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Celiacandme

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Everything posted by Celiacandme

  1. Celiacandme
    Out of curiosity, when is the last time you went to the doctor? Didn't your doctor want to do some sort of follow up? Did they not voice to you how important it is to be 100% gluten free for the rest of your life. It is amazing how many physicians don't understand this disease. Have you had your vitamin levels checked and a complete physical recently? I hope...
  2. Celiacandme
    So based on what your doctor wrote in the comments section maybe she won't be sending you for a scope either. I wonder if your numbers improve after the 12 weeks if she'll just give you the diagnosis and say stick with the diet!? By the way, going back to your original post about being the only one in your family - I am also. But your family should be tested...
  3. Celiacandme
    I can't believe your doctor did not send you right away for an endoscopy. Yeesh. How terrible. I would call and ask to be sent to a gastroenterologist now. Get that biopsy done before you begin this lifelong diet change. I'm sorry your doctor suggested it this way. Keep us posted on if you can get in sooner! (By the way, there are also more than 3 markers...
  4. Celiacandme
    I'm a little confused. You were diagnosed around two years ago with celiac disease? Is that correct? But you've only been recently gluten free for 3 months? Am I understanding that you went gluten free and then ate it again? If your biopsy confirmed it then you have it and it is so very, very important that you comply 100% to a gluten free diet. The doctor...
  5. Celiacandme
    Understandably so. Are you getting a second opinion? Do you like your neurologist? Have they already started you on medications? I don't really understand when you say that they found inflammatory spots. Did they say they were lesions on the MRI? I can't imagine all that you are going through. Thinking of you.
  6. Celiacandme
    I'm sorry to hear you've received a MS diagnosis. I've been reading the Wahls Protocol off and on. I was interested in what she went through and has experienced and I have an aunt with MS. I was curious if my aunt was ever tested for celiac when my diagnosis came in because of different symptoms she's experienced. I don't know if anyone else on this site...
  7. Celiacandme
    Good news, Nicole!
  8. Celiacandme
    Be gentle with yourself. Your body is trying to adjust to this and it takes time. Be sure to check and vitamins and medications you take - make sure they are gluten free and that your pharmacy knows you need to have your medicine from a gluten free manufacturer. Getting rid of any chance of cross contamination is important. If gluten is being consumed in...
  9. Celiacandme
    So glad he'll run the panel for you. I hope you can get in there fairly quickly to get it done. Good luck!
  10. Celiacandme
    Because of my symptoms they also questioned MS with me. The symptoms included neuropathy in my legs. I also have an aunt with MS so between my migraines, neuropathy, heaviness in legs they wanted to rule it out. The neurologist told me that celiac disease could cause my symptoms but he said "However, I don't want to wait a year or a year and a half to find...
  11. Celiacandme
    Sure are!
  12. Celiacandme
    Definitely sounds like it could possibly be celiac disease. I hope you can get your GP or one of your doctors to run the full celiac blood panel on you. Keep us posted. Don't stop eating gluten until you are tested. You know when something is wrong with your body. You might be anxious because of all that is going on but all of this is not caused by anxiety...
  13. Celiacandme
    Nicole, I'm glad to hear it isn't rheumatoid arthritis. Do you like yoga? Is there a yoga instructor in your area that specializes with working with people with osteo? I bet it might be beneficial. Worth checking out. I hope it doesn't progress much/fast. I was wondering about your update. I just saw your follow up response to someone else and that...
  14. Celiacandme
    I remember at one point I remember searching on this site urticaria as a reaction to cold and seeing that a few celiac patients seemed to be experiencing this. I was just curious who deals with urticaria here and what seems to trigger it for you...cold? Heat? Stress? A certain food? Did it start for you before or after your celiac disease diagnosis? ...
  15. Celiacandme
    Good luck. Let us know how it goes tomorrow.
  16. Celiacandme
    Yes, these sweet potato chips somehow fall into my grocery cart ALL THE TIME.
  17. Celiacandme
    My reflux was silent, too. I was diagnosed with Barrett's at the same time I was diagnosed with celiac disease. In November 2013. You mentioned you were waiting on biopsies - did those results come in yet?
  18. Celiacandme
    I'm sorry you are feeling so terribly. You have to be eating gluten for accurate testing results. If I were you, since you just decided to go gluten free, I would go now and get tested for celiac disease. For me, I'd want to know for sure, especially with having four children. If you have celiac disease they'll need to be tested and watch out for it as well...
  19. Celiacandme
    You've probably done this already but make sure everything that needs to be replaced in the kitchen is replaced so she doesn't get contamination! Toaster, anything plastic/wooden, etc. I hope your mom starts to feel better in the near future. It takes a long time in many cases so encourage her to come here if she has questions or just wants to talk to others...
  20. Celiacandme
    Glad to hear it isn't optic neuritis again. I hope those eye drops do work quickly!
  21. Celiacandme
    Thanks, Nicole. I'll have to see what my thyroid results were. If I remember correctly they were in range but at the higher end of in range. It is probably almost time to check again. Lisa, That is interesting about your skin clearing in England! Not tired of hearing that at all. The fact that it takes so long gives reason to remain hopeful. Thanks...
  22. Celiacandme
    For me I found I was reacting to soy, corn, corn syrup, dairy, potato. I switched to sweet potato, or am trying to. I haven't been able to completely give it up but after not having it when I do have a regular potato my skin, stomach, joints react. (keep in mind I also rec'd a lupus diagnosis) But for me it keeps my body reacting and I'm trying what I can...
  23. Celiacandme
    Let us know how your appointment goes. I hope cutting dairy helps you. I had to essentially cut out anything inflammatory. So glad your MRI showed no signs of MS!
  24. Celiacandme
    I followed this topic yesterday because I'm curious to see what, if anything, people have to say about this. My eyes have always been sensitive to light. I've always been known as the one to have sunglasses on all the time. The sensitivity did get worse since being diagnosed with celiac disease in Nov of 2013. (I've also however been diagnosed with lupus...
  25. Celiacandme
    I was just curious how many of us have raynaud's with celiac disease? It seems to be fairly common, right? My raynaud's actually starting simultaneously with my celiac diagnosis and going gluten free. Is your raynaud's a result of your celiac diagnosis or do you also have additional autoimmune disorders? (I've been diagnosed with two additional rheumatology...
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