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Ursa Major

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Latest Celiac Disease News & Research:

Everything posted by Ursa Major

  1. Ursa Major
    Enterolab uses a cheek swab for genetic testing, as in DNA sample, not a stool sample. And you know, if we'd all believe only people who have published stuff (and who says that those published findings have any value?), and the conservative medical community, a lot of us would still be sick. Conventional medicine has completely failed me for more than...
  2. Ursa Major
    Enterolab uses the same lab for the gene test as everybody else. Except that they include more genes in it. So, how does that make it less reliable then?
  3. Ursa Major
    Actually, cholesterol below 200 is worse than it being over 300. Because your body NEEDS cholesterol to function! The reason that they have lowered the threshold now is, that they want to sell you cholesterol lowering drugs (which don't work and are dangerous). Open Original Shared Link Butter will lower the 'bad' cholesterol and up the good. Omega...
  4. Ursa Major
    Two handsome guys! Congratulations, he is adorable, and you look so happy!
  5. Ursa Major
    It is too bad that here in America they are still so hung up on those two 'official' celiac disease genes! I am planning on getting the gene test done with Enterolab as soon as I have the money (daughter is being tested now, more important), just to see which genes I have. They test for a lot more genes than other labs. And you can have stuffing with your...
  6. Ursa Major
    I understand where you are coming from. We used to go out once a week, and for two years I was too afraid to eat out at all. But that is not because of gluten, but because I am intolerant to a million other things. If it was only gluten and dairy I had to avoid, I would be soooo happy! But I can't eat any fruit other than peeled pears, no eggs, legumes...
  7. Ursa Major
    You may want to eliminate dairy as well, it is known to cause constipation. Many of us are casein intolerant as well as gluten intolerant (and lots are soy intolerant as well), and wouldn't get really better until eliminating dairy.
  8. Ursa Major
    I don't believe Prometheus Labs will test for the gluten intolerance genes, only for the 'official' celiac disease genes. If you don't have those, you'll never know if you are non-celiac (according to today's standard) gluten intolerant. Enterolab tests for all of those genes. I'd go with them any day. Plus, they are less expensive. I have heard of...
  9. Ursa Major
    What an adorable little dog! I am glad you are okay.
  10. Ursa Major
    Another thing that comes to mind is, to buy one of those fridge alarms. Then, when you open the fridge while asleep, the alarm will go off and hopefully wake you up. I hope that eating a good snack before bedtime will help. Otherwise you need to figure out something else, as it can be dangerous for you to eat while asleep! Especially because you have no...
  11. Ursa Major
    The diagnosis of IBS is a bunch of BS (pun intended). Because an irritated bowel is a SYMPTOM, not a disease in itself! There is a cause for your bowel to be irritated. And very likely it has to do with food. Personally, I think if you want to spend any more money on testing, make it worth your while and do the Open Original Shared Link tests. Even though...
  12. Ursa Major
    While false negatives are very common with the bloodwork as well as the biopsy, false positives are practically unheard of with celiac disease. It is very likely that your bloodwork is right, and you do have celiac disease. Try the diet, and if you respond favourably, you'll have your answer. Many doctors will diagnose celiac disease if you have a combination...
  13. Ursa Major
    Wow, that is scary, no wonder you were gaining so much weight! Maybe your body is trying to tell you something here. Are you eating enough fat and protein? You absolutely need lots of those to get enough nutrition for a growing baby. And yes, you need saturated fat. The best source of saturated fat is non-hydrogenated, cold pressed coconut oil. You...
  14. Ursa Major
    Yes, nighshade foods are vegetables (plus tobacco). And Lactaid milk can still cause terrible rashes if your daughter is casein intolerant, rather than lactose intolerant. My suggestion remains the same: Elimination of ALL dairy, not just lactose, to see if it makes a difference with her rashes. My grandchildren can't have lactose milk either. They'll...
  15. Ursa Major
    I definitely have to agree here. ALL mercury is toxic, including mercury in amalgam fillings (which are also bound to other substances). I can't imagine the level in mercury in people who have had all their vaccinations right from birth, plus flu-shots yearly from the age of six months, plus mercury fillings in their teeth. The mercury load will be absolutely...
  16. Ursa Major
    Hi 1965kid and MedicMan, and welcome to our forum! There are some things that haven't been said yet that are important, so I'll jump in with those. It is always wise to eliminate all dairy for the first while of going gluten-free, because the tips of the villi will produce the enzyme lactase to digest dairy, and when the villi are blunted, you will...
  17. Ursa Major
    I have read several articles just lately that say that this year's flu shot is absolutely useless. The reason is, that the viruses they guessed may be this year's problem ones have mutated and changed enough by now, that the vaccine isn't a match any more. Plus, it has never been proven that the flu vaccine actually works (several studies have shown that...
  18. Ursa Major
    I agree that dieting is a terrible idea during pregnancy. You've had good suggestions about limiting carbs and sugars, and eating meat, vegetables and fruit for the most part. And make sure you take vitamins. Weekly weigh-ins are ridiculous! The absolute worst thing for you to happen is, to start stressing about gaining too much weight, and possibly sliding...
  19. Ursa Major
    I am glad you found out that you are not dilated. But other than that, this doctor really wasn't very helpful. Saying that it is normal to have your hands swell and cramp is garbage. I never had that problem, and I haven't heard of anybody else having it either. And I've been around many pregnant women, including my two oldest daughters and daughter-in-law...
  20. Ursa Major
    Are you still giving your daughter dairy and/or soy? Even if it isn't DH, which is a possibility, all eczema is diet related. A dairy intolerance could be causing this awful rash as well. I know, because some of my grandchildren had absolutely horrible eczema. Especially my oldest granddaughter was covered in it from head to toe when she was little. It cleared...
  21. Ursa Major
    That looks promising. They are wrong though, when they say that there are no animals with celiac disease. Tons of dogs have it! That is news to me, yikes! I bet many people don't know (I didn't) and get glutened from those chips.
  22. Ursa Major
    Yes, they test you for those deficiencies by a blood test. And if they think it may be an emergency, they can actually do the tests right away in the hospital lab. I know, because once I thought I had a heart attack (they told me after five hours that it was 'only' severe stomach and bowel cramps, and there was nothing wrong with me and sent me home...
  23. Ursa Major
    Ugh, your obgyn is an idiot. I say, get some help so you can get more rest. Take it very easy (easier said than done with two little kids, I know). You really shouldn't wait to see a doctor until Friday, but try to get in earlier, it sounds like an emergency to me. Your cramps might be caused by a vitamin or mineral deficiency. Magnesium and vitamin...
  24. Ursa Major
    Constipation is one of the more obvious symptoms of dairy intolerance. So, I guess it was probably due to the probiotic. Yes, unfortunately, you may have been doing damage by taking this probiotic. It is too bad that they will put dairy into probiotics at all, with so many people being intolerant to it. The probiotic from Genestra is free of all problem...
  25. Ursa Major
    Well, this is my pattern (and no, I didn't even know what celiac disease was at that time): First pregnancy, three threatened miscarriages. I was bleeding so much, with big lumps of tissue coming out, that every time I was sure I had miscarried. And maybe I did, that there was more than one baby. But somehow my daughter hung on. At about the fifth...
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