...
  23. RMJ
    What is the normal range for your test? It can vary from lab to lab because the units aren’t absolute. My tTg IgA went down to the top end of the normal range within a year, but it took six years for my DGP IgA to become normal. That one still pops into the high range occasionally. If I eat processed foods I have to use certified gluten free foods. ...
  24. RMJ
    Looks like blueberries can turn stool blue or black: How your diet can affect your poop color
  25. RMJ
    Are the masses always there in the same places, or do they come and go? When I was skinnier I could sometimes feel a mass in my abdomen and it turned out to just be a normal part of my intestine with material and/or gas moving through.
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