dlp252

This sounds odd, but I find that listening to the Harry Potter books on tape (disc) puts me to sleep. I started by listening when I was really tired, so now I've created as sort of Pavlovian response to that guys voice. When I put a disc on, I fall asleep almost immediately. It worked for those 12:30am wake ups as well.

And if sometimes it took a little longer to fall asleep, at least I was entertained....

Don't have books on tape, but you reminded me...I have lots of exercise videos and if I just lay down and watch one I fall asleep, lol. Course I'd have to find one that ended in a black screen.

dingo'd everything else after my rant. So sorry for going on so long......but they would be RIDICULOUS to even think of losing an employee like me......they get me for next-to-nothing and I give them decades of experience......and make customers want to come back.

You bet they'd be ridiculous! Crazy people!

INSOMNIA!!!!!!

That stupid old "friend" of mine is back. I have been waking up at 12:30 a.m. and only two nights was able to go back to sleep...one night woke up at 1:30 and couldn't get back to sleep. I sleep great until 12:30 or 1:30...grrr. Last night it was 12:30...I FINALLY dozed off at around 3:45 (I get up at 4:00, lol), and had the strangest dream about flying out of state to a wedding which was Hawaiian themed, but I forgot all my tops (no comments), so had to wear my pajamas and every time I tried to go take a shower, someone beat me to the bathroom.

I stopped taking my Zyrtek a couple of weeks ago when the HN doctors gave me all the supplements. She's got me taking 6mg of melatonin before bed so I wanted to see how that would work....apparently it doesn't, lol. I'm not sure how long to give it, but I figure I'll try at least 1 more week, but I'm taking my Zyrtek with me on my cruise, lol.

Lyme Disease symptoms:

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I've got 47 of those symptoms! Those are the ones that I've had the most...I've had a couple of others maybe once or twice! YIKES!

I know there was more but can't remember. Big trauma at work today, but I am too tired to explain it. It was my brain..... And I walked away from my boss and burst into tears. One of my best friends was in teh store, I had not seen her come in, but she witnessed the whole thing......never mind. I think things will be okay but it is just the same old story....the confusion in my brain.

wub to all I am heading into bed to get warm and read and watch stupid things on tv.

Hopefully a minor bump...sorry you had a bad work day.

Speaking of mojo...was everyone born with one and does everyone have one, cuz I don't think I was or do.

Yes, I am back home finally!! Got home mon.late afternoon, exhausted of course. Nurse in this am and PM dd Carolyn took me back to hosp to have heart monitor checked and renewed.

Have to go back Wed pm, only 60 miles 1 way, that is to be last one, hopefully. Will get a blood test also, then get to stay home a few days. So good to hear from so many of you, good to be remembered by friends!!

DD carolyn will be here till Sat., sure thankful for that..have good dd's ( 3 of them) have all been helping me at some time past few weeks, really helps us. I hope to start getting some energy back soon, but so many DR. appt. over the next month & most 60 mile away. Read many pages tonight, finally jumped fwd.

Hope many of you are finding answers for problems, if not yet hang in there, I plan to also. Love you all, evie

EVIE!!!!!! I missed you! Glad to hear from you...take it easy my friend!

Guys....I had a traumatic night.

So sorry! HOpe you were able to get some rest!

Hi White! Corn definitely seems to be a problem for a lot of people. I think I can have corn, but we'll see. I haven't had it now in over 3 weeks, so it's going to be one of the next foods I add in if I can ever get to a point where I'm not reacting.

Anyone, What are the symptoms of chronic Lymes? Trying to read this thread but its long Hubbie is ill, and is being tested for everything but in Aust Lymes is so rare that Dr hasn't done that yet. What testing needs to be done ? He lived in England all his life. He can't recall a rash or ever walking in long grass without long trousers.

I'm sure someone will see this and answer before I can, but if not, I have some links bookmarked at work, so early tomorrow morning I can post some of those if no one has answered yet. From what I understand, unless his pant legs where tucked into socks, it's possible for those darned things to get in there. The only sumptoms I can remember are fatigue, muscle/joint pain, brain fog...so many others and so similar to many other things.

Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!

I still miss my dad after 10 years! You're entitled to feel blue! I always think of him still on his birthday, father's day, Christmas etc.

I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?)

Ha, you said cyberically!!

Yeah, we're all hot babes with great hair, too!!!

Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol!

Does anyone ever have a deja vu? I have been having so many of them lately it's annoying ...

I have them once in a while...it seems like they used to happen more often than they do now though.

When was this?

Let's see, he retired in June of 2005, so probably about 2 years ago...fortunately for me I HATED the taste of the stuff...he wouldn't let me get capsules, I had to have the powder and it tasted AWFUL, so I didn't take it for long...but while I did I think I even felt worse than I did before...same with the colloidal silver he had me try. I loved this doctor...he's the one who at least tried to think outside the box as far as what it could be, but he retired before we got around to everything.

Donna, I think as I reintroduce the supplements I will add glutathione and alpha lipoic acid, both are supposed to be good mercury eliminators, but gentle .... I remember feeling better every time I took glutathione. I want to see if it makes a difference. I had mercury show up in my hair analysis ... it was a low level, but that's common in someone very toxic with it. The Lyme/mercury article said that if you're treating Lyme, even with salt/c, that you can be mobilizing the mercury ... so it's probably a good idea for me to add those supplements soon to see if it makes a difference at all in my energy.

I think I'll add it in anyway. I think what I think is a reaction might be from the pectasol...that is supposed to bind with the mercury and help it be eliminated...I've been having D which is really light in color, so maybe that's it. I haven't been tested by anyone yet for metals...I may ask the HN doctors about that when I have my next consult, which should be to discuss the results of my stool tests.

How's the glutathione working for you? I remember when I had my fillings out, the glutathione was like an energy booster. I'm beginning to think it would be a good thing for me to take now!!!

I actually haven't started on that yet...I've been adding the NUMEROUS supplements the new doctors gave me very slowly before I try anything else new. Right now I'm reacting to something and not sure what. I "think" one of the supplements they have me on has glutathione, but probably not as much as I need.

I'm seeing a new doctor next Wednesday--the 29th. I spoke to the nurse there and told her of my Celiac and food intolerances and asked point blank if they were familiar and were treating others with the same types of things. She was very reassuring--but we shall see....I plan to ask about Lyme, as a lot of my issues match the symptoms lists. I remember brushing a tick off my arm about 12 years ago. I also used to get such weakness in my legs while on antibiotics that I couldn't walk for very long. It's a long shot, in my case--but given Miamia's intolerances as well as Laura's--I should look into this. It's been 18 months gluten-free, and though I'm better in some ways, I'm more sensitive in others

I have that muscle weakness too and mostly in my legs, but arms as well. I've never been able to explain it and always thought I was out of shape even though I work out nearly every day I can.

I guess that sums it up pretty well--hope you remember the tune

I do, it's perfect, lol!

I'm concerned you might not be so "honorary".

I know it seems so, but I just find it hard to believe it could be true, lol.

This article says MSM can do more damage than good with mercury ....

That would be why I felt worse after my doctor put me on MSM!

I also want to thank everyone on this thread!!! For continually repeating to me what's been said MANY times before, for being patient with me, for allowing me to be an honorary lyme clan rachelville participant, for just being who you all are...thank you! Okay, I'm going to cry now.

Happy Birthday to Seth!!!!

I'm in California, but way up North near San Francisco. Welcome! I was diagnosed last year at 50.

Hi Donna

Adding my wub to the love fest

Hi and me too!

What do we pay them so much money for again?

Been asking myself the same question!

I feel like I am lurking here, hope nobody minds, but I am struck by your determinations to find answers, and the support you all have for each other.

I hope you find your answers very soon, meanwhile I am learning a lot about lyme here, something I have never come across.

A couple of pages back there was mention of talc causing grief possibly to someone. Well whenever I take up using talc I have come out in a rash, and then when I have abandoned it the rash dissappears very quickly, until the next time I use it, then it happens again. What is talc made up of anyway?

Cathy

I think it was Julie or Patti that mentioned the talc...it was in the discussion about Bare Minerals. Don't know the answer about talc.

Lurk all you'd like, and feel free to join in too...that's how many of us found our way here in the first place. I'm not as sick as most here, but feel like if I don't do something now I'll get there soon.

I love you donna

I love you right back! As much as I would NEVER want anyone to have Lyme, at least if you do you'd have a direction and a focus...still in disbelief over doctors these days.

OMG...I'm sorry Miamia but right now I feel like I want to punch your Dr. for letting this go. The only thing I can think of is that he doesnt know anything about Lyme or how to read these test results. The thing that most bothers me is that it *says* right on the test that results like these (even if negative) need to be further pursued because the IND'S on double starred bands have clinical significance.

So yeah.....I want to punch him.

Ditto!!! Maybe I should practice some of my ant relocation techniques on him! Unbelievable!

Hi Donna- Yeah, it was great but no snow yet! I won $200 in gift certificates so my sis and I went up for my birthday!

I have a picture of me laying in a bunch of leaves doing a leaf angel cuz there was no snow, lol. Gee, I wonder where I could have picked up a tick.

Hi Julie! Some chiropractors are MDs and can prescribe...maybe the chiropractor at her office is??

Sounds WONDERFUL!!!!! I have been to Stowe once during a week long active hiking vacation...loved it along with all the other great places we visited.

x!

Oh that is SOOOOOOO WONDERFUL!!!!! I am so happy for you both!

Quick for me is nuts...I keep some at my desk and grab a few anytime I need a quick snack.

I will also sometimes have an energy bar with a little nut butter on it.

Donna....you have to hit F5. That should do it.

That's what I was doing but it kept opening a new web window...I had to redefine the key...had to press it three times and hop on 1 foot (okay the 1 foot thing is a joke), it finally worked! Phew! I have a wireless multimedia keyboard and seems like some of the keys are defined strangely, lol.

I wonder about the co-infection test?? If I *have* co-infections...does this prove Lyme Disease? Can I have co-infections and *not* have Lyme?? Obviously my Dr. would know....but I dont wanna wait till Dec 4th.

No, no, you must know before December 1st, lol. I'll be gone on Dec. 4th. My friend has cruised so often with this line that she gets free INternet access, but I still don't think I'll have enough time to check in very often...there's always a huge amount of people wanting to use the computers...but I'll try to check on around the 4th just in case.

What do you guys think of my new avatar??

This is when I started getting sick...BUT....I had the dental work done this same week...a few days before my camping trip. 3 months after this picture...I was on disability.

There was a CRAZY amount of deer at our campsite. They came before I started feeding them....people must have already been feeding them so they knew what they wanted.

I have more pics...will put up another one later....you will be shocked.

Maybe I got bit again and got another infection......maybe it tipped the scales??

Wahhhh!!! I can't see the new picture...I've tried refresh and I still have the jet ski here at home. My computer at work will show the new one...why does that happen, lol.?

Hi Donna Hugs back to you!

I can relate to the antibiotics/prednisone and the "sinus infections" Are we really sure we didn't have the same doctor? You know, maybe a bi-coastal one

I've often thought that we all must see the same doctors, they really do start to sound so similar!

Donna,

I am so glad to hear that your sinus problems got better going gluten/casein free. I would have hated to be on meds that much.

Hugs and

It was awful! They had lost track of how much I'd taken them because my file was so thick it was hard to go back (kind of like this thread, lol). I had to compile a list of all the dates he prescribed (or his nurse gave me) the meds...when he saw the list he said "that's too much." Uh, yah. Now, I must say that I LOVED this doctor because he at least tried to help me figure out what was going on...he's the one who had me try the candida diet and did a clinical trial with me for thyroid meds and candida meds (I know, it sounds odd, but he really was trying to help). He finally had to admit he didn't know why I was still getting so sick...he thought that my allergies were driving all the sinus issues, but after 3 years on allergy shots I wasn't getting any better and we were never able to reduce the number of shots I was getting.