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dlp252's Achievements
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Sorry, lol, LN is LymeNet...there is a whole forum for seeking a doctor. We don't post the doctor's name on the forum, but someone can send you a private message or email with names.
Here is a link to the LN forums: Open Original Shared Link
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Aw Andrea, sorry you're still not feeling well! I have been thinking of something that might at least cheer you up...I'll PM you today or tomororw.
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Yay Paula!!!! So happy you finally got it! How'd the dreaded DHL get a hold of it, lol?!
You'll have fun playing!
I've decided when I'm off for my foot surgery, I'm going to play with stuff. Like this morning. I really love Gingerbread man, and thought it might look good as a bronzer or blush, but was too afraid to try it. I'll try it on a day when I don't have to go out, lol.
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Ha, I ordered my train case. A present to myself.
Also a tooth whitener.
Today I tried to use the Pearl Beige as an eyeshadow...it looked pretty good but was just a hair too light so I put Gingerbread man over it, and I really, really liked that, lol.
I also switched the brushes I use...Normally I use the flat top for my silk dust layer, then use the long handled kabuki for my foundation. I switched them today...still not sure what I think about that. I'll get back to you.
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OMGosh...I had the strangest dream last night, lol. A little background...I have an appointment next week with Dr. R my GI. This is a followup to the enlarged ampulla thing from a couple of years ago. I don't know if he'll be willing, but I want him to do another endoscopy to check the growth. Okay, so my dream. I dreamt that while he was in there he found villi damage and I was officially diagnosed with Celiac, lol.
I was so darned excited, you'd think I'd won the lottery, but then I was shocked and sort of bummed out. What the heck is that about, lol. Maybe deep down in my subconscious I am hoping the sensitivity is from lyme/metals/mold and will go away, lol.
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How did you find your LLMD. After I googled what LLMD meant (thanks for telling me, though), i did a search for my area. I am in Central/Northern NJ. I could go into NYC if I had to, but would rather stay local. Any recommendations for the search?
I live in the same area as Rachel, so I went to all her doctors.
You can ask on LN too.
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Or little placards with "the PfUn starts here"
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My son told me he took the meds this morning and this afternoon.
YAY!!!! Miracles do happen!
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Here is the big list of symptoms:
Symptoms of Lyme Disease
The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
Rash at site of bite
Rashes on other parts of your body
Rash basically circular and spreading out (or generalized)
Raised rash, disappearing and recurring
Head, Face, Neck
Unexplained hair loss
Headache, mild or severe, Seizures
Pressure in Head, White Matter Lesions in Head (MRI)
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy)
Tingling of nose, (tip of) tongue, cheek or facial flushing
Stiff or painful neck
Jaw pain or stiffness
Dental problems (unexplained)
Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose
Eyes/Vision
Double or blurry vision
Increased floating spots
Pain in eyes, or swelling around eyes
Oversensitivity to light
Flashing lights/Peripheral waves/phantom images in corner of eyes
Ears/Hearing
Decreased hearing in one or both ears, plugged ears
Buzzing in ears
Pain in ears, oversensitivity to sounds
Ringing in one or both ears
Digestive and Excretory Systems
Diarrhea
Constipation
Irritable bladder (trouble starting, stopping) or Interstitial cystitis
Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)
Musculoskeletal System
Bone pain, joint pain or swelling, carpal tunnel syndrome
Stiffness of joints, back, neck, tennis elbow
Muscle pain or cramps, (Fibromyalgia)
Respiratory and Circulatory Systems
Shortness of breath, can't get full/satisfying breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills
Heart palpitations or extra beats
Endocarditis, Heart blockage
Neurologic System
Tremors or unexplained shaking
Burning or stabbing sensations in the body
Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Lightheadedness, wooziness
Psychological well-being
Mood swings, irritability, bi-polar disorder
Unusual depression
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Over-emotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep
Narcolepsy, sleep apnea
Panic attacks, anxiety
Mental Capability
Memory loss (short or long term)
Confusion, difficulty in thinking
Difficulty with concentration or reading
Going to the wrong place
Speech difficulty (slurred or slow)
Stammering speech
Forgetting how to perform simple tasks
Reproduction and Sexuality
Loss of sex drive
Sexual dysfunction
Unexplained menstral pain, irregularity
Unexplained breast pain, discharge
Testicular or pelvic pain
General Well-being
Unexplained weight gain, loss
Extreme fatigue
Swollen glands/lymph nodes
Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Early on, experienced a "flu-like" illness, after which you have not since felt well.
Low body temperature
Allergies/Chemical sensitivities
Increased effect from alcohol and possible worse hangover
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What is an LLMD...
It's a lyme literate medical doctor. They are sort of "specialists" where lyme is concerned. A good LLMD will take all things into consideration when making a diagnosis...regardless of what the western blots say. They will test you for ALL KINDS of things, not just lyme, and if necessary make a differential diagnosis (ruling things out).
My IgG had enough bands to be considered positive by Igenix standards and my LLMD took that test together with the symptoms I was having, plus the results of a multitude of other testing he had done to arrive at a diagnosis. In my case I had around 45-47 of the 75 known lyme symptoms...not everyone has that many and not everyone has the same kind. The site that lists the 75 symptoms says that a if you have 20 of the 75 you should at least consider lyme as a possibility.
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This is bits and pieces of an explanation of the western blots:
Posting this, written by Dr C of Missouri for the benefit of everyone. This was written around 1999 or 2000. There is an updated version below.Please note that "equivocal" is the same thing as "IND" or "indeterminate."
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Explaining Borreliosis (Lyme) Western Blot Tests
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31: Outer surface protein A (osp A). 34: Outer surface protein B (osp
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41: Flagella or tail. This is how Borrelia burgdorferi moves around, by moving the flagella. Many bacteria have flagella. This is the most common borreliosis antibody.
In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis.
These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93.
This is true regardless of whether it is IgG or IgM.. But again, there is no universal agreement on the significance of these bands. Betina Wilska, M.D. from Germany is one of the world's experts on outer surface protein A (31 kDa).
At the international borreliosis conference in Vancouver, British Columbia, I asked her personally about the 30 kDa band. She told me it was the same as the 31 kDa band (osp A).
and this from an update:
The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 58, 66 and 93.This was taken from a thread on LN:
Open Original Shared Link
(sorry, edited my post to fix the link)
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Oh what a perfect day...perfect cult-like behavioUr all around!!!!
Fun order!!!! Makes me want to put in another order myself!
No wait...I want that Sephora Train case...
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I accidentally ordered my order twice.
And I need new summer foundation (who'd've thought with how little time I spend outside?
)... and a new brush. Hm... I'm thinkin' I'm gonna be ordering again no matter what.
PERFECT cult-like behavior!
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Nancy, my IgM was also negative, but my IgG was positive.
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You could have them carry around containers of pee (a la Emily). Any misbehaving is countered by a public announcement of what's in the butter tub.
All I can say is, good thing she wasn't doing a stool test!
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That's the spirit Julie!!!!
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My attempt at a balloon!
:lol:
Happy 2000 pages everyone!
Paula, I think pork is really just hard to digest and for those of us with other stuff going on it just can be too much.
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Does anyone have both Samba Lessons and Starry Eyed? They look and sound so similar, I'm wondering if I even need or want both?
And do we get a brush with the mini eye shadow kits? It just doesnt mention it, that I can see anyway.
I have both. I really love Samba Lessons...it's a dark sparkly brown. Starry Eyed is more mauvy brown...it's also dark and sparkly. Had I not just gone to the site to check them out I was about to say they aren't even close, lol... IMHO you really need both!
Yeah, the new site has its moments!
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Hi Mia...I see you!!!
Hey peeps....we are going to hit 2000 pages!!!!! Can you believe that?!
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He said he's taking the meds.
He's going to post on LN tonight .... I think it will be good for him to see what others tell him, too.
Well THAT's encouraging!!!!
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Patti =
Maybe we should all choose some number and only read the posts divisible by that number, say, read every seventh post. Then we could all have that surreal sort of experience normally only achievable with controlled substances or liberal phaerie drops.Hum, good way to describe how I feel when I DO drop in!
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It was a man this time. I didn't even give him the chance to ask me what was in the container - - I came right out and said, "Some of my urine is in here". Now, I think the most prudent, and therefore proficient, of security workers would have asked me to open it.
But he didn't.
I often don't know what's going on in here, but I always manage to drop in on a page with something like this!!!
:lol:
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Thanks Jess! WOW, that first set of photos is GORGEOUS! I can never get mine to look like that so I gave up and just use one color now.
Everyday Minerals - Great gluten-free Mineral Make-up!
in Gluten-Free Foods, Products, Shopping & Medications
Posted
OOOOhhhh, and then, since it turns color on me, I'd get to see a kalaidescope of changing color as the day goes on!
Hum, I'll try it! Wait, hum, maybe it wouldn't turn color on my eyes though...still I think I must try.